Hostname: page-component-586b7cd67f-l7hp2 Total loading time: 0 Render date: 2024-11-26T17:11:57.305Z Has data issue: false hasContentIssue false
  • English
  • Français

Quality of life measures in otitis media

Published online by Cambridge University Press:  10 April 2013

E J Maile  and
R Youngs
E J Maile*
Affiliation:
Oxford University Hospitals NHS Trust, Oxford University Clinical Academic Graduate School, UK
R Youngs
Affiliation:
Department of Otolaryngology, Gloucestershire Hospitals NHS Foundation Trust, Gloucester, UK
*
Address for correspondence: Dr Edward Maile, Oxford University Clinical Academic Graduate School, Medical Sciences Division, Level 3, John Radcliffe Hospital, Oxford OX3 9DU, UK Fax: +44 (0)1865 750 750 E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Disabling hearing impairment is the world's most common disability. Traditionally, hearing levels measured by pure tone audiometry have been used to define and quantify hearing loss. The effects of disabling hearing loss on patients' quality of life can be profound, and audiometric data alone may not correlate with quality of life measures. Generic measures of quality of life can be used to compare different diseases, and as such are useful in resource allocation and burden of disease studies. Their disadvantage is that they are not disease-specific and can therefore under-estimate the effects of a disease on patients' quality of life. Disease-specific measures are more sensitive. In chronic otitis media, additional factors such as discharge augment the effect of hearing loss alone on quality of life. Many of the quality of life measures developed for chronic otitis media have been used to assess improvement following reconstructive surgery. Quality of life measures have also been used to assess the effect of paediatric otitis media. Quality of life measures also have utility in the developing world, where hearing impairment is a huge burden.

Keywords

Quality of LifeOtitis Media, SuppurativeHearing LossOutcomes Assessment
Type
Review Articles
Information
The Journal of Laryngology & Otology , Volume 127 , Issue 5 , May 2013 , pp. 442 - 447
Copyright
Copyright © JLO (1984) Limited 2013 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1Mackenzie, I, Smith, A, Deafness – the neglected and hidden disability. Ann Trop Med Parasitol 2009;103:565–71CrossRefGoogle ScholarPubMed
2Pascolini, D, Smith, A. Hearing impairment in 2008: a compilation of available epidemiological studies. Int J Audiol 2009;48:473–85CrossRefGoogle ScholarPubMed
3Fagan, JJ. Developing World ENT: a global responsibility. J Laryngol Otol 2012;126:544–7CrossRefGoogle Scholar
4Hogan, A, O'Loughlin, K, David, A, Kendig, H. Hearing loss and paid employment: Australian population survey findings. Int J Audiol 2009;48:117–22CrossRefGoogle ScholarPubMed
5World Health Organization: Global Burden of Disease: 2004 update. http://www.who.int/healthinfo/global_burden_disease/2004_report_update/en/index.html [30 July 2012]Google Scholar
6Rupa, V, Jacob, A, Joseph, A. Chronic suppurative otitis media: prevalence and practices among rural South Indian children. Int J Pediatr Otorhinolaryngol 1999;48:217–21CrossRefGoogle ScholarPubMed
7Youngs, R, Weir, N, Tharu, P, Bohara, RB, Bahadur, D. Diagnostic otoscopy skills of community ear assistants in Western Nepal. J Laryngol Otol 2011;125:27–9CrossRefGoogle ScholarPubMed
