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The ‘patient journey’ of adults with sudden-onset acquired hearing impairment: a pilot study

Published online by Cambridge University Press:  03 January 2012

V K C Manchaiah  and
D Stephens
V K C Manchaiah*
Affiliation:
Centre for Long Term and Chronic Conditions, College of Human and Health Sciences, Swansea University, Swansea, United Kingdom Linnaeus Centre HEAD, The Swedish Institute for Disability Research, Department of Behavioral Science and Learning, Linköping University, Linköping, Sweden
D Stephens
Affiliation:
Department of Psychological Medicine and Neurology, School of Medicine, Cardiff University, Cardiff, United Kingdom
*
Address for correspondence: Dr V K C Manchaiah, Long Term and Chronic Conditions Centre, College of Human and Health Sciences, Swansea University, Room 167, Glyndwr Building, Swansea SA2 8PP, Wales, UK Fax: +44 (0)1792 295487 E-mail: [email protected]
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Abstract

Objective:

A previous study examined the ‘patient journey’ of adults with gradual-onset acquired hearing impairment. This study examined the same for adults with sudden-onset acquired hearing impairment, and assessed differences.

Study design:

Data were collected from 16 audiologists, using the Ida Institute template, and from four adults with sudden-onset acquired hearing impairment, through semi-structured interviews. Data were analysed using thematic analysis and presented using a process mapping model.

Results:

A patient journey template for sudden-onset acquired hearing impairment was developed based on the professionals' and patients' perspectives. The main difference between these two groups' perspectives was seen in the self-evaluation phase: some stages within this phase were recognised by the patients but not by the professionals. The main difference between the current and the previous study was the absence of a pre-awareness phase in the journey described by patients with sudden-onset acquired hearing impairment, compared with that described by patients with gradual-onset acquired hearing impairment.

Conclusion:

Patient journey templates could be useful counselling tools for ear and hearing healthcare specialists. However, such templates should be used only as a baseline; it is important to take a detailed case history to understand each patient's unique experience, including the psychosocial impact of hearing impairment.

Keywords

Hearing ImpairmentNatural HistoryPrognosisRehabilitationPatient journeySudden-onset hearing impairment
Type
Main Articles
Information
The Journal of Laryngology & Otology , Volume 126 , Issue 5 , May 2012 , pp. 475 - 481
Copyright
Copyright © JLO (1984) Limited 2012

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