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Is Race-Based Medicine Good for Us?: African American Approaches to Race, Biomedicine, and Equality

Published online by Cambridge University Press:  01 January 2021

Extract

Public discourse on race-specific medicine typically erects a wall between the scientific use of race as a biological category and the ideological battle over race as a social identity. Scientists often address the potential for these therapeutics to reinforce a damaging understanding of “race” with precautions for using them rather than questioning their very development. For example, Esteban Gonzalez Burchard, an associate professor of medicine and biopharmaceutical sciences at the University of California, San Francisco, states, “We do see racial differences between populations and shouldn’t just close our eyes. Unfortunately, race is a politically charged topic, and there will be evildoers. But the fear should not outweigh the benefit of looking.” Although it is recognized that ideology influences the social meaning of race, it is usually assumed that there is a separate, prior scientific understanding of race that is not contaminated by politics.

Type
Symposium
Copyright
Copyright © American Society of Law, Medicine and Ethics 2008

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References

Quoted in Rotman, D., “Race and Medicine,” Technology Review, April 2005.Google Scholar
Reardon, J., Race to the Finish: Identity and Governance in an Age of Genomics (Princeton: Princeton University Press, 2005).Google Scholar
Bonilla-Silva, E., Racism without Racists: Color-Blind Racism and the Persistence of Racial Inequality in the United States (Lanham, MD: Rowman & Littlefield, 2003); Brown, M. K. et al., White-Washing Race: The Myth of a Color-Blind Society (Berkeley: University of California Press, 2003); Thernstrom, S. and Thernstrom, A., America in Black and White: One Nation, Indivisible (New York: Simon & Schuster, 1999).Google Scholar
Parents Involved in Community Schools v. Seattle School District No. 1, 551 U.S.; 127 S. Ct. 2738 (2007).Google Scholar
Id., at 2768.Google Scholar
See, for example, Bowser, R., “Race as a Proxy for Drug Response: The Dangers and Challenges of Ethnic Drugs,” DePaul Law Review 53, no. 3 (2004): 11111126; Duster, T., “Race and Reification in Science,” Science 307, no. 5712 (2005): 1050–1051.Google Scholar
Rotimi, C., “Are Medical and Nonmedical Uses of Large-Scale Genomic Markers Conflating Genetics and ‘Race’?” Nature Genetics 36, no. 11 (2004): S43S47; Reverby, S. M., “‘Special Treatment’: BiDil, Tuskegee, and the Logic of Race,” Journal Law, Medicine & Ethics 36, no. 3 (2008): 478–484.CrossRefGoogle Scholar
NSF Scholar's Award, “Legal and Political Approaches to Race Consciousness in Biotechnology Research,” SES-0551869; RWJF Investigator Award in Health Policy Research, “Race Consciousness in Biomedicine, Law, and Social Policy,” 63917.Google Scholar
Smith, A. L., Native Americans and The Christian Right: The Gendered Politics of Unlikely Alliances (Durham, NC: Duke University Press, 2008), citing Laclau, E. and Mouffe, C., Hegemony and Socialist Strategy (London: Verso, 1996).CrossRefGoogle Scholar
See Kahn, J., “BiDil: False Promises,” Gene Watch 18, no. 6 (November-December 2005): 69.Google Scholar
Satel, S., “I Am a Racially Profiling Doctor,” New York Times, May 5, 2002, § 4, at 1; see also Klick, J. and Satel, S., The Health Disparities Myth: Diagnosing the Treatment Gap (Washington, D.C.: AEI Press, 2006).Google Scholar
Satel, S., “Race and Medicine Can Mix without Prejudice: How the Story of BiDil Illuminates the Future of Medicine,” available at <www.medicalprogresstoday.com> (last visited May 23, 2008).+(last+visited+May+23,+2008).>Google Scholar
I am grateful to Jonathan Kahn for conversations on this distinction.Google Scholar
