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Who is in the transition gap? Transition from CAMHS to AMHS in the Republic of Ireland

Published online by Cambridge University Press:  26 February 2015

F. McNicholas*
Affiliation:
Deparment of Child Psychiatry, University College Dublin, Dublin, Ireland Lucena Clinic, Dublin, Ireland Our Lady’s Hospital for Sick Children, Crumlin, Ireland
M. Adamson
Affiliation:
Deparment of Child Psychiatry, University College Dublin, Dublin, Ireland
N. McNamara
Affiliation:
University of Bedfordshire, Leeds, UK
B. Gavin
Affiliation:
Lucena Clinic, Dublin, Ireland
M. Paul
Affiliation:
University of Warwick, Warwick, UK
T. Ford
Affiliation:
University of Exeter Medical School, Exeter, UK
S. Barry
Affiliation:
Cluain Mhuire Adult Mental Health Service, Dublin, Ireland
B. Dooley
Affiliation:
Deparment of Child Psychiatry, University College Dublin, Dublin, Ireland
I. Coyne
Affiliation:
Trinity College Dublin, Dublin, Ireland
W. Cullen
Affiliation:
Department of General Practice, University of Limerick, Ireland
S. P. Singh
Affiliation:
University of Bedfordshire, Leeds, UK
*
*Address for correspondence: F. McNicholas, Lucena Clinic, 59 Orwell rd, Rathgar, Dublin 6, Ireland. (Email: [email protected])

Abstract

Objective

The ITRACK study explored the process and predictors of transition between Child and Adolescent Mental Health Services (CAMHS) and Adult Mental Health Services (AMHS) in the Republic of Ireland.

Method

Following ethical approval, clinicians in each of Ireland’s four Health Service Executive (HSE) areas were contacted, informed about the study and were invited to participate. Clinicians identified all cases who had reached the transition boundary (i.e. upper age limit for that CAMHS team) between January and December 2010. Data were collected on clinical and socio-demographic details and factors that informed the decision to refer or not refer to the AMHS, and case notes were scrutinised to ascertain the extent of information exchanged between services during transition.

Results

A total of 62 service users were identified as having crossed the transition boundary from nine CAMHS [HSE Dublin Mid-Leinster (n=40, 66%), HSE South (n=18, 30%), HSE West (n=2, 3%), HSE Dublin North (n=1, 2%)]. The most common diagnoses were attention deficit hyperactivity disorder (ADHD; n=19, 32%), mood disorders (n=16, 27%), psychosis (n=6, 10%) and eating disorders (n=5, 8%). Forty-seven (76%) of those identified were perceived by the CAMHS clinician to have an ‘on-going mental health service need’, and of these 15 (32%) were referred, 11 (23%) young people refused and 21 (45%) were not referred, with the majority (12, 57%) continuing with the CAMHS for more than a year beyond the transition boundary. Young people with psychosis were more likely to be referred [χ2 (2, 46)=8.96, p=0.02], and those with ADHD were less likely to be referred [χ2 (2, 45)=8.89, p=0.01]. Being prescribed medication was not associated with referral [χ2 (2, 45)=4.515, p=0.11]. In referred cases (n=15), there was documented evidence of consent in two cases (13.3%), inferred in another four (26.7%) and documented preparation for transition in eight (53.3%). Excellent written communication (100%) was not supported by face-to-face planning meetings (n=2, 13.3%), joint appointments (n=1, 6.7%) or telephone conversations (n=1, 6.7%) between corresponding clinicians.

Conclusions

Despite perceived on-going mental health (MH) service need, many young people are not being referred or are refusing referral to the AMHS, with those with ADHD being the most affected. CAMHS continue to offer on-going care past the transition boundary, which has resource implications. Further qualitative research is warranted to understand, in spite of perceived MH service need, the reason for non-referral by the CAMHS clinicians and refusal by the young person.

Type
Original Research
Copyright
© College of Psychiatrists of Ireland 2015 

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References

Asherson, P, Adamou, M, Bolea, B, Muller, U, Dunn Morua, S, Pitts, M, Thome, J, Young, S (2010). Is ADHD a valid diagnosis in adults? Yes. British Medical Journal 340, 549.Google Scholar
Beirne, M, McNamara, N, O’Keeffe, G, McNicholas, F (2013). Survey examining the views of Adult Psychiatry consultants and senior registrars regarding ADHD. Irish Journal of Psychological Medicine 30, 197203.Google Scholar
Boule, C, McSherry, J (2002). Patients with eating disorders: how well are family physicians managing them? Canadian Family Physician 48, 18071813.Google Scholar
Birmingham, C, Treasure, J (2010). Medical Management of Eating Disorders, 2nd edn. Cambridge University Press: New York.Google Scholar
Currin, L, Waller, G, Schmidt, U (2009). Primary care physicians’ knowledge of and attitudes toward the eating disorders: do they affect clinical actions? International Journal of Eating Disorders 42, 453458.Google Scholar
Davis, M, Butler, M (2002). Service system supports during the transition from adolescence to adulthood: parent perspectives. National Technical Center for State Mental Health Planning (http://www.umassmed.edu/uploadedFiles/cmhsr/Products_and_Publications/reports_papers_manuals/servicesystemsupports.pdf). Accessed 11 July 2014.Google Scholar
Department of Health and Children (2006). A Vision for Change: Report of the Expert Group on Mental Health Policy. Government Publications Office: Dublin.Google Scholar
Department of Health and Children (2011). National Mental Health Programme Plan (http://www.dohc.ie/publications/vision_for_change_6th/Progress%20Reports/National_Mental_Health_Programme_Plan_Nov2011_draft.pdf). Accessed 3 July 2014.Google Scholar
Faraone, SV, Biederman, J (2005). What is the prevalence of adult ADHD? Results of a population screen of 966 adults. Journal of Attention Disorders 9, 384391.Google Scholar
Fitzgerald, M (2001). Does adult attention deficit hyperactivity disorder exist? Journal of Psychiatry and Neurosciences 2, 114116.Google Scholar
Fitzgerald, M, McNicholas, F (2014). Attitudes and practices in the management of ADHD among healthcare professionals who responded to a European survey. Irish Journal of Psychological Medicine 31, 3137.Google Scholar
Ghanizadeh, A, Zarei, N (2010). Are GPs adequately equipped with knowledge for educating and counseling of families with ADHD children? BMC Family Practice 11, 5.Google Scholar
Hagelskamp, C, Lucas, H, Scammell, A (2005). How do GP registrars feel about dealing with mental health issues in the primary care setting? A qualitative investigation. Primary Health Care Research & Development 6, 6071.Google Scholar
Hall, CL, Newell, K, Taylor, J, Sayal, K, Swift, KD, Hollis, C (2013). ‘Mind the gap’ – mapping services for young people with ADHD transitioning from child to adult mental health services. BMC Psychiatry 13, 18.CrossRefGoogle Scholar
Health and Social Care Scrutiny Commission (2013). Mental Health Transition (16–24 Years) (http://www.newham.gov.uk/Documents/Council%20and%20Democracy/ScrutinyMentalHealthIn-depthReview.pdf). Accessed 11 July 2014.Google Scholar
Health Service Executive (HSE) (2011). Child and Adolescent Mental Health Services Report. (http://lenus.ie/hse/handle/10147/200893). Accessed 11 July 2014.Google Scholar
Health Service Executive (HSE) (2013). Fifth Annual Child and Adolescent Mental Health Service Report (http://www.hse.ie/eng/services/publications/Mentalhealth/camhsrpts/CAMHS12,13.pdf). Accessed 26 October 2014.Google Scholar
House of Commons (2000). Health Select Committee Report (http://www.publications.parliament.uk/pa/cm199900/cmselect/cmhealth/cmhealth.htm). Accessed 11 June 2014.Google Scholar
Illback, RJ, Bates, T (2011). Transforming youth mental health services and supports in Ireland. Early intervention in psychiatry 5 (Suppl. 1): 2227.Google Scholar
Illback, RJ, Bates, T, Hodges, C, Galligan, K, Smith, P, Sanders, D III, Dooley, B (2010). Jigsaw: engaging communities in the development and implementation of youth mental health services and supports in the Republic of Ireland. Journal of Mental Health 19, 422435.CrossRefGoogle ScholarPubMed
Jivanjee, P, Kruzich, J (2011). Supports for young people with mental health conditions and their families in the transition years: youth and family voices. Best Practice in Mental Health 7, 115133.Google Scholar
Jivangee, P, Kruzich, J, Gordon, L (2009). The age of uncertainty: parent perspectives on the transitions of young people with mental health difficulties to adulthood. Journal of Child and Family Studies 18, 435446.Google Scholar
Kooij, SJ, Bejerot, S, Blackwell, A, Caci, H, Casas-Brugué, M, Carpentier, PJ, Edvinsson D, Fayyad J, Foeken K, Fitzgerald M, Gaillac V Ginsberg, Krause J, Lensing M, Iris G, Niederhofer H, Nunes-Filipe C, Ohlmeier M, Oswald P, Pallanti S, Pehlivanidis A, Ramos-Quiroga J, Rastam M, Stes S, Asherson P (2010). European consensus statement on diagnosis and treatment of adult ADHD: the European Network Adult ADHD. BMC Psychiatry 10, 67.CrossRefGoogle ScholarPubMed
Lamb, C, Hall, D, Kelvin, R, Van Beinum, M (2008). Working at the CAMHS/Adult Interface: good practice guidance for the provision of psychiatric services to adolescents/young adults. Royal College of Psychiatrists (https://www.rcpsych.ac.uk/pdf/Transition_2008.pdf). Accessed 11 July 2014.Google Scholar
Lamont, E, Harland, J, Atkinson, M, White, R (2009). Provision of Mental Health Services for Care Leavers: Transition to Adult Services. LGA Research Report. NFER: Slough.Google Scholar
Locke, J, Le Grange, D, Agras, WS, Moye, A, Bryson, SW, Jo, B (2010). Randomized clinical trial comparing family-based treatment with adolescent-focused individual therapy for adolescents with anorexia nervosa. Archives of General Psychiatry 67, 10251032.Google Scholar
Maher, C, Nwachukwu, I (2012). The challenge of managing severely ill patients with anorexia nervosa in Ireland. Irish Journal of Psychological Medicine 29, 6971.Google Scholar
Matheson, L, Asherson, P, Wong, ICK, Hodgkins, P, Setyawan, J, Sasane, R, Clifford, S (2013). Adult ADHD patient experiences of impairment, service provision and clinical management in England: a qualitative study. BMC Health Services Research 13, 184.Google Scholar
McCarthy, S, Wilton, L, Murray, M, Hodgkins, P, Asherson, P, Wong, I (2013). Management of adult attention deficit hyperactivity disorder in UK primary care: a survey of general practitioners. Health and Quality of Life Outcomes 11, 22. doi:10.1186/1477-7525-11-22.CrossRefGoogle ScholarPubMed
McNamara, N, McNicholas, F, Ford, T, Paul, M, Gavin, B, Coyne, I, Cullen, W, O’Connor, K, Ramperti, N, Dooley, B, Barry, S, Singh, S (2013). Transition from child and adolescent to adult mental health services in the Republic of Ireland: an investigation of process and operational practice. Early Intervention in Psychiatry 8, 291297. doi: 10.1111/eip.12073.Google Scholar
Moncrieff, J, Timimi, S (2010). Is ADHD a valid diagnosis in adults? No. British Medical Journal 340, 547.CrossRefGoogle ScholarPubMed
Patton, G, Coffey, C, Cappa, C, Currie, D, Riley, L, Gore, F, Degenhardt, L, Richardson, D, Astone, N, Sangowawa, A, Mokdad, A, Ferguson, J (2012). Health of the world’s adolsecents: a synthesis of internationally comparable data. The Lancet 379, 1665 1675.CrossRefGoogle Scholar
Paul, M, Ford, T, Kramer, T, Islam, Z, Harley, K, Singh, S (2013). TRACK: transfers and transitions between child and adolescent and adult mental health services. British Journal of Psychiatry 202 (Suppl. 54): s36s40.Google Scholar
Singh, S, Paul, M, Ford, T, Kramer, T, Weaver, T, McLaren, S, Hovish, K, Islam, Z, Belling, R, White, S (2010). Process, outcome and experience of transition from child to adult mental healthcare: multi-perspective study. British Journal of Psychiatry 197, 305312.Google Scholar
Smith, K, Leon, L (2001). Turned Upside Down: Developing Community-Based Crisis Services for 16–25 Years Olds Experiencing a Mental Health Crisis. Mental Health Foundation: London.Google Scholar
Soanes, C, Timmons, S (2004). Improving transition: a qualitative study examining the attitudes of young people with chronic illness transferring to adult care. Journal of Child Health Care 8, 102112.CrossRefGoogle ScholarPubMed
Swift, KD, Hall, CL, Marimuttu, V, Redstone, L, Sayal, K, Hollis, C (2013). Transition to adult mental health services for young people with attention deficit/hyperactivity disorder (ADHD): a qualitative analysis of their experiences. BMC Psychiatry 13, 111.Google Scholar
Syed, H, Masaud, TM, Nkire, N, Iro, C, Garland, M (2010). Estimating the prevalence of adult ADHD in the psychiatric clinic: a cross-sectional study using the adult ADHD self-report scale (ASRS). Irish Journal of Psychological Medicine 27, 195197.Google Scholar
Tantam, D (2005). Pathways into adult care. Psychiatry 4, 141144.Google Scholar
Taylor, N, Fauset, A, Harpin, V (2010). Young adults with ADHD: an analysis of their service needs on transfer to adult services. Archives of Diseases in Childhood 95, 513517.Google Scholar
Tuchman, LK, Slap, GB, Britto, MT (2008). Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child: Care, Health & Development 34, 557563.Google Scholar
Viner, R (1999). Transition from paediatric to adult care. Bridging the gaps or passing the buck? Archives of Disease in Childhood 81, 271275.CrossRefGoogle ScholarPubMed
Young, S, Murphy, CM, Coghill, D (2011). Avoiding the ‘twilight zone’: recommendations for the transition of services from adolescence to adulthood for young people with ADHD. BMC Psychiatry 11, 174.Google Scholar
Young Minds (2006). A Call to Action: Commissioning Mental Health Services for 16-25 year-olds. Stressed Out and Struggling Project. (http://www.youngminds.org.uk/assets/0000/5391/SOS_YM_Call_to_Action.pdf). Accessed 11 July 2014.Google Scholar