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Family Break-Down and Stress in Huntington's Chorea

Published online by Cambridge University Press:  31 July 2008

Audrey Tyler ,
P. S. Harper ,
Kathleen Davies  and
R. G. Newcome
Audrey Tyler
Affiliation:
Section of Medical Genetics, Department of Medicine
P. S. Harper
Affiliation:
Section of Medical Genetics, Department of Medicine
Kathleen Davies
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Cardiff
R. G. Newcome
Affiliation:
Department of Medical Statistics, Welsh National School of Medicine, Cardiff
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Summary

The incidence of family breakdown and stress has been examined in an unselected group of 92 South Wales families, each containing a patient suffering from Huntington's chorea, and related to the onset and duration of the disease, age of the patient, and behavioural symptoms shown. The frequency of actual and attempted suicide is analysed and the effects of the disorder on the primary care agent for the patient discussed. Some of the effects on children and the needs of the families for support and practical help are outlined. It is concluded that family support is an essential factor in any programme aimed at the long-term alleviation and prevention of Huntington's chorea.

Type
Research Article
Information
Journal of Biosocial Science , Volume 15 , Issue 2 , April 1983 , pp. 127 - 138
Copyright
Copyright © 1983, Cambridge University Press

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References

Barette, J. & Marsden, C.D. (1979) Attitudes of families to some aspects of Huntington's chorea. J. Psych. Med. 9, 327.CrossRefGoogle ScholarPubMed
Bolt, J.M.W. (1970) Huntington's chorea in the west of Scotland. Br. J. Psychiat. 116, 259.CrossRefGoogle ScholarPubMed
Brothers, C.R.D. (1964) Huntington's chorea in Victoria and Tasmania. J. Neurol. Sci. 1, 405.CrossRefGoogle ScholarPubMed
Caro, A.J. (1977) Huntington's Chorea. A Genetic Problem in East Anglia. PhD thesis, University of East Anglia.Google Scholar
Davenport, C.B. & Muncey, E.B. (1916) Huntington's chorea in relation to heredity and eugenics. Am. J. Insan. 73, 195.Google Scholar
Dewhurst, K. (1970) Personality disorder in Huntington's disease. Psychiat. Clin. 3, 221.Google ScholarPubMed
Dewhurst, K., Oliver, J.E. & McKnight, A.L. (1970) Socio-psychiatric consequences of Huntington's chorea. Br. J. Psychiat. 116, 255.CrossRefGoogle Scholar
Hans, M.B. & Gilmore, T.H. (1968) Social aspects of Huntington's chorea. Br. J. Psychiat. 114, 93.CrossRefGoogle ScholarPubMed
Harper, P.S., Tyler, A., Smith, S. & Jones, P. (1981) Decline in the predicted incidence of Huntington's chorea associated with systematic genetic counselling and family support. Lancet, ii, 411.CrossRefGoogle Scholar
Hayden, M.R., Ehrlich, R., Parker, H. & Ferera, S.J. (1980) Social perspectives in Huntington's chorea. S. Afr. med. J. 58, 201.Google ScholarPubMed
Heathfield, K.W.G. (1969) Huntington's chorea. Investigation into the prevalence of this disease in the area covered by the North East Metropolitan Regional Hospital Board. Brain, 90, 203.Google Scholar
Mattsson, B. (1974) Huntington's chorea in Sweden. Social and clinical data. Acta psychiat.scand. Suppl. 255, 221.CrossRefGoogle Scholar
Oliver, J.E. (1970) Huntington's chorea in Northamptonshire. Br. J. Psychiat. 116, 241.CrossRefGoogle ScholarPubMed
Oliver, J.E. & Dewhurst, K.E. (1969) Six generations of ill-used children in a Huntington's pedigree. Postgrad, med. J. 43, 757.CrossRefGoogle Scholar
Reed, T.E., Chandler, J.H., Hughes, E.M. & Davidson, R.T. (1958) Huntington's disease in Michigan 1. Demography and genetics. Am. J. hum. Genet. 10, 201.Google Scholar
Teltscher, B. & Davies, B. (1972) Medical and social problems of Huntington's disease. Med. J. Aust. 1, 307.CrossRefGoogle ScholarPubMed
Tyler, A., Harper, P.S., Walker, D.A., Davies, K. & Newcombe, R. (1982) The socioeconomic burden of Huntington's chorea in South Wales. J. biosoc. Sci. 14, 379.CrossRefGoogle ScholarPubMed
Walker, D.A., Harper, P.S., Wells, C.G.C., Tyler, A., Davies, K. & Newcombe, R.G. (1981) Huntington&s chorea in South Wales. A genetic and epidemiological study. J. clin. Genet. 19, 213.CrossRefGoogle Scholar
Wallace, D.C. (1972) Huntington's chorea in Queensland. Med. J. Aust. 1, 299.CrossRefGoogle ScholarPubMed
Yale, R. (1981) A genetic gamble. Community Care, 08 20th.Google Scholar