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Avoiding Family Feuds: Responding to Surrogate Demands for Life-Sustaining Interventions

Published online by Cambridge University Press:  01 January 2021

Extract

The laws and ethical guidelines governing decision making for incompetent patients evolved from controversies in which family members refused life-sustaining interventions. These cases led to a consensus that advance directives to limit interventions should be respected and that a surrogate designated by the patient or specified by statute could refuse interventions, even when other relatives disagreed. Surrogate decision-making statutes and ethical principles about respect for delegated autonomy promote an active role for family members or other surrogates in medical decisions for incompetent patients. Inviting surrogates to participate actively in medical decisions recognizes the importance of the patient's personal community and assures that decisions will reflect the patient's own preferences and values.

The standard approach to decisions for incompetent adults gives advance directives priority over a surrogate's substituted judgment, which in turn has priority over assessments of the patient's best interest. A patient may express advance directives by appointing a proxy, stating specific preferences, or articulating general values. We use case examples to illustrate the limitations of all three types of advance directives.

Type
Article
Copyright
Copyright © American Society of Law, Medicine and Ethics 1999

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References

See, for example, In re Quinlan, 335 A.2d 647 (N.J. 1976); In re Conroy, 486 A.2d 1209 (N.J. 1985); and Cruzan v. Director, Missouri Department of Health, 497 U.S. 261 (1990).Google Scholar
See Lo, B., Resolving Ethical Dilemmas: A Guide for Clinicians (Baltimore: Williams & Wilkins, 1995): at 71–72; President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, Deciding to Forgo Life-Sustaining Treatment: A Report on the Ethical, Medical, and Legal Issues in Treatment Decisions (Washington, D.C.: U.S. Government Printing Office, 1983): at 80–82.Google Scholar
See President's Commission, supra note 2.Google Scholar
See Steinbrook, R. et al., “Preferences of Homosexual Men with AIDS for Life-Sustaining Treatment,” N. Engl. J. Med., 314 (1986): 457–60.CrossRefGoogle Scholar
See Molloy, D. et al., “Decision Making in the Incompetent Elderly: ‘The Daughter from California Syndrome’,” Journal of the American Geriatrics Society, 39 (1991): 396–99.CrossRefGoogle Scholar
See Miles, S.H., “Informed Demand for ‘Non-Beneficial’ Medical Treatment,” N. Engl. J. Med., 325 (1991): 512–15; Paris, J. Crone, R.K., and Reardon, F., “Physicians' Refusal of Requested Treatment: The Case of Baby L,” N. Engl. J. Med., 322 (1990): 1012–14; Curtis, J. et al., “The Use of Medical Futility Rationale in Do-Not-Attempt-Resuscitation Orders,” JAMA, 273 (1995): 124–28; and Prendergast, T.J. and Luce, J.M., “Increasing Incidence of Withholding and Withdrawal of Life Support from the Critically Ill,” American Journal of Respiratory and Critical Care Medicine, 155 (1997): 1520.Google Scholar
See Brody, H., “Medical Futility: A Useful Concept?,” in Zucker, M.B. and Zucker, H.D., eds., Medical Futility and the Evaluation of Life-Sustaining Treatment (Cambridge: Cambridge University Press, 1997): 114.Google Scholar
Pellegrino, E. and Thomasma, D.C., The Virtues in Medical Practice (New York: Oxford University Press, 1993): at 131.Google Scholar
Beauchamp, T.L. and Childress, J.F., Principles of Biomedical Ethics (New York: Oxford University Press, 4th ed., 1994): at 471.Google Scholar
See Miller, F.G. and Brody, H., “Professional Integrity and Physician-Assisted Death,” Hastings Center Report, 25, no. 3 (1995): 817.Google Scholar
See Dubler, N.N., “Mediation and Managed Care,” Journal of the American Geriatrics Society, 46 (1998): 359–64.Google Scholar
See Sehgal, A. et al., “How Strictly Do Dialysis Patients Want Their Advance Directives Followed?,” JAMA, 267 (1992): 5963.CrossRefGoogle Scholar
See Lo, supra note 2, at 130–34.Google Scholar
See Rubenfeld, G. and Crawford, S., “Withdrawing Life Support from Mechanically Ventilated Recipients of Bone Marrow Transplants: A Case for Evidence-Based Guidelines,” Annals of Internal Medicine, 125 (1996): 625–33.CrossRefGoogle Scholar
See Fischer, G.S. et al., “Can Goals of Care be Used to Predict Intervention Preferences in an Advance Directive?,” Archives of Internal Medicine, 157 (1997): 810–07.Google Scholar
See In re Conroy, 486 A.2d 1209 (N.J. 1985).Google Scholar