8Hallberg, L, Hallberg, U, Kramer, SE. Self-reported hearing difficulties, communication strategies and psychological well-being (quality of life) in patients with acquired hearing impairment. Disabil Rehabil 2008;30:203–12CrossRefGoogle ScholarPubMed
9Bradlyn, AS, Ritchey, AK, Harris, CV, Moore, IM, O'Brien, RT, Parsons, SK et al. Quality of life research in pediatric oncology. Research methods and barriers. Cancer 1996;78:1333–93.0.CO;2-0>CrossRefGoogle ScholarPubMed
10Gill, TM, Feinstein, AR. A critical appraisal of the quality of quality-of-life measurements. J Am Med Assoc 1994;272:619–26CrossRefGoogle ScholarPubMed
11Spieth, LE, Harris, CV. Assessment of health-related quality of life in children and adolescents: an integrative review. J Pediatr Psychol 1996;21:175–93CrossRefGoogle ScholarPubMed
12Richards, JM, Hemstreet, MP. Measures of life quality, role performance, and functional status in asthma research. Am J Respir Crit Care Med 1994;149:S31–9CrossRefGoogle ScholarPubMed
13Furlong, WJ, Feeny, DH, Torrance, GW, Barr, RD. The Health Utilities Index (HUI) system for assessing health-related quality of life in clinical studies. Ann Med 2001;33:375–84CrossRefGoogle ScholarPubMed
14Francis, HW, Chee, N, Yeagle, J, Cheng, A, Niparko, JK. Impact of cochlear implants on the functional health status of older adults. Laryngoscope 2002;112:1482–8CrossRefGoogle ScholarPubMed
15de Wolf, MJF, Hol, MKS, Mylanus, EAM, Sink, AFM, Cremers, CWRJ. Benefit and quality of life after bone-anchored hearing aid fitting in children with unilateral or bilateral hearing impairment. Arch Otolaryngol Head Neck Surg 2011;137:130–8CrossRefGoogle ScholarPubMed
16The EuroQol Group. EuroQol – a new facility for the measurement of health-related quality of life. Health Policy 1990;16:199–208CrossRefGoogle Scholar
17Barton, G, Bankart, J, Davis, A. A comparison of the quality of life of hearing-impaired people as estimated by three different utility measures. Int J Audiol 2005;44:157–64CrossRefGoogle ScholarPubMed
18Joore, MA, Brunenberg, DE, Chenault, MN, Anteunis, LJ. Societal effects of hearing aid fitting among the moderately hearing impaired. Int J Audiol 2003;42:152–60CrossRefGoogle ScholarPubMed
19Hawthorne, G, Richardson, J, Osborne, R. The Assessment of Quality of Life (AQoL) instrument: a psychometric measure of health-related quality of life. Qual Life Res 1999;8:209–24CrossRefGoogle ScholarPubMed
20Hawthorne, G, Richardson, J, Day, NA. A comparison of the Assessment of Quality of Life (AQoL) with four other generic utility instruments. Ann Med 2001;33:358–70CrossRefGoogle ScholarPubMed
21Hawthorne, G, Hogan, A, Giles, E, Stewart, M, Kethel, L, White, K et al. Evaluating the health-related quality of life effects of cochlear implants: a prospective study of an adult cochlear implant program. Int J Audiol 2004;43:183–92CrossRefGoogle ScholarPubMed
22Patrick, DL, Deyo, RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989;27(suppl):S217–32CrossRefGoogle ScholarPubMed
23Ware, JE Jr, Sherbourne, CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992;30:473–83CrossRefGoogle ScholarPubMed
24Dalton, DS, Cruickshanks, KJ, Klein, BE, Klein, R, Wiley, TL, Nondahl, DM. The impact of hearing loss on quality of life in older adults. Gerontologist 2003;43:661–8CrossRefGoogle ScholarPubMed
25Damen, GW, Beynon, AJ, Krabbe, PF, Mulder, JJ, Mylanus, EA. Cochlear implantation and quality of life in postlingually deaf adults: long-term follow-up. Otolaryngol Head Neck Surg 2007;136:597–604CrossRefGoogle ScholarPubMed
