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Young-onset dementia and its difficulties in diagnosis and care

Published online by Cambridge University Press:  15 June 2021

Clarissa Giebel*
Affiliation:
Department of Primary Care and Mental Health, University of Liverpool, Liverpool, UK NIHR ARC NWC, Liverpool, UK

Abstract

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Type
Commentary
Copyright
© International Psychogeriatric Association 2021

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References

Alzheimer’s Disease International (ADI). (2020). From Plan to Impact III: Maintaining Dementia as a Priority in Unprecedented Times. London, England: ADI.Google Scholar
Birks, J. S. and Harvey, R. J. (2018). Donepezil for dementia due to Alzheimer’s disease. Cochrane Library. doi: 10.1002/14651858.CD001190.pub3.Google ScholarPubMed
Black, C. M. et al. (2019). Quantifying the diagnostic pathway for patients with cognitive impairment: real-world data from Australia. International Psychogeriatrics. doi: 10.1017/S1041610219001856.Google ScholarPubMed
Cations, M. et al. (2017). Why aren’t people with young onset dementia and their supporters using formal services? results from the INSPIRED study. PLOS One. doi: 10.1371/journal.pone.0180935.CrossRefGoogle ScholarPubMed
Draper, B. et al. (2016). Time to diagnosis in young-onset dementia and its determinants: the INSPIRED study. International Journal of Geriatrics Psychiatry, 31, 12171224.CrossRefGoogle ScholarPubMed
Ellajosyula, R., Narayanan, J. and Patterson, K. (2020). Striking loss of second language in bilingual patients with semantic dementia. Journal of Neurology, 267, 551560.CrossRefGoogle ScholarPubMed
Fritz, N. E. et al. (2016). Motor performance differentiates individuals with Lewy body dementia, Parkinson’s and Alzheimer’s disease. Gait & Posture, 50, 17.CrossRefGoogle ScholarPubMed
Garre-Olmo, J. et al. (2010). Incidence and subtypes of early-onset dementia in a geographically defined general population. Neurology, 75, 12491255.CrossRefGoogle Scholar
Giebel, C. et al. (2020). Evaluating a young-onset dementia service from two sides of the coin: staff and service user perspectives. BMC Health Services Research. doi: 10.1186/s12913-020-5027-8.CrossRefGoogle ScholarPubMed
Kvello-Alme, M., Brathen, G., White, L. R. and Sando, S. B. (2019). The prevalence and subtypes of young onset dementia in central Norway: a population-based study. Journal of Alzheimer’s Disease, 69, 479487.CrossRefGoogle ScholarPubMed
Kvello-Alme, M., Brathen, G., White, L. R. and Sando, S. B. (2020). Incidence of young onset dementia in central Norway: a population-based study. Journal of Alzheimer’s Disease, 75, 697704.CrossRefGoogle ScholarPubMed
Loi, S. et al. (2020). Time to diagnosis in younger-onset dementia and the impact of a specialist diagnostic service. International Psychogeriatrics. doi: 10.1017/S1041610220001489.CrossRefGoogle ScholarPubMed
Mayrhofer, A. et al. (2018). Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review. Aging & Mental Health, 22, 933941.CrossRefGoogle ScholarPubMed
O’Shea, E., Timmons, S., O’Shea, E. and Irving, K. (2019). Multiple stakeholders’ perspectives on respite service access for people with dementia and their carers. The Gerontologist, 59, e490e500.Google ScholarPubMed
Parker, M., Barlow, S., Hoe, J. and Aitken, L. (2020). Persistent barriers and facilitators to seeking help for a dementia diagnosis: a systematic review of 30 years of the perspectives of carers and people with dementia. International Psychogeriatrics. doi: 10.1017/S1041610219002229.CrossRefGoogle ScholarPubMed
Pettigrew, C. et al. (2020). Attitudes toward advance care planning among persons with dementia and their caregivers. International Psychogeriatrics, 32, 585599.CrossRefGoogle ScholarPubMed
Rabanal, L. I. et al. (2018). Understanding the needs and experiences of people with young onset dementia: a qualitative study. BMJ Open. doi: 10.1136/bmjopen-2017-021166.CrossRefGoogle ScholarPubMed