Commentary: What “Community Review” Can and Cannot Do

Eric T. Juengst

doi:10.1111/j.1748-720X.2000.tb00316.x

Marshall, Patricia A. and Rotimi, Charles 2001. Ethical Challenges in Community-Based Research. The American Journal of the Medical Sciences, Vol. 322, Issue. 5, p. 241.

Rothstein, Mark A. and Epps, Phyllis Griffin 2001. Ethical and legal implications of pharmacogenomics . Nature Reviews Genetics, Vol. 2, Issue. 3, p. 228.

Anderlik, Mary R. and Rothstein, Mark A. 2001. Privacy and Confidentiality of Genetic Information: What Rules for the New Science?. Annual Review of Genomics and Human Genetics, Vol. 2, Issue. 1, p. 401.

Rothstein, Mark A. 2002. The Role of IRBs in Research Involving Commerical Biobanks. Journal of Law, Medicine & Ethics, Vol. 30, Issue. 1, p. 105.

Kuczewski, Mark G. and Marshall, Patricia 2002. The Decision Dynamics of Clinical Research. Medical Care, Vol. 40, Issue. Supplement, p. V.

Gibbs, Richard A. Belmont, John W. Hardenbol, Paul Willis, Thomas D. Yu, Fuli Yang, Huanming Ch'ang, Lan-Yang Huang, Wei Liu, Bin Shen, Yan Tam, Paul Kwong-Hang Tsui, Lap-Chee Waye, Mary Miu Yee Wong, Jeffrey Tze-Fei Zeng, Changqing Zhang, Qingrun Chee, Mark S. Galver, Luana M. Kruglyak, Semyon Murray, Sarah S. Oliphant, Arnold R. Montpetit, Alexandre Hudson, Thomas J. Chagnon, Fanny Ferretti, Vincent Leboeuf, Martin Phillips, Michael S. Verner, Andrei Kwok, Pui-Yan Duan, Shenghui Lind, Denise L. Miller, Raymond D. Rice, John P. Saccone, Nancy L. Taillon-Miller, Patricia Xiao, Ming Nakamura, Yusuke Sekine, Akihiro Sorimachi, Koki Tanaka, Toshihiro Tanaka, Yoichi Tsunoda, Tatsuhiko Yoshino, Eiji Bentley, David R. Deloukas, Panos Hunt, Sarah Powell, Don Altshuler, David Gabriel, Stacey B. Zhang, Houcan Zeng, Changqing Matsuda, Ichiro Fukushima, Yoshimitsu Macer, Darryl R. Suda, Eiko Rotimi, Charles N. Adebamowo, Clement A. Aniagwu, Toyin Marshall, Patricia A. Matthew, Olayemi Nkwodimmah, Chibuzor Royal, Charmaine D. M. Leppert, Mark F. Dixon, Missy Stein, Lincoln D. Cunningham, Fiona Kanani, Ardavan Thorisson, Gudmundur A. Chakravarti, Aravinda Chen, Peter E. Cutler, David J. Kashuk, Carl S. Donnelly, Peter Marchini, Jonathan McVean, Gilean A. T. Myers, Simon R. Cardon, Lon R. Abecasis, Gonçalo R. Morris, Andrew Weir, Bruce S. Mullikin, James C. Sherry, Stephen T. Feolo, Michael Altshuler, David Daly, Mark J. Schaffner, Stephen F. Qiu, Renzong Kent, Alastair Dunston, Georgia M. Kato, Kazuto Niikawa, Norio Knoppers, Bartha M. Foster, Morris W. Clayton, Ellen Wright Wang, Vivian Ota Watkin, Jessica Gibbs, Richard A. Belmont, John W. Sodergren, Erica Weinstock, George M. Wilson, Richard K. Fulton, Lucinda L. Rogers, Jane Birren, Bruce W. Han, Hua Wang, Hongguang Godbout, Martin Wallenburg, John C. L'Archevêque, Paul Bellemare, Guy Todani, Kazuo Fujita, Takashi Tanaka, Satoshi Holden, Arthur L. Lai, Eric H. Collins, Francis S. Brooks, Lisa D. McEwen, Jean E. Guyer, Mark S. Jordan, Elke Peterson, Jane L. Spiegel, Jack Sung, Lawrence M. Zacharia, Lynn F. Kennedy, Karen Dunn, Michael G. Seabrook, Richard Shillito, Mark Skene, Barbara Stewart, John G. Valle, David L. Clayton, Ellen Wright Jorde, Lynn B. Belmont, John W. Chakravarti, Aravinda Cho, Mildred K. Duster, Troy Foster, Morris W. Jasperse, Marla Knoppers, Bartha M. Kwok, Pui-Yan Licinio, Julio Long, Jeffrey C. Marshall, Patricia A. Ossorio, Pilar N. Wang, Vivian Ota Rotimi, Charles N. Royal, Charmaine D. M. Spallone, Patricia Terry, Sharon F. Lander, Eric S. Lai, Eric H. Nickerson, Deborah A. Abecasis, Gonçalo R. Altshuler, David Bentley, David R. Boehnke, Michael Cardon, Lon R. Daly, Mark J. Deloukas, Panos Douglas, Julie A. Gabriel, Stacey B. Hudson, Richard R. Hudson, Thomas J. Kruglyak, Leonid Kwok, Pui-Yan Nakamura, Yusuke Nussbaum, Robert L. Royal, Charmaine D. M. Schaffner, Stephen F. Sherry, Stephen T. Stein, Lincoln D. and Tanaka, Toshihiro 2003. The International HapMap Project. Nature, Vol. 426, Issue. 6968, p. 789.

