Hostname: page-component-78c5997874-4rdpn Total loading time: 0 Render date: 2024-11-17T15:16:12.578Z Has data issue: false hasContentIssue false
  • English
  • Français

Value of head and neck cancer incidence data on UK cancer registry websites: a comparison

Published online by Cambridge University Press:  26 February 2007

A M Khan  and
A Tomkinson
A M Khan*
Affiliation:
Department of ENT, Royal Gwent Hospital, Newport, UK
A Tomkinson
Affiliation:
Department of ENT, University Hospital of Wales, Cardiff, Wales, UK
*
Address for correspondence: Mr A M Khan, 4 Clos Y Gwadd, Thornhill, Cardiff CF14 9DZ, Wales, UK. Fax: 01633257191 E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

We evaluated the relative usefulness of data on head and neck cancer available on the websites of cancer registries in the United Kingdom. Data were analysed to determine the accuracy and completeness of essential information related to the incidence of head and neck cancer.

We found that 16 per cent (2/11) of the registries had some cancer data but none relating to head and neck cancer patients. Seventy-five per cent (9/12) of the registries had selected data on head and neck cancer, but 33 per cent (3/9) of these pooled the various head and neck cancers into a single group. The remainder of registries offering data [66 per cent (6/9)] had a variety of ways of grouping and presenting the various types of head and neck cancer. The overall value and usefulness of head and neck cancer information on these websites were limited, especially when all the sites were considered together.

The cancer registries collectively possess an extremely important asset of immense value to both the medical profession and, possibly, patients with cancer. The accessibility of this data and the overall experience of those seeking information on this subject could be improved. However, this would require significant thought, collaboration and agreement between each registry, which would involve significant extra investment.

Keywords

Head and Neck NeoplasmsRegistriesData CollectionGreat Britain
Type
Main Articles
Information
The Journal of Laryngology & Otology , Volume 121 , Issue 11 , November 2007 , pp. 1079 - 1082
Copyright
Copyright © JLO (1984) Limited 2007

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

Presented at the Quincentenary Congress of the Royal College of Surgeons of Edinburgh, 1 July 2005, Edinburgh, Scotland, UK.

References

1Northern and Yorkshire Cancer Registry. http://www.nycris.org.uk/ [11 December 2004]Google Scholar
2Thames Cancer Registry. http://www.thames-cancer-reg.org.uk/default.htm [11 December 2004]Google Scholar
3Trent Cancer Registry. http://www.trentcancer.nhs.uk/introduction.html [18 October 2004]Google Scholar
4Welsh Cancer Intelligence and Surveillance Unit. http://www.wales.nhs.uk/sites/home.cfm?OrgID=242 [11 December 2004]Google Scholar
5Northern Ireland Cancer Registry. http://www.lshtm.ac.uk/docdat/records.php?t=records&id=NICR [11 December 2004]Google Scholar
6West Midlands Cancer Intelligence Unit. http://www.wmpho.org.uk/wmciu/ [11 December 2004]Google Scholar
7South and West Cancer Intelligence Service. http://www.theswcis.nhs.uk/ [11 December 2004]Google Scholar
8Scottish Cancer Registry. http://www.lshtm.ac.uk/docdat/records.php?t=records&id=SCR [11 December 2004]Google Scholar
9Merseyside & Cheshire Cancer Registry. http://www.mccr.nhs.uk/welcome.asp [11 December 2004]Google Scholar
10Oxford Cancer Intelligence Unit Cancer Registry. http://www.lshtm.ac.uk/docdat/records.php?t=records_pfv&id=OCIUCR [3 December 2004]Google Scholar
11Eastern Cancer Registration and Information Centre. http://www.ecric.org.uk/ [11 December 2004]Google Scholar
12North Western Cancer Registry. http://www.ukacr.org.uk/Contacts/connwcr.htm [9 September 2004]Google Scholar
13 Cancer Registration: Principles and methods. http://66.102.9.104/search?q=cache:0AQoh6Mi-XIJ:www.gfmer.ch/Medical_education_En/Cameroon/Pdf/CANCER_REGISTRATION.pdf+Cancer+Registration,+principles+and+method++&hl=en&ie=UTF-8 [15 September 2004]Google Scholar
14Australian Institute of Health and Welfare. http://www.aihw.gov.au/cancer/faqs.html#s01 [15 September 2004]Google Scholar
15The Missouri Cancer Registry. http://216.239.59.104/search?q=cache:Qt9R7FzMRPIJ:mcr.umh.edu/downloads/brochure.pdf+The+Missouri+Cancer+Registry+&hl=en&ie=UTF-8 [15 November 2004]Google Scholar
16Reducing risk improving outcome in cancer. http://www.nycris.org.uk/reports/ukacr.pdf [11 December 2004]Google Scholar
17Junghans, TB, Sevin, IF, Ionin, B, Seifried, H. Cancer information resources: digital and online sources. Toxicology 2004;198:177–93CrossRefGoogle ScholarPubMed
18Pal, SK, Pandey, GSK, Kesari, A, Choudhuri, G, Mittal, B. Fighting cancer in the information age: the role of Internet. Indian Journal of Experimental Biology 2003;41:189–200Google ScholarPubMed
19Ross, J, Chapman, C, Murray, C, Stevenson, M, Natin, D, Rogstad, K. How much interest is the Internet to patients? Sex Transm Infect 2000;76:393–4CrossRefGoogle ScholarPubMed
20McColl, I. Dermatology education on the Web. J Telemed Telecare 2003;9(suppl 2):S33–5CrossRefGoogle ScholarPubMed
21Mandikos, MN. The Internet in dentistry – bringing world class education to your home. Ann R Australas Coll Dent Surg 2002;16:58–9Google ScholarPubMed
22Zbar, RI, Otake, LR, Miller, MJ, Persing, JA, Dingman, DL. Web-based medicine as a means to establish centers of surgical excellence in the developing world. Plast Reconstr Surg 2001;108:460–5CrossRefGoogle ScholarPubMed
23Chen, HS, Guo, FR, Lee, RG, Lin, CC, Chen, JH, Chen, CY et al. Recent advances in telemedicine. J Formos Med Assoc 1999;98:767–72Google ScholarPubMed
24Gorriz, C, Gonzalez, FM, Trinidad, A, Garcia, JR, Pinilla, MT, Lopez Cortijo, C et al. Use of the Internet in otorhinolaryngology [in Spanish]. Acta Otorrinolaringol Esp 1997;48:255–9Google ScholarPubMed
25Liang, WY, O'Grady, P. The Internet and medical collaboration using virtual reality. Comput Med Imaging Graph 2003;27:525–34CrossRefGoogle ScholarPubMed
26Bassignani, MJ, Dwyer, SJ 3rd, Ciambotti, JM, Olazagasti, JM, Moran, R, Moynihan, S et al. Review of technology: planning for the development of telesonography. J Digit Imaging 2004;17:18–27CrossRefGoogle ScholarPubMed
27Ziebland, S. The importance of being expert: the quest for cancer information on the Internet. Soc Sci Med 2004;59:1783–93CrossRefGoogle ScholarPubMed
28Bazzoli, F. The allure of the Internet. Health Data Manag 1995;3:24–6, 28, 30–2Google ScholarPubMed
29Chestnutt, IG. Internet-derived patient information on common oral pathologies: is it readable? Primary Dental Care 2004;11:51–4CrossRefGoogle ScholarPubMed