Satel, S., PC, M.D.: How Political Correctness Is Corrupting Medicine (New York: Basic Books, 2001); Entine, J., Panel Discussion on Genetics and Race, Silverstein Lecture Series, Center for Genetic Medicine, Northwestern University, May 9, 2005.Google Scholar
Morning, A., “On Distinction,” Social Science Research Council Is Race “Real”?, available at <http://raceandgenomics.ssrc.org/Morning> (last visited May 23, 2008); Gilroy, P., “There Ain't No Black in the Union Jack”: The Cultural Politics of Race and Nation (Chicago: University of Chicago Press, 1991); Omi, M. and Winant, H., Racial Formation in the United States (New York: Routledge, 1986).Google Scholar
Cal. Secretary of State, Official Voter Information Guide 45, § 32(a) (2003); see also Proposition 54 to amend California Constitution, art. I (2003), available at <http://vote2003.ss.ca.gov/voterguide/english.pdf> (last visited May 23, 2008).+(last+visited+May+23,+2008).>Google Scholar
McWhorter, J., Losing the Race: Self-Sabotage in Black America (New York: Free Press, 2000); McWhorter, J., Winning the Race: Beyond the Crisis in Black America (New York: Gotham Books, 2006).Google Scholar
Thomas, C., My Grandfather's Son (New York: Harper, 2007); Gerber, S. D., First Principles: The Jurisprudence of Clarence Thomas (New York: New York University Press, 1999).Google Scholar
Kahn, J. P., Mastroianni, A. C., and Sugarman, J., “Changing Claims about Justice in Research: An Introduction and Overview,” in Kahn, J. P., Mastroianni, A. C., and Sugarman, J., eds., Beyond Consent: Seeking Justice in Research (New York: Oxford University Press, 1998): At 1–10.Google Scholar
Epstein, S., Inclusion: The Politics of Difference in Medical Research (Chicago: University of Chicago Press, 2007).CrossRefGoogle Scholar
U.S. Department of Health and Human Services, Policy Statement on Inclusion of Race and Ethnicity in HHS Data Collection Activities, October 24, 1997, available at <http://aspe.os.dhhs.gov/datacncl/racerpt/appendg.htm> (last visited May 23, 2008).+(last+visited+May+23,+2008).>Google Scholar
U.S. Department of Health and Human Services, “Healthy People 2010: What Are Its goals?” available at <http://www.healthypeople.gov/About/> (last visited May 23, 2008).+(last+visited+May+23,+2008).>Google Scholar
Stevens, J., “Racial Meanings and Scientific Methods: Changing Policies for NIH-Sponsored Publications Reporting Human Variation,” Journal of Health Politics, Policy & Law 28, no. 6 (2003): 10331087; Kahn, J. (Principal Investigator), “Colliding Categories: Haplotypes, Race, and Ethnicity,” Grant # R01 HG002818, National Human Genome Research Institute, “The ELSI Research Program Abstracts and Activities Data Base,” available at <http://www.genome.gov/page.cfm?pageID=17515632> (last visited May 23, 2008).CrossRefGoogle Scholar
Working Group Meeting, “Colliding Categories: Haplotypes, Race & Ethnicity,” University of Minnesota, Minneapolis, MN, April 26–27, 2004, funded by National Genome Research Institute, Grant # 1R01HG02818–01.Google Scholar
NAACP, “NAACP and NitroMed Announce Partnership to Narrow Disparities in Cardiovascular Healthcare,” December 14, 2005, available at <http://findarticles.com/p/articles/mi_m0EIN/is_2005_Dec_14/ai_n15934865> (last visited May 23, 2008).+(last+visited+May+23,+2008).>Google Scholar
Devine, D., “NAACP Goes to the Grassroots for BiDil,” Bay State Banner, October 5, 2006.Google Scholar
See NAACP, supra note 25.Google Scholar
Bowser, R., “Racial Bias in Medical Treatment,” Dickinson Law Review 105, no. 3 (2001): 365382.Google Scholar
See Reverby, supra note 7.Google Scholar
Quoted by Reverby, id.Google Scholar
Ferdinand, K. C., “Fixed-Dose Isosorbide Dinitrate-Hydralazine: Race-Based Cardiovascular Medicine Benefit or Mirage?” Journal of Law, Medicine & Ethics 36, no. 3 (2008): 458463.CrossRefGoogle Scholar