2004. Integrating ethics and science in the International HapMap Project. Nature Reviews Genetics, Vol. 5, Issue. 6, p. 467.

Godard, B. Marshall, J. Laberge, C. and Knoppers, B. M. 2004. Strategies for consulting with the community: The cases of four large-scale genetic databases. Science and Engineering Ethics, Vol. 10, Issue. 3, p. 457.

Gollust, Sarah E. Apse, Kira Fuller, Barbara P. Miller, Paul Steven and Biesecker, Barbara B. 2005. Community Involvement in Developing Policies for Genetic Testing: Assessing the Interests and Experiences of Individuals Affected by Genetic Conditions. American Journal of Public Health, Vol. 95, Issue. 1, p. 35.

Miller, Paul Steven Apse, Kira Gollust, Sarah Fuller, Barbara and Biesecker, Barbara 2005. Community Involvement in Developing Policies for Genetic Testing: Assessing the Interests and Experiences of Individuals Affected by Genetic Conditions. SSRN Electronic Journal,

Sapienza, Jessica N. Corbie-Smith, Giselle Keim, Sarah and Fleischman, Alan R. 2007. Community Engagement in Epidemiological Research. Ambulatory Pediatrics, Vol. 7, Issue. 3, p. 247.

REDDY, DEEPA S. 2007. GOOD GIFTS FOR THE COMMON GOOD: Blood and Bioethics in the Market of Genetic Research. Cultural Anthropology, Vol. 22, Issue. 3, p. 429.

McGregor, Joan L. 2007. Population Genomics and Research Ethics with Socially Identifiable Groups. Journal of Law, Medicine & Ethics, Vol. 35, Issue. 3, p. 356.

Henderson, Gail E. 2008. Introducing Social and Ethical Perspectives on Gene—Environment Research. Sociological Methods & Research, Vol. 37, Issue. 2, p. 251.

Artizzu, Federica 2008. The informed consent aftermath of the genetic revolution. An Italian example of implementation. Medicine, Health Care and Philosophy, Vol. 11, Issue. 2, p. 181.

Hofmann, Bjørn Solbakk, Jan Helge and Holm, Søren 2009. The Ethics of Research Biobanking. p. 3.

O’Doherty, Kieran C. Burgess, Michael M. Edwards, Kelly Gallagher, Richard P. Hawkins, Alice K. Kaye, Jane McCaffrey, Veronica and Winickoff, David E. 2011. From consent to institutions: Designing adaptive governance for genomic biobanks. Social Science & Medicine, Vol. 73, Issue. 3, p. 367.

Merriman, Ben and Molina, Santiago J. 2015. Variable conceptions of population in community resource genetic projects: a challenge for governance. New Genetics and Society, Vol. 34, Issue. 3, p. 294.

Hayward, Ashley Sjoblom, Erynne Sinclair, Stephanie and Cidro, Jaime 2021. A New Era of Indigenous Research: Community-based Indigenous Research Ethics Protocols in Canada. Journal of Empirical Research on Human Research Ethics, Vol. 16, Issue. 4, p. 403.

Article contents

Commentary: What “Community Review” Can and Cannot Do

Abstract

Access options

Article purchase

Temporarily unavailable

This article has been cited by the following publications. This list is generated based on data provided by Crossref.

Article contents

Commentary: What “Community Review” Can and Cannot Do

Abstract

Access options

Article purchase

Temporarily unavailable

Save article to Kindle

Save article to Dropbox

Save article to Google Drive

Reply to: Submit a response

Your details

You have entered the maximum number of contributors

Conflicting interests