26Bess, FH. The role of generic health-related quality of life measures in establishing audiological rehabilitation outcomes. Ear Hear 2000;21(suppl):S74–9CrossRefGoogle ScholarPubMed
27Ware, J Jr, Kosinski, M, Keller, SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996;34:220–33CrossRefGoogle ScholarPubMed
28Brouwer, CN, Schilder, AG, van Stel, HF, Rovers, MM, Veenhoven, RH, Grobbee, DE et al. Reliability and validity of functional health status and health-related quality of life questionnaires in children with recurrent acute otitis media. Qual Life Res 2007;16:1357–73CrossRefGoogle ScholarPubMed
29Rovers, MM, Krabbe, PF, Straatman, H, Ingels, K, van der Wilt, GJ, Zielhuis, GA et al. Randomised controlled trial of the effect of ventilation tubes (grommets) on quality of life at age 1–2 years. Arch Dis Child 2001;84:45–9CrossRefGoogle ScholarPubMed
30Institute of Hearing Research. The Glasgow Health Status Questionnaires Manual. Nottingham: Institute of Hearing Research, 1998Google Scholar
31Robinson, K, Gatehouse, S, Browning, GG. Measuring patient benefit from otorhinolaryngological surgery and therapy. Ann Otol Rhinol Laryngol 1996;105:415–22CrossRefGoogle ScholarPubMed
32Salhab, M, Matai, V, Salam, MA. The impact of functional endoscopic sinus surgery on health status. Rhinology 2004;42:98–102Google ScholarPubMed
33Hawthorne, G, Hogan, A. Measuring disability-specific patient benefit in cochlear implant programs: developing a short form of the Glasgow Health Status Inventory, the Hearing Participation Scale. Int J Audiol 2002;41:535–44CrossRefGoogle Scholar
34Alsarraf, R, Jung, CJ, Perkins, J, Crowley, C, Gates, GA. Otitis media health status evaluation: a pilot study for the investigation of cost-effective outcomes of recurrent acute otitis media treatment. Ann Otol Rhinol Laryngol 1998;107:120–8CrossRefGoogle ScholarPubMed
35Brouwer, CNM, Maille, AR, Rovers, MM, Grobbee, DE, Sanders, EA, Schilder, AG. Health-related quality of life in children with otitis media. Int J Pediatr Otorhinolaryngol 2005;69:1031–41CrossRefGoogle ScholarPubMed
36Rosenfeld, RM, Goldsmith, AJ, Tetlus, L, Balzano, A. Quality of life for children with otitis media. Arch Otolaryngol Head Neck Surg 1997;123:1049–54CrossRefGoogle ScholarPubMed
37Richards, M, Giannoni, C. Quality-of-life outcomes after surgical intervention for otitis media. Arch Otolaryngol Head Neck Surg 2002;128:776–82CrossRefGoogle ScholarPubMed
38Rosenfeld, RM, Bhaya, MH, Bower, CM, Brookhouser, PE, Casselbrant, ML, Chan, KH et al. Impact of tympanostomy tubes on child quality of life. Arch Otolaryngol Head Neck Surg 2000;126:585–92CrossRefGoogle ScholarPubMed
39Korsten-Meijer, AGW, Wit, HP, Albers, FWJ. Evaluation of the relation between audiometric and psychometric measures of hearing after tympanoplasty. Eur Arch Otorhinolaryngol 2006;263:256–62CrossRefGoogle ScholarPubMed
40Timmerman, AA, Meesters, CM, Speyer, R, Anteunis, LJ. Psychometric qualities of questionnaires for the assessment of otitis media impact. Clin Otolaryngol 2007;32:429–39CrossRefGoogle ScholarPubMed
41Haggard, MP, Smith, SC. Impact of otitis media on child quality of life. In: Rosenfeld, RM, Bluestone, CD. Evidence-Based Otitis Media. Hamilton: BC Decker, 1999;375–98Google Scholar
42Gatehouse, S, Noble, W. The Speech, Spatial and Qualities of Hearing Scale (SSQ). Int J Audiol 2004;43:85–99CrossRefGoogle ScholarPubMed