Sammons, L., “Racial Profiling: Not Always a Bad Thing,” Chicago Defender, February 9, 2006.Google Scholar
Puckrein, G., “BiDil: From Another Vantage Point,” Health Affairs 25, no. 5 (2006): w368w374.CrossRefGoogle Scholar
Appiah, A., “Racism,” in Goldberg, D. T., ed., Anatomy of Racism (Minneapolis: University of Minnesota Press, 2000): 316; Gilroy, P., Against Race: Imagining Political Culture Beyond the Color Line (Cambridge: Harvard University Press, 2000).Google Scholar
Gilroy, P., Postcolonial Melancholia (New York: Columbia University Press, 2005): At 39 (emphasis added).Google Scholar
Id., at 22.Google Scholar
See Gilroy, , supra note 34, at 20, 37.Google Scholar
Id., at 37.Google Scholar
Fullwiley, D., “The Molecularization of Race: Institutionalizing Human Difference in Pharmacogenetics Practice,” Science as Culture 16, no. 1 (2007): 130.CrossRefGoogle Scholar
Hammonds, E. M., “Straw Men and Their Followers: The Return of Biological Race,” Social Science Research Council Is “Race” Real?, available at <http://raceandgenomics.ssrc.org/Hammonds/> (last visited May 27, 2008).+(last+visited+May+27,+2008).>Google Scholar
Duster, T., “The Lessons of History: How Race and Ethnicity Have Figured in Biomedical Research,” Journal of Law, Medicine & Ethics 34, no. 3 (2006): 487498; Duster, T., “Race and Reification in Science,” Science 307, no. 5712 (2005): 1050–1051; Graves, J. L. Jr., The Emperor's New Clothes: Biological Theories of Race at the Millennium (New Brunswick: Rutgers University Press, 2003).CrossRefGoogle Scholar
Duster, T., Backdoor to Eugenics (New York: Routledge, 1990); Roberts, D. E., “Privatization and Punishment in the New Age of Reprogenetics,” Emory Law Journal 54, no. 3 (2005): 1343–1360.Google Scholar
Id. (Duster), at 114–131.Google Scholar
Harvey, D., A Brief History of Neoliberalism (New York: Oxford University Press, 2005).CrossRefGoogle Scholar
Giroux, H. A., “Reading Hurricane Katrina: Race, Class and the Biopolitics of Disposability,” College Literature 33, no. 3 (2006): 171196.CrossRefGoogle Scholar
Smith, A. M., Welfare and Sexual Regulation (New York: Cambridge University Press, 2007); Mink, G., “Violating Women: Rights Abuses in the Welfare Police State,” Annals of the American Academy of Political & Social Sciences 577, no. 2 (2001): 79–93.CrossRefGoogle Scholar
Davis, A. Y., Are Prisons Obsolete? (New York: Seven Stories Press, 2003); The Sentencing Project, New Incarceration Figures: Growth in Population Continues, 2005, available at <http://www.sentencingproject.org/pdfs/1044.pdf> (last visited May 27, 2008); Garland, D., “Introduction: The Meaning of Mass Imprisonment,” in Garland, D., ed., Mass Imprisonment: Social Causes and Consequences (Thousand Oaks, CA: Sage Publications, 2001).Google Scholar
Roberts, D., Shattered Bonds: The Color of Child Welfare (New York: Basic Civitas Books, 2002).Google Scholar
Roberts, D., Killing the Black Body: Race, Reproduction, and the Meaning of Liberty (New York: Pantheon, 1997); see Roberts, , supra note 42.Google Scholar
Washington, H. A., Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present (New York: Doubleday, 2006); Roberts, D. E., “The Nature of Blacks’ Skepticism about Genetic Testing,” Seton Hall Law Review 27, no. 3 (1997): 971–979; see, generally, Flack, H. E. and Pellegrino, E. D., African-American Perspectives on Biomedical Ethics (Washington, D.C.: Georgetown University Press, 1992).Google Scholar
Crenshaw, K. W., Gotanda, N., Peller, G., and Kendall, T., Critical Race Theory: The Key Writings that Formed the Movement (New York: The New Press, 1995); Harris, C. I., “Whiteness as Property,” Harvard Law Review 106, no. 8 (1993): 1707–1791.Google Scholar
Haney Lopez, I., White by Law: The Legal Construction of Race (New York: New York University Press, 1996).Google Scholar