See Tonelli, M., “Substituted Judgment in Medical Practice: Evidentiary Standards on a Sliding Scale,” Journal of Law, Medicine & Ethics, 25 (1997): 2229.CrossRefGoogle Scholar
See Lo, supra note 2, at 91–92.Google Scholar
See Dworkin, R., Life's Dominion: An Argument about Abortion, Euthanasia, and Individual Freedom (New York: Alfred A. Knopf, 1993): at 328.Google Scholar
See Jecker, N., “The Role of Intimate Others in Medical Decision Making,” Gerontologist, 30 (1990): 6571; Hardwig, J., “Treating the Brain Dead for the Benefit of the Family,” Journal of Clinical Ethics, 2 (1991): 53–56; and Hardwig, J., “What About the Family?,” Hastings Center Report, 20, no. 2 (1990): 510.CrossRefGoogle Scholar
See Schneiderman, L.J. Jecker, N.S., and Jonsen, A.R., “Medical Futility: Its Meaning and Ethical Implications,” Annals of Internal Medicine, 112 (1990): 949–54; and Truog, R.D. Brett, A.S., and Frader, J., “The Problem with Futility,” N. Engl. J. Med., 326 (1992): 1560–64.Google Scholar
See Lo, supra note 2, at 73–81.Google Scholar
See Alpers, A. and Lo, B., “When is CPR Futile?,” JAMA, 273 (1995): 156–58; and Schneiderman, L.J. Jecker, N.S., and Jonsen, A.R., “Medical Futility: Response to Critiques,” Annals of Internal Medicine, 125 (1996): 669–74.Google Scholar
See Curtis, et al., supra note 6.Google Scholar
See Luce, J.M., “Making Decisions about the Forgoing of Life-Sustaining Therapy,” American Journal of Respiratory and Critical Care Medicine, 156 (1997): 1715–18.CrossRefGoogle Scholar
See Halevy, A. Neal, R., and Brody, B., “The Low Frequency of Futility in an Adult Intensive Care Unit Setting,” Archives of Internal Medicine, 156 (1996): 100–04.Google Scholar
See Prendergast, T.J., “Resolving Conflicts Surrounding End-of-Life Care,” New Horizons, 5 (1997): 6271.Google Scholar
See Lo, supra note 2, at 158–61; and Emergency Cardiac Care Committee and Subcommittee, American Heart Association, “Guidelines for Cardiopulmonary Resuscitation and Emergency Cardiac Care VIII: Ethical Considerations in Resuscitation,” JAMA, 268 (1992): 2282–88.Google Scholar
See Lo, supra note 2, at 163.Google Scholar
See Havley, A. and Brody, B.A., “A Multi-Institution Collaborative Policy on Medical Futility,” JAMA, 276 (1996): 571–74; and Murphy, D.J. and Barbour, E., “GUIDe (Guidelines for the Use of Intensive Care in Denver): A Community Effort to Define Futile and Inappropriate Care,” New Horizons, 2 (1994): 326–31.Google Scholar
See Bay Area Network of Ethics Committees (BANEC), “Conflict Resolution Guidelines from the Nonbeneficial Treatment Working Group,” Western Journal of Medicine, 170 (1999): Forthcoming.Google Scholar
See Braithwaite, S. and Thomasma, D., “New Guidelines on Forgoing Life-Sustaining Treatment in Incompetent Patients: An Anti-Cruelty Policy,” Annals of Internal Medicine, 104 (1986): 711–15.CrossRefGoogle Scholar
See “Religious Groups Tackle End-of-Life Issues,” Last Acts: Care and Caring at the End of Life Quarterly Publication, Fall (1998): 12.Google Scholar
See Fischer, et al., supra note 16.Google Scholar
See Prendergast, and Luce, supra note 6; and Smedira, N.G. et al., “Withholding and Withdrawal of Life Support from the Critically Ill,” N. Engl. J. Med., 322 (1990): 309–15.Google Scholar
Dunn, P.M. and Levinson, W., “Discussing Futility with Patients and Families,” Journal of General Internal Medicine, 11 (1996): 689–93.CrossRefGoogle Scholar
See Prendergast, supra note 28.Google Scholar
See Smedira, et al., supra note 36.Google Scholar
See Prendergast, supra note 28.Google Scholar
See Asch, D.A. Hansen-Flaschen, J., and Lanken, P.N., “Decisions to Limit or Not to Continue Life-Sustaining Treatment by Critical Care Physicians in the United States: Conflicts between Physicians' Practices and Patients' Wishes,” American Journal of Respiratory and Critical Care Medicine, 153 (1995): 288–92.CrossRefGoogle Scholar
See Prendergast, supra note 28.Google Scholar
See Caralis, P.V. et al., “The Influence of Ethnicity and Race on Attitudes toward Advance Directives, Life-Prolonging Treatments, and Euthanasia,” Journal of Clinical Ethics, 4 (1993): 155–65; Blackhall, L.J. et al., “Ethnicity and Attitudes toward Patient Autonomy,” JAMA, 274 (1995): 820–25; and Rubin, S.M. et al., “Increasing Completion of the Durable Power of Attorney for Health Care: A Randomized Controlled Trial,” JAMA, 271 (1994): 209–12.Google Scholar
See Smedira, et al., supra note 36; and Prendergast, supra note 28.Google Scholar
See Annas, G.J., “Asking the Courts to Set the Standard of Emergency Care—The Case of Baby K,” N. Engl. J. Med., 330 (1994): 1542–45.Google Scholar