Hostname: page-component-586b7cd67f-dlnhk Total loading time: 0 Render date: 2024-11-26T05:20:31.145Z Has data issue: false hasContentIssue false

Toward an evidence-based implementation model and checklist for personalized dementia care in the community

Published online by Cambridge University Press:  03 December 2015

L. D. Van Mierlo
Affiliation:
Department of General Practice and Elderly Care Medicine, VU University Medical Centre, EMGO Institute for Health and Care Research, Van der Boechorststraat 7, Amsterdam, The Netherlands
F. J. M. Meiland
Affiliation:
Department of General Practice and Elderly Care Medicine, VU University Medical Centre, EMGO Institute for Health and Care Research, Van der Boechorststraat 7, Amsterdam, The Netherlands Department of Psychiatry, Alzheimer Centre, VU University Medical Centre, EMGO Institute for Health and Care Research, Valeriusplein 9, Amsterdam, The Netherlands
H. P. J. Van Hout
Affiliation:
Department of General Practice and Elderly Care Medicine, VU University Medical Centre, EMGO Institute for Health and Care Research, Van der Boechorststraat 7, Amsterdam, The Netherlands
R. M. Dröes*
Affiliation:
Department of General Practice and Elderly Care Medicine, VU University Medical Centre, EMGO Institute for Health and Care Research, Van der Boechorststraat 7, Amsterdam, The Netherlands Department of Psychiatry, Alzheimer Centre, VU University Medical Centre, EMGO Institute for Health and Care Research, Valeriusplein 9, Amsterdam, The Netherlands
*
Correspondence should be addressed to: Prof. R. M. Dröes, Department of Psychiatry, VU University Medical Centre, GGZ inGeest Dienst Onderzoek en Innovatie, Overschiestraat 57 (Room 5.24), Postbus 74077, 1070 BB Amsterdam, The Netherlands. Phone: +31-20-7885454. E-mail: [email protected].

Abstract

Background:

The aim was to develop an evidence-based model that focuses specifically on factors that enable the provision of personalized care to facilitate and promote the implementation of community-based personalized dementia care interventions. The model is based on our previous research and additional literature.

Methods:

The theoretical model of adaptive implementation was used as a framework to structure our model. Facilitators and barriers considered relevant for personalized care were extracted from our studies and additional literature, and were synthesized into the new evidence-based implementation model and checklist for personalized dementia care in the community.

Results:

Extraction of data led to a composition of an evidence-based model for the implementation of personalized psychosocial care interventions that incorporates core components of personalized care. The model addresses several issues, e.g. how personalized care interventions should be offered and to whom; whether these are able to adapt to personal characteristics and needs of clients and informal caregivers; and whether both organizational management and staff that provide the intervention support personalized care and are able to focus on providing individualized care.

Conclusions:

Our model provides a checklist for researchers, professional caregivers, and policy-makers who wish to develop, evaluate, or implement personalized care interventions.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2015 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Altpeter, M., Gwyther, L. P., Kennedy, S. R., Patterson, T. R. and Derence, K. (2015). From evidence to practice: using the RE-AIM framework to adapt the REACH II caregiver intervention to the community. Dementia (London), 14, 104113.CrossRefGoogle ScholarPubMed
Alzheimer's Disease UK. (2011). Getting Personal. Policy report. Available at: http://www.alzheimers.org.uk/site/scripts/download.php?fileID=1281; last accessed 22 April 2014.Google Scholar
Auer, S. R., Span, E. and Reisberg, B. (2015). Dementia service centres in Austria: a comprehensive support and early detection model for persons with dementia and their caregivers – theoretical foundations and model description. Dementia (London), 14, 513527.Google Scholar
Bartholomew, L. K., Parcel, G. S., Kok, G. and Gottlieb, N. H. (2001). Intervention Mapping; Designing Theory- and Evidence-Based Health Promotion Programs. Mountain View, CA: Mayfield.Google Scholar
Boersma, P., Van Weert, J., Lakerveld, J. and Dröes, R. M. (2015). The art of successful implementation of psychosocial interventions in residential dementia care: a systematic review of the literature based on the RE-AIM framework. International Psychogeriatrics, 27, 1935.CrossRefGoogle Scholar
Brooker, D. J. and Surr, C. (2006). Dementia Care Mapping (DCM): initial validation of DCM 8 in UK field trials. International Journal of Geriatric Psychiatry, 2, 10181025.Google Scholar
Clissett, P., Porock, D., Harwood, R. H. and Gladman, J. R. (2013). Challenges of achieving person-centered care in acute hospitals: a qualitative study of people with dementia and their families. International Journal of Nursing Studies, 50, 14951503.CrossRefGoogle ScholarPubMed
Coon, D. W., Thompson, L., Steffen, A., Sorocco, K. and Gallagher-Thompson, D. (2003). Anger and depression management: psycho-educational skill training interventions for women caregivers of a relative with dementia. Gerontologist, 43, 678689.Google Scholar
Dröes, R. M. et al. (2003). Implementatie model ontmoetingscentra; een onderzoek naar de voorwaarden voor succesvolle landelijke implementatie van ontmoetingscentra voor mensen met dementie en hun verzorgers. Eindrapport. (Implementation Meeting Centres Model; a Study into the Conditions of Successful National Implementation of Meeting Centres for People with Dementia and Their Carers. Final report, Department of Psychiatry, VU Medical Center, Amsterdam, the Netherlands).Google Scholar
Dröes, R. M., Meiland, F. J., Schmitz, M. J. and van Tilburg, W. (2006). Effect of the meeting centres support program on informal carers of people with dementia: results from a multi-centre study. Aging & Mental Health, 10, 112124.CrossRefGoogle ScholarPubMed
Ducharme, F., Lebel, P., Lachance, L. and Trudeau, D. (2006). Implementation and effects of an individual stress management intervention for family caregivers of an elderly relative living at home: a mixed research design. Research in Nursing & Health, 29, 427441.Google Scholar
Fleuren, M. A. H., Paulussen, T. G. W. M., Van Dommelen, P. and Van Buuren, S. (2012). Ontwikkeling Meetinstrument voor Determinanten van Innovaties (MIDI) (Development of a Measuring Instrument of Determinants of Innovations (MIDI)). Report TNO 2012. Available at: https://www.tno.nl/downloads/2012%20R%2010625%20MIDI%20eindrapport.pdf; last accessed 28 February 2014.Google Scholar
Fossey, J., Masson, S., Stafford, J., Lawrence, V., Corbett, A. and Ballard, C. (2014). The disconnect between evidence and practice: a systematic review of person-centred interventions and training manuals for care home staff working with people with dementia. International Journal of Geriatric Psychiatry, 29, 797807.Google Scholar
Gaglio, B., Shoup, J. A. and Glasgow, R. E. (2013). The RE-AIM framework: a systematic review of use over time. American Journal of Public Health, 103, 3846.Google Scholar
Gitlin, L. N., Jacobs, M. and Earland, T. V. (2010). Translation of a dementia caregiver intervention for delivery in homecare as a reimbursable medicare service: outcomes and lessons learned. Gerontologist, 50, 847854.Google Scholar
Glasgow, R. E, Vogt, T. M. and Boles, S. M. (1999). Evaluating the public health impact of health promotion interventions: the RE-AIM framework. American Journal of Public Health, 89, 13221327.Google Scholar
Glasgow, R. E., McKay, H. G., Piette, J. D. and Reynolds, K. D. (2001). The RE-AIM framework for evaluating interventions: what can it tell us about approaches to chronic illness management?. Patient Education and Counseling, 44, 119127.Google Scholar
Grol, R., Wensing, M. and Eccles, M (Eds). (2005). Improving Patient Care; the Implementation of Change in Clinical Practice. Oxford, UK: Elsevier.Google Scholar
Hepburn, K. W., Tornatore, J., Center, B. and Ostwald, S. W. (2001). Dementia family caregiver training: affecting beliefs about caregiving and caregiver outcomes. Journal of the American Geriatrics Society, 49, 450457.Google Scholar
Hill, H. (2004). Talking the talk but not walking the walk: barriers to person-centred care in dementia. Thesis, La Trobe University.Google Scholar
Knapp, M., Iemmi, V. and Romeo, R. (2014). Dementia care costs and outcomes: a systematic review. International Journal of Geriatric Psychiatry, 28, 551561.CrossRefGoogle Scholar
Kurucz, S. (2010). Implementing person-centred care strategies for those with dementia in residential care: an integrative review of the literature. Master's thesis, University of Victoria, Toronto, Canada. Available at: https://dspace.library.uvic.ca/bitstream/handle/1828/4059/Kurucz_Susan_MN_2010.pdf?sequence=1&isAllowed=y; last accessed 26 February 2014.Google Scholar
Lauriks, D., Osté, J. P., Hertogh, C. M. P. M. and Dröes, R. M. (2008). Meer levenskwaliteit met domotica: effectonderzoek naar de toepassing van domotica in kleinschalige groepswoningen voor mensen met dementie. Onderzoeksrapport. (Better Quality of Life with Domotics: Effect Study of the Application of Domotics in Small-Scale Living Arrangements for People with Dementia. Research report, VU University Medical Center, Amsterdam, the Netherlands).Google Scholar
Mahoney, D. F., Tarlow, B. J. and Jones, R. N. (2003). Effects of an automated telephone support system on caregiver burden and anxiety: findings from the REACH for TLC intervention study. Gerontologist, 43, 556567.Google Scholar
Mahoney, E. K., Trudeau, S. A