Hostname: page-component-586b7cd67f-vdxz6 Total loading time: 0 Render date: 2024-11-22T17:30:03.900Z Has data issue: false hasContentIssue false
  • English
  • Français

A scoping review of the literature on the involvement of service users in personality disorder services

Published online by Cambridge University Press:  30 September 2014

L. Montgomery  and
M. Donnelly
L. Montgomery
Affiliation:
School of Medicine, Dentistry and Biomedical Sciences, UKCRC Centre of Excellence in Public Health (NI), Institute of Clinical Sciences B, Royal Victoria Hospital, Belfast, UK
M. Donnelly*
Affiliation:
School of Medicine, Dentistry and Biomedical Sciences, UKCRC Centre of Excellence in Public Health (NI), Institute of Clinical Sciences B, Royal Victoria Hospital, Belfast, UK
*
*Address for correspondence: Michael Donnelly, Ph.D., School of Medicine, Dentistry and Biomedical Sciences, UKCRC Centre of Excellence in Public Health (NI), Institute of Clinical Sciences B, Royal Victoria Hospital, Grosvenor Road, Belfast BT12 6BJ, UK. (Email: [email protected])
Get access Rights & Permissions [Opens in a new window]

Abstract

Background

Service user involvement is receiving increasing support from mental health policy makers, service planners and research commissioners. However, we lack a good understanding of the nature and extent to which service users are involved in personality disorder (PD) services and the effects of involvement in these services.

Objectives

To review and appraise published sources; increase understanding about service user involvement in PD services; and highlight knowledge gaps and related issues.

Methods

A scoping review methodology was adopted. Data were ‘charted’ to illustrate the landscape of writings and views and a qualitative analysis synthesized the results in terms of key emergent themes.

Results

Only a small amount of published work was identified with significant gaps in the literature. Effects were reported mostly in terms processes and emotional and practical benefits for service users. Emergent themes were wellness and health, recruitment and support for service users.

Conclusions

This scoping review uncovered a lack of published work despite service user involvement being a key strand of health policy. There is a need for outcomes-focused research regarding service user involvement. Successful user involvement in PD services requires attention to be focused on the context, recruitment, support and ‘wellness’ of service users.

