Hostname: page-component-586b7cd67f-2plfb Total loading time: 0 Render date: 2024-11-22T16:16:38.786Z Has data issue: false hasContentIssue false
  • English
  • Français

Biobanking in Estonia

Published online by Cambridge University Press:  01 January 2021

Aime Keis
Get access Rights & Permissions [Opens in a new window]

Abstract

Estonia is a democratic, parliamentary republic with a health care system that is built on the principle of compulsory, solidarity-based insurance and the all-round availability of services of private service providers. Estonia has specific biobank legislation as well as oversight via data protection laws. Its population-based biobank, the Estonian Genome Center (EGCUT), established in 2001, is one of the largest biobanks in Europe, and its database may be used only for scientific research, public health research, and statistics. The EGCUT can issue data to a third party, but only in coded form. This comprehensive database of genotypic, phenotypic, health, and genealogical information represents about 5% of Estonia's adult population, and is the largest cohort ever gathered in Estonia. Government approval is required for international data sharing, and sharing can be further limited by the requirement of ethics approval and permission from Estonian government.

Type
Symposium Articles
Information
Journal of Law, Medicine & Ethics , Volume 44 , Issue 1: Part II: Harmonizing Privacy Laws to Enable International Biobank Research , Spring 2016 , pp. 20 - 23
Copyright
Copyright © American Society of Law, Medicine & Ethics 2016

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Storobin, D., “Estonian Economic Miracle: A Model For Developing Countries,” Global Politician, June 28, 2011.Google Scholar
Reporters Without Borders, “Press Freedom Index 2011– 2012,” available at <http://en.rsf.org/press-freedom-index-2011-2012,1043.html> (last visited January 25, 2016).+(last+visited+January+25,+2016).>Google Scholar
Id.Google Scholar
Frankowski, S. and Stephan, P. B., Legal Reform in Post-Communist Europe: The View from Within (Dordrecht: M. Nijhoff, 1995).Google Scholar
Id.Google Scholar
World Bank, “Research and Development Expenditure (% of GDP),” 2011, available at <http://data.worldbank.org/indicator/GB.XPD.RSDV.GD.ZS> (last visited January 25, 2016).+(last+visited+January+25,+2016).>Google Scholar
Teataja, Riiga, “Personal Data Protection Act (abbreviated-IKS), available at <https://www.riigiteataja.ee/akt/130122010011> (last visited January 26, 2016).+(last+visited+January+26,+2016).>Google Scholar
Teataja, Riiga, “Human Gene Research Act (abbreviated -IGUS),” available at <https://www.riigiteataja.ee/akt/72581> (last visited January 25, 2016).+(last+visited+January+25,+2016).>Google Scholar
Id.Google Scholar
Id.Google Scholar
BBMRI-LPC, available at “www.bbmri-lpc.org” (last visited January 26, 2016).Google Scholar