43Noble, W, Gatehouse, S. Interaural asymmetry of hearing loss, Speech, Spatial and Qualities of Hearing Scale (SSQ) disabilities, and handicap. Int J Audiol 2004;43:100–14CrossRefGoogle ScholarPubMed
44Noble, W, Tyler, RS, Dunn, CC, Bhullar, N. Younger- and older-age adults with unilateral and bilateral cochlear implants: speech and spatial hearing self-ratings and performance. Otol Neurotol 2009;30:921–9CrossRefGoogle ScholarPubMed
45Meijer, AG, Wit, HP, TenVergert, EM, Albers, FW, Muller Kobold, JE. Reliability and validity of the (modified) Amsterdam Inventory for Auditory Disability and Handicap. Int J Audiol 2003;42:220–6CrossRefGoogle ScholarPubMed
46Browning, GG. Do patients and surgeons agree? The Gordon Smyth memorial lecture. Clin Otolaryngol 1997;22:485–96CrossRefGoogle Scholar
47Baumann, I, Kurpiers, B, Plinkert, PK, Praetorius, M. Development and validation of the Chronic Otitis Media Outcome Test 15 (COMOT-15). Measurement of health-related quality of life in patients with chronic otitis media [in German]. HNO 2009;57:889–95CrossRefGoogle ScholarPubMed
48Baumann, I, Gerendas, B, Plinkert, P, Praetorius, M. General and disease-specific quality of life in patients with chronic suppurative otitis media – a prospective study. Health Qual Life Outcomes 2011;9:48CrossRefGoogle ScholarPubMed
49Wang, PC, Nadol, JB, Merchant, S, Austin, E, Gliklich, RE. Validation of outcomes survey for adults with chronic suppurative otitis media. Ann Otol Rhinol Laryngol 2000;109:249–54CrossRefGoogle ScholarPubMed
50Nadol, J, Staecker, H, Gliklich, RE. Outcomes assessment for chronic otitis media: the Chronic Ear Survey. Laryngoscope 2000;110:32–5CrossRefGoogle ScholarPubMed
51Stewart, MG, Jenkins, HA, Coker, NJ, Jerger, JF, Loiselle, LH. Development of a new outcomes instrument for conductive hearing loss. Am J Otol 1997;18:413–20Google ScholarPubMed
52Stewart, MG, Coker, NJ, Jenkins, HA, Manolidis, S, Bautista, MH. Outcomes and quality of life in conductive hearing loss. Otolaryngol Head Neck Surg 2000;123:527–32CrossRefGoogle ScholarPubMed
53Cox, RM, Stephens, D, Kramer, SE. Translations of the international outcome inventory for hearing aids (IOI-HA). Int J Audiol 2002;41:3–26CrossRefGoogle ScholarPubMed
54Olusanya, BO. Self-reported outcomes of aural rehabilitation in a developing country. Int J Audiol 2004;43:563–71CrossRefGoogle ScholarPubMed
55Liu, H, Zhang, H, Liu, S, Chen, X, Han, D, Zhang, L. International outcome inventory for hearing aids (IOI-HA): results from the Chinese version. Int J Audiol 2011;50:673–8CrossRefGoogle ScholarPubMed
56Pienaar, E, Stearn, N, Swanepoel, D. Self-reported outcomes of aural rehabilitation for adult hearing aid users in a South African context. S Afr J Commun Disord 2010;57:4–14Google Scholar
57McPherson, B, Wong, ET. Effectiveness of an affordable hearing aid with elderly persons. Disabil Rehabil 2005;27:601–9CrossRefGoogle ScholarPubMed
58Wang, PC, Chu, CC, Liang, SC, Tai, CJ, Gliklich, RE. Validation assessment of the Chinese-version Chronic Ear Survey: a comparison between data from English and Chinese versions. Ann Otol Rhinol Laryngol 2003;112:85–90CrossRefGoogle ScholarPubMed
59Danermark, B, Cieza, A, Gangé, JP, Gimigliano, F, Granberg, S, Hickson, L et al. International classification of functioning, disability, and health core sets for hearing loss: a discussion paper and invitation. Int J Audiol 2010;49:256–62CrossRefGoogle ScholarPubMed