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End-of-Life Decision Making across Cultures

Published online by Cambridge University Press:  01 January 2021

Robert H. Blank
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Extract

As is evident from the other articles in this special issue, end-of-life treatment has engendered a vigorous dialogue in the United States over the past few decades because decision making at the end of life raises broad and difficult ethical issues that touch on health professionals, patients, and their families. This concern is exacerbated by the high cost related to the end of life in the U.S. Moreover, in light of demographic patterns, progressively scarce health care resources, and an expanding array of life-saving technologies, decisions at the end of life are becoming problematic matters of public and, thus, scholarly concern in most countries. Issues at the end of life are central not only to bioethics but also raise important ancillary policy dimensions.

Type
Symposium
Information
Journal of Law, Medicine & Ethics , Volume 39 , Issue 2 , Summer 2011 , pp. 201 - 214
Copyright
Copyright © American Society of Law, Medicine and Ethics 2011

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References

Olick, R. S., Taking Advance Directives Seriously: Prospective Autonomy and Decisions Near the End of Life (Washington, D.C.: Georgetown University Press, 2001); Gastmans, C. and De Lepeleire, J., “Living to the Bitter End? A Personalist Approach to Euthanasia in Persons with Severe Dementia,” Bioethics 24, no. 2 (2010): 78–86; Kellehear, A., “Dying as a Social Relationship: A Sociological Review of Debates on the Determination of Death,” Social Science & Medicine 66 (2008): 1533–1544.Google Scholar
Sass, H. M., Veatch, R. M., and Kimura, R., eds., Advance Directives and Surrogate Decision Making in Health Care: United States, Germany, and Japan (Baltimore: Johns Hopkins University Press, 1998); Schicktanz, S., Raz, A., and Shalev, C., “The Cultural Context of End-of-Life Ethics: A Comparison of Germany and Israel,” Cambridge Quarterly of Healthcare Ethics 19 (2010): 381–94; Sprung, C. L., Maia, P., and Bulow, H.-H. et al., “The Importance of Religious Affiliation and Culture on End-of-Life Decisions in European Intensive Care Units,” Intensive Care Medicine 33, no. 10 (2007): 1732–1739.Google Scholar
American Academy of Family Physicians, “Definition of Hospice,” 2003, available at <www.aafp.org/X6864.xml>..>Google Scholar
Dunn, H., Hard Choices for Loving People, 5th ed. (Lansdowne, VA: A&A Publishers, 2009).Google Scholar
Beširevic, V., “End-of-Life Care in the 21st Century: Advance Directives in Universal Rights Discourse,” Bioethics 24, no. 3 (2010): 105–111; Matthijs, P. S., Wijmen, V., and Rurup, M. L. et al., “Advance Directives in The Netherlands: An Empirical Contribution to the Exploration of a Cross-Cultural Perspective on Advance Directives,” Bioethics 24, no. 3 (2010): 118–126.CrossRefGoogle Scholar
International Bioethics Committee (IBC), Report of the IBC on the Possibility of Elaborating a Universal Instrument on Bioethics, Paris, 2003.Google Scholar
Bennett, C. J., “What Is Policy Convergence and What Causes It?” British Journal of Political Science 21, no. 2 (1991): 215–233.CrossRefGoogle Scholar
Chernichovsky, D., “Health System Reforms in Industrialized Democracies: An Emerging Paradigm,” Milbank Quarterly 73, no.3 (1995): 339–356; Field, M. G., “Comparative Health Systems and the Convergence Hypothesis: The Dialectics of Universalism and Particularism,” in Powell, F. D. and Wessen, A. F., eds., Health Care Systems in Transition: An International Perspective (Thousand Oaks, CA: Sage, 1999).CrossRefGoogle Scholar
Harrison, S., Moran, M., and Wood, B., “Policy Emergence and Policy Convergence: The Case of ‘Scientific-Bureaucratic Medicine’ in the United States and United Kingdom,” British Journal of Politics and International Relations 4, no. 1 (2002): 1–24.CrossRefGoogle Scholar
Pollitt, C., “Clarifying Convergence: Striking Similarities and Durable Differences in Public Management Reform,” Public Management Review 4, no. 1 (2002): 471–492.Google Scholar
Blank, R. H. and Burau, V., Comparative Health Policy, 3rd ed. (Basingstoke: Palgrave, 2010).Google Scholar
Macer, D., ed., Eubios Journal of Asian and International Bioethics, published by Eubios Ethics Institute, Christchurch, New Zealand.Google Scholar
Cox, C. L., Cole, E., Reynolds, T., and Wandrag, M. et al., “Implications of Cultural Diversity in Do Not Attempt Resuscitation (DNAR) Decisions,” Journal of Multicultural Nursing & Health 12, no. 1 (2006): 20–28.Google Scholar
Justice, C., “The Natural Death While Not Eating: A Type of Palliative Care in Banaras, India,” Journal of Palliative Care 11, no. 1 (1995): 38–42.CrossRefGoogle Scholar
Chattopadhyay, S. and Simon, A., “East Meets West: Cross-Cultural Perspective in End-of-Life Decision Making from Indian and German Viewpoints,” Medicine, Health Care and Philosophy 11 (2008): 165–174, at 165.CrossRefGoogle Scholar
Id.Google Scholar
Croasdale, M., “Study Examines Death across Cultures,” American Medical News 48, no. 31 (2005): 13.Google Scholar
See Schicktanz, et al., supra note 2.Google Scholar
Matthijs, P. S., Wijmen, V., Rurup, M. L., Roeline, H., Pasman, W., Kaspers, P. J., and Onwuteaka-Philipsen, B. D., “Advance Directives in The Netherlands: An Empirical Contribution to the Exploration of a Cross-Cultural Perspective on Advance Directives,” Bioethics 24, no. 3 (2010): 118–126.Google Scholar
Searight, H. R. and Gafford, J., “Cultural Diversity at the End of Life: Issues and Guidelines for Family Physicians,” American Family Physician 71, no. 3 (2005): 515–522, at 515.Google Scholar
Kelley, A. S., Wenger, N. S., and Sarkisian, C. A., “Opiniones: End-of-Life Care Preferences and Planning of Older Latinos,” Journal of the American Geriatrics Society 58, no. 6 (2010): 1109–1116.CrossRefGoogle Scholar
Kreling, B., Selsky, C., Perret-Gentil, M., Huerta, E. E., and Mandelblatt, J. S., “The Worst Thing about Hospice Is That They Talk About Death: Contrasting Hospice Decisions and Experience among Immigrant Central and South American Latinos with US-Born White, Non-Latino Cancer Caregivers,” Palliative Medicine 24, no. 4 (2010): 427–434. Also see, Heyman, J. C. and Gutheil, I. A., “Older Latinos' Attitudes toward and Comfort with End-of-Life Planning,” Health & Social Work 35, no. 1 (2010): 17–25.CrossRefGoogle Scholar
See Searight, and Gafford, , supra note 20, at 517.Google Scholar
Id., at 518.Google Scholar
Hu, W. Y., Chiu, T. Y., Chuang, R. B., and Chen, C. Y., “Solving Family-Related Barriers to Truthfulness in Cases of Terminal Cancer in Taiwan: A Professional Perspective,” Cancer Nursing 25, no. 6 (2002): 486–492.CrossRefGoogle Scholar
Tang, S. T., Liu, T. W., Lai, M. S., Liu, L. N., and Chen, C. H., “Concordance of Preferences for End-of-Life Care between Terminally Ill Cancer Patients and Their Family Caregivers in Taiwan,” Journal of Pain Symptom Management 30 (2005): 510–518.CrossRefGoogle Scholar
Ganz, F. D., Benbenishty, J., Hersch, M., Fischer, A., Gurman, G., and Sprung, C. L., “The Impact of Regional Culture on Intensive Care End of Life Decision Making: An Israeli Perspective from The ETHICUS Study,” Journal of Medical Ethics 32 (2006): 196–199. See also Cohen, S., Sprung, C., Sjokvist, P., and Lippert, A. et al., ‘Communication of End-of-Life Decisions in European Intensive Care Units,” Intensive Care Medicine 31, no. 9 (2005): 1215–1221.CrossRefGoogle Scholar
Sprung, C. L., Maia, P., Bulow, H-H., and Ricou, B. et al., “The Importance of Religious Affiliation and Culture on End-of-Life Decisions in European Intensive Care Units,” Intensive Care Medicine 33, no. 10 (2007): 1732–1739.CrossRefGoogle Scholar
Berger, J. T., “Culture and Ethnicity in Clinical Care,” Archives of Internal Medicine 158 (1998): 2085–2090; Thomas, N. D., “The Importance of Culture throughout all of Life and Beyond,” Holistic Nursing Practice 15 (2001): 40–46; Seale, C., “Characteristics of End-of-Life Decisions: Survey of UK Medical Practitioners,” Palliative Medicine 20 (2006): 653–659; Wiedermann, C. J. and Druml, C., “End-of-life Decisions in Austria's Intensive Care Units,” Intensive Care Medicine 34, no. 6 (2008): 1142–1144; Yaguchi, A., Truog, R. D., Curtiss, J. R., Luce, J. M., Levy, M. M., Melot, C., and Vincent, V. L., “International Differences in End-of-Life Attitudes in the Intensive Care Unit,” Archives of Internal Medicine 165 (2005): 1970–1975.CrossRefGoogle Scholar
See Searight, and Gafford, , supra note 20.Google Scholar
See Berger, , supra note 29; Bertolini, G., Boffelli, S., and Malacarne, P. et al., “End-of-Life Decision-Making and Quality of ICU Performance: An Observational Study in 84 Italian Units,” Intensive Care Medicine 36, no. 9 (2010): 1495–1504; Servillo, G. and Striano, P., “End-of-Life: Still an Italian Dilemma,” Intensive Care Medicine 34, no. 7 (2008): 1333–1335.Google Scholar
Shrank, W. H., Kutner, J. S., Richardson, T. et al., “Focus Group Findings about the Influences of Communication Preferences in End-of-Life Care,” Journal of General Internal Medicine 20, no. 8 (2005): 703–709.CrossRefGoogle Scholar
Turner, L., “Medical Ethics in a Multicultural Society,” Journal of the Royal Society of Medicine 94 (2001): 592–594; Turner, L., “Bioethics in Pluralistic Societies,” Medicine, Health Care and Philosophy 7 (2004): 201–208.CrossRefGoogle Scholar
Blank, R. H. and Merrick, J., eds., End-of-Life Decision Making: A Cross-National Study (Cambridge: MIT Press, 2005). Although the data from this study are six years old, where possible I contacted the authors of the chapters (and searched the literature for other evidence) to ascertain if there have been any major changes in their countries that would alter their original conclusions. With only a few exceptions, which are raised in the discussion below, the description of these countries remains accurate.Google Scholar
Alora, A. T. and Lumitao, J. M., Beyond Western Bioethics: Voices from the Developing World (Washington, D.C.: Georgetown University Press, 2001).Google Scholar
Pessini, L., “Ethical Questions Related to End of Life Decisions: The Brazilian Reality,” in Blank, and Merrick, , eds., supra note 34, at 13–32.Google Scholar
Wasunna, A., “End of Life Decision Making in Kenya,” in Blank, and Merrick, , eds., supra note 34, at 131–46.Google Scholar
Li, Y., Doering, O., Fang, L., Li, F., and Baoqi, S., “End of Life Decision Making in China: A View from Beijing,” in Blank, and Merrick, , eds., supra note 34, at 33–60.Google Scholar
Amidror, T. and Leavitt, F. J., “End of Life Decision Making in Israel,” in Blank, and Merrick, , eds., supra note 34, at 97–108.Google Scholar
Ashcroft, R., “Death Policy in the United Kingdom,” in Blank, and Merrick, , eds., supra note 34, at 197–218.Google Scholar
Aksoy, S., “End of Life Decision Making in Turkey,” in Blank, and Merrick, , eds., supra note 34, at 183–96.Google Scholar
See Wasunna, , supra note 37.Google Scholar
Pandya, S. K., “End of Life Decision Making in India,” in Blank, and Merrick, , eds., supra note 34, at 79–96; Mani, R. K., “End-of-Life Care in India,” Intensive Care Medicine 32, no. 4 (2006): 1066–1068.Google Scholar
See Li, et al., supra note 38.Google Scholar
Tang, S. T., “Meanings of Dying at Home for Chinese Patients in Taiwan with Terminal Cancer: A Literature Review,” Cancer Nursing 23 (2000): 367–370; Chiu, T.-Y., “End of Life Decision Making in Taiwan,” in Blank, and Merrick, , eds., supra note 34, at 169–82.CrossRefGoogle Scholar
Simon, A., “End of Life Decision Making in Germany,” in Blank, and Merrick, , eds., supra note 34, at 61–78.Google Scholar
Macer, D., “End of Life Care in Japan,” in Blank, and Merrick, , eds., supra note 34, at 109–130.Google Scholar
Dartmouth Institute for Health Policy and Clinical Practice, Quality of End-of-Life Cancer Care for Medicare Beneficiaries (Hanover, NH: Center for Health Policy Research, 2010).Google Scholar
See Ashcroft, , supra note 40.Google Scholar
See Pessini, , supra note 36.Google Scholar
See Chui, , supra note 45.Google Scholar
Glass, A. P., Chen, L. K., Hwang, E., Ono, Y., and Nahapetyan, L., “A Cross-Cultural Comparison of Hospice Development in Japan, South Korea, and Taiwan,” Journal of Cross Cultural Gerontology 25, no. 1 (2010): 1–19.CrossRefGoogle Scholar
See Aksoy, , supra note 41.Google Scholar
See Wasunna, , supra note 37.Google Scholar
See Pandya, , supra note 43.Google Scholar
See Simon, , supra note 46.Google Scholar
ten Have, H., “End of Life Decision Making in Netherlands,” in in Blank, and Merrick, , eds., supra note 34, at 147–68. Also see Vincent, J.-L., “End-of-Life Practice in Belgium and the New Euthanasia Law,” Intensive Care Medicine 32, no. 11 (2006): 1908–1911.Google Scholar
See Macer, , supra note 47.Google Scholar
Merrick, J., “Death and Dying: The American Experience,” in Blank, and Merrick, , eds., supra note 34, at 219–242.Google Scholar
See Chui, , supra note 45.Google Scholar
Huang, C. H., Hu, W. Y., Chiu, T. Y., and Chen, C. Y., “The Practicalities of Terminally Ill Patients Signing Their Own DNR Orders: A Study in Taiwan,” Journal of Medical Ethics 34 (2008): 336–340.CrossRefGoogle Scholar
See Wasunna, , supra note 37.Google Scholar
See Aksoy, , supra note 41.Google Scholar
See Amidror, and Leavitt, , supra note 39.Google Scholar
See Macer, , supra note 47.Google Scholar
See Pessini, , supra note 36.Google Scholar
See Chui, , supra note 45.Google Scholar
See Simon, , supra note 46.Google Scholar
See Ashcroft, , supra note 40.Google Scholar
See Merrick, , supra note 48.Google Scholar
Steinbrook, R., “Physician-Assisted Death: From Oregon to Washington State,” New England Journal of Medicine 359 (2008): 2513–2515.CrossRefGoogle Scholar
See ten Have, , supra note 57.Google Scholar
See Wasunna, , supra note 37.Google Scholar
See Amidor, and Leavitt, , supra note 39.Google Scholar
See Macer, , supra note 47.Google Scholar
See Pessini, , supra note 36.Google Scholar
See Chattopadhyay, and Simon, , supra note 15.Google Scholar
See Blank, R. H., Biomedical Policy (Chicago: Nelson-Hall, 1995): at 163.Google Scholar