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Currents in Contemporary Bioethics

Waiving Informed Consent to Prenatal Screening and Diagnosis? Problems with Paradoxical Negotiation in Surrogacy Contracts

Published online by Cambridge University Press:  01 January 2021

Extract

Recently, an agonizing twist intersecting predictive genetic tests and surrogacy contracts made news headlines in Canada. The intended parents, a couple from British Columbia, instructed the surrogate mother with whom they were working to undergo First Trimester Screening and Chorionic Villi Sampling (CVS), which revealed the fetus likely had Down syndrome. The parents directed the surrogate to terminate the fetus or they would abdicate their parental claim upon birth. This story raised numerous legal and ethical questions relating to the transferability of decision making for prenatal screening, diagnostic tests, and the connected decision of termination when additional interested parties – the intended parents – are involved in the medical decision-making relationship. First, although the surrogate is the patient, what are the implications when the intended parents' wishes influence or even dictate the relationship between her and her obstetrician and genetic counselor? Second, if the intended parents' level of authority reaches explicit demands, may the intended parents ethically and legally require the surrogate to waive her right to informed consent for prenatal screening and diagnosis?

Type
JLME Column
Copyright
Copyright © American Society of Law, Medicine and Ethics 2011

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Footnotes

Mark A. Rothstein serves as the section editor for Currents in Contemporary Bioethics. Professor Rothstein is the Herbert F. Boehl Chair of Law and Medicine and the Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine in Kentucky.

References

Blackwell, T., “Couple Urged Surrogate to Abort Fetus Due to Defect,” National Post, October 6, 2010, available at <http://www.nationalpost.com/related/topics/Couple+urged+surrogate+abort+fetus+defect/3628756/story.html> (last visited December 1, 1010).+(last+visited+December+1,+1010).>Google Scholar
Durland, U. Seethram, K., “Fetal Abnormality and Gestational Surrogacy? Legal Construct or Ethical Dilemma?” Poster Presentation at the Canadian Society of Fertility and Andrology, email from Ursula Smith Durland, Certified Genetic Counselor at the Pacific Centre for Reproductive Medicine (November 10, 2010) (on file with author).Google Scholar
See Blackwell, , supra note 1.Google Scholar
Chachkin, C., “What Potent Blood: Non-Invasive Prenatal Genetic Diagnosis and the Transformation of Modern Prenatal Care,” American Journal of Law & Medicine 33, no. 1 (2007): 953, at 51.CrossRefGoogle Scholar
Id; Suter, S., “The Routinization of Prenatal Testing,” American Journal of Law & Medicine 28, nos. 2–3 (2002): 233270, at 235–236.Google Scholar
See Chachkin, , supra note 4, at 14.Google Scholar
See Suter, , supra note 5, at 256.Google Scholar
Andrews, L., “Prenatal Screening and the Culture of Motherhood,” Hastings Law Journal 47, no. 4 (1996): 9671006 at 967, 985.Google Scholar
See Chachkin, , supra note 4; Suter, , supra note 5.Google Scholar
Lippman, A., “Prenatal Genetic Testing and Screening,” American Journal of Law & Medicine 17, nos. 1–2 (1991): 1550, at 15, 28 Hanneman, A., “A New Routine: Assisting Patients in Responding to Prenatal Diagnosis,” Marquette Law Review 90, no. 2 (2006): 337–353 at 337, 341.Google Scholar
See Suter, , supra note 5, at 248.Google Scholar
Id., at 255.Google Scholar
See Chachkin, , supra note 4, at 46.Google Scholar
See Durland, Seethram, , supra note 2.Google Scholar
See Blackwell, , supra note 1.Google Scholar
See Durland, Seethram, , supra note 2.Google Scholar
See Chachkin, , supra note 4, at 53; Botkin, J., “Defining Health and the Goals of Medicine: Prenatal Diagnosis and the Selection of Children,” Florida State University Law Review 30, no. 2 (2003): 265–293.Google Scholar
See Callaway, E., “Baby's Genome Hidden in Mother's Blood,” Nature News, December 8, 2010.
Rae, S., “Parental Rights and the Definition of Motherhood in Surrogate Motherhood,” Southern California Review of Law & Woman's Studies 3, no. 2 (1994): 219277 at 219, 238–241.Google Scholar
Committee on Ethics, “Surrogate Motherhood,” American College of Obstetricians and Gynecologists Committee Opinion, no. 397, February 2008.Google Scholar
“Genetic Counselors and Their Clients, Code of Ethics,” National Society of Genetic Counselors, available at <http://www.nsgc.org/Advocacy/NSGCCodeofEthics/tabid/155/Default.aspx#Clients> (last visited July 5, 2011).+(last+visited+July+5,+2011).>Google Scholar
Committee on Ethics, “Informed Consent,” American College of Obstetricians and Gynecologists Committee Opinion, no. 439, August 2009.Google Scholar
Id., at 7.Google Scholar
Zehr, J., “Using Gestational Surrogacy and Pre-Implatation Genetic Diagnosis: Are Intended Parents Now Manufacturing the Idyllic Infant?” Loyola Consumer Law Review 20, no. 3 (2008): 294324, at 294, 315; Reilly, D., “Surrogate Pregnancy: A Guide for Canadian Health Care Providers,” Canadian Medical Association Journal 176, no. 4 (2007): 483–485.Google Scholar
See Guichon, J., “The Body, Emotions and Intentions: Challenges of Preconception Arrangements for Health Care Providers,” Canadian Medical Association Journal 176, no. 4 (2007): 479483.CrossRefGoogle Scholar
Andrews, L., “Beyond Doctrinal Boundaries: A Legal Framework for Surrogate Motherhood,” Virginia Law Review Association 81, no. 8 (1995): 23432375, at 2372–2373.CrossRefGoogle Scholar
See Blackwell, , supra note 1.Google Scholar
See Manus, M., “The Proposed Model Surrogate Parenthood Act: A Legislative Response to the Challenges of Reproductive Technology,” University of Michigan Journal of Law Reform 29, no. 3 (1996): 671–773, at 720725.Google Scholar
Fla. Stat. Ann. § 742.15 (2010).Google Scholar
Nev. Rev. Stat. Ann. § 126.045 (2010); N.H. Rev. Stat. Ann. § 168-B:19–25 (2010).Google Scholar
State laws differ as to how parties would transfer their parental claim or whether parents may abdicate their claim to the developing fetus or child upon birth Some states such as California are based on the model of parentage on intention, and some states clarify that the parentage is defined by a post-birth adoption petition by the intended parents, such as in Arkansas. See Cal. Fam. Code § 7620 (2010); Ark. Code Ann. § 9-10-201 (2010).Google Scholar
Utah Code Ann. § 78B-15-808 (2010); Tex. Fam. Code § 160.754 (2010).Google Scholar
750 Ill. Comp. Stat. § Ann. 47/25 (2010).Google Scholar