Keywords

Personality disorderservice deliveryuser involvement
Type
Original Research
Information
Irish Journal of Psychological Medicine , Volume 31 , Issue 4 , December 2014 , pp. 233 - 243
Copyright
© College of Psychiatrists of Ireland 2014 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Arksey, H (2003). Scoping the field: services for carers of people with mental health problems. Health and Social Care in the Community 1, 335–344.Google Scholar
Arksey, H, O’Malley, L (2005). Scoping studies: towards a methodological framework. International Journal of Social Research Methodology 8, 19–32.Google Scholar
Arnstein, SR (1969). A ladder of citizen participation. Journal of the American Institute of Planners 35, 216–224.Google Scholar
Balls, M (2010). Innovations in user involvement: the development and evaluation of a preparatory training package for service user representatives. Mental Health and Learning Disabilities Research and Practice 7, 77–91.Google Scholar
Barlow, K, Miller, S, Norton, K (2007). Working with people with personality disorder: utilising service users’ views. The Psychiatrist 31, 85–88.Google Scholar
Castillo, H (2005). Everything is treatable. Mental Health Today, September, 31–33.Google Scholar
Centre for Mental Health (2011). Centre for Mental Health website (http://www.centreformentalhealth.org.uk/). Accessed 8 August 2011.Google Scholar
Centre for Reviews and Dissemination (2009). Systematic Reviews: CRD’s Guidance for Undertaking Reviews in Healthcare. University of York: York, UK.Google Scholar
Cosh, J (2010). Sharing experience. Mental Health Today July, 14–15.Google Scholar
Crawford, MJ (2002). Systematic review of involving patients in the planning and development of health care. British Medical Journal 325, 1263.Google Scholar
Crawford, M, Rutter, D, Price, K, Weaver, T, Josson, M, Tyrer, P, Gibson, S, Gillespie, S, Faulkner, A, Ryrie, I, Dhillon, K, Bateman, A, Fonagy, P, Taylor, B, Moran, P, Beckett, J, Blackwell, H, Burbridge, C, Coldham, T, Gould, D, Imlack, S, Parfoot, S, Sheldon, K, Sweeney, A, Taylor, A (2007). Learning the lessons: a multi-method evaluation of dedicated community-based services for people with personality disorder, Queen’s Printer and Controller of HMSO 2007 (http://www.sdo.nihr.ac.uk/files/project/SDO_FR_08-1404-083_V01.pdf). Accessed 21 September 2011.Google Scholar
Department of Health (1999). National service framework for mental health: modern standards and service models, Department of Health (http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4077209.pdf). Accessed 19 October 2011.Google Scholar
Department of Health (2003a). Personality disorder capabilities framework, National Institute for Mental Health in England (http://www.spn.org.uk/fileadmin/spn/user/*.pdf/Papers/personalitydisorders.pdf). Accessed 22 September 2011.Google Scholar
Department of Health (2003b). Personality disorder: no longer a diagnosis of exclusion, Department of Health (http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/documents/digitalasset/dh_4054230.pdf) Accessed 22 September 2011.Google Scholar
Department of Health (2009). Recognising complexity: commissioning guidance for personality disorder services, Department of Health (http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_101788). Accessed 2 April 2012.Google Scholar
Diamond, B, Parkin, G, Morris, K, Bettinis, J, Bettesworth, C (2003). User involvement: substance or spin? Journal of Mental Health 12, 613–626.Google Scholar
Donnelly, M, Scott, D, McGilloway, S, O’Neill, T, Williams, J, Slade, M (2011). Patient outcomes: what are the best methods for measuring recovery from mental illness and capturing feedback from patients in order to inform service improvement? A report commissioned by the Bamford Implementation Rapid Review Scheme; Reference: COM/4409/10. NI Public Health Agency, Health and Social Care Research and Development Division: Belfast, Northern Ireland.Google Scholar
Emergence (n.d.). Emergence (http://www.emergenceplus.org.uk/). Accessed 12 August 2011.Google Scholar
Faulkner, A, Gillespie, S, Imlack, S, Dhillon, K, Crawford, M (2008). Learning the lessons together. Mental Health Today 24–26.Google Scholar
Gillard, S, Tumer, K, Neffgen, M, Griggs, I, Demetriou, A (2010). Doing research together: bringing down barriers through the ‘coproduction’ of personality disorder research. Mental Health Review Journal 15, 29–35.Google Scholar
Haigh, R, Lovell, K, Lyon, F, Duggan, M (2007). Service user involvement in the National PD Development Programme. Mental Health Review Journal 12, 13–22.Google Scholar
Hanley, B, Bradburn, J, Barnes, M, Evans, C, Goodare, H, Kelson, M, Kent, A, Oliver, S, Thomas, S, Wallcraft, J (2004). Involving the Public in NHS, social care and public health research: briefing notes for researchers. Eastleigh: INVOLVE.Google Scholar
Hogard, E, Ellis, R (2010). An evaluation of a managed clinical network for personality disorder: breaking new ground or top dressing? Journal of Evaluation in Clinical Practice 16, 1147–1156.Google Scholar
Horn, N, Johnstone, L, Brooke, S (2007). Some service user perspectives on the diagnosis of Borderline Personality Disorder. Journal of Mental Health 16, 255–269.Google Scholar
Involve (2011). Involve (http://www.involve.org.uk/). Accessed 8 August 2011.Google Scholar
Jackson, C (2007). Personality plus. Mental Health Today, November, 18–20.Google Scholar
Jones, V, Stafford, C (2007). Exploring the work of service users within the development of therapeutic community-based personality disorder services. Therapeutic Communities 28, 320–328.Google Scholar
Medical Research Council (MRC) (2008). Developing and evaluating complex interventions: new guidance, Medical Research Council (www.mrc.ac.uk/complexinterveentionsguidance). Accessed 14 November 2011.Google Scholar
Moran, P, Fortune, Z, Barret, B, Spence, R, Rose, D, Armstrong, D, Slade, M, Mudd, D, Coid, J, Crawford, M, Tyrer, P (2008). An evaluation of pilot services for people with personality disorder in adult forensic settings, National Coordinating Centre for the Service Delivery and Organisation (NCCSDO) research programme.Google Scholar
National Institute for Health and Clinical Excellence (2009a). Antisocial personality disorder. (http://www.nice.org.uk/nicemedia/live/11765/42993/42993.pdf). Accessed 21 September 2011.Google Scholar
National Institute for Health and Clinical Excellence (2009b). Borderline personality disorder. (http://www.nice.org.uk/nicemedia/live/12125/42900/42900.pdf). Accessed 21 September 2011.Google Scholar
Personality disorder (n.d.). Personality disorder website (http://www.personalitydisorder.org.uk/). Accessed 12 August 2011.Google Scholar
Public Health Agency (2010). Strategy for personal and public involvement in health and social care research (http://www.publichealth.hscni.net/publications/strategy-personal-and-public-involvement-health-and-social-care-research). Accessed 25 September 2011.Google Scholar
Ramon, S, Castillo, H, Morant, N (2001). Experiencing personality disorder: a participative research. International Journal of Social Psychiatry 47, 1–15.Google Scholar
Rawlings, B (2003). Setting up new services: how service users were involved in planning therapeutic community day programmes. Therapeutic Communities 24, 245–257.Google Scholar
Roberts, M (2006). Forgotten voices? OpenMind 141, 16–17.Google Scholar
Rogers, B, Dunne, E (2011). ‘They told me I had this personality disorder … All of a sudden I was wasting their time’ personality disorder and the inpatient experience. Journal of Mental Health 20, 226–233.Google Scholar
Rumril, P, Fitzgerald, S, Merchant, W (2010). Using scoping literature reviews as a means of understanding and interpreting existing literature. Work 35, 399–404.Google Scholar
Simpson, EL, House, AO (2003). User and carer involvement in mental health services: from rhetoric to science. The British Journal of Psychiatry 183, 89–91.Google Scholar
Staley, K (2009). Exploring impact: public involvement in NHS, public health and social care research, Involve (http://www.invo.org.uk/pdfs/Involve_Exploring_Impactfinal28.10.09.pdf). Accessed 9 November 2011.Google Scholar
Strømme, NE, Tinderholdt, MH, Marit, J, Sandy, O, Oxman, AD (2006). Methods of consumer involvement in developing healthcare policy and research, clinical practice guidelines and patient information material. In Methods of Consumer Involvement in Developing Healthcare Policy and Research, Clinical Practice Guidelines and Patient Information Material. Cochrane Database of Systematic Reviews: Reviews 2006 Issue 3 (ed. N. E. Strømme, M. H. Tinderholdt, J. Marit, O. Sandy and A. D. Oxman). John Wiley & Sons Ltd: Chichester, UK.Google Scholar
Sundaram, P (2010). Collaboration in the provision of services for people with personality disorders. Mental Health Review Journal 15, 10–19.Google Scholar
Turner, K, Neffgen, M, Gillard, S (2011). Understanding personality disorders and recovery, Emergence.Google Scholar