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Ethical Considerations in the Conduct of Unregulated mHealth Research: Expert Perspectives
Published online by Cambridge University Press: 01 January 2021
Abstract
To assist in resolving ethical questions surrounding unregulated mHealth research, we conducted in-depth qualitative interviews with experts from four key stakeholder groups: patient/research advocates, researchers, regulatory professionals, and mobile app/device developers. They discussed challenges and potential solutions in the context of two hypothetical scenarios involving unregulated mHealth research, including notifications/permissions for research use of mHealth data, data access procedures, new primary data collection, offering individual research results, and data sharing and dissemination.
- Type
- Symposium Articles
- Information
- Journal of Law, Medicine & Ethics , Volume 48 , Issue S1: Unregulated Health Research Using Mobile Devices , Spring 2020 , pp. 9 - 36
- Copyright
- Copyright © American Society of Law, Medicine and Ethics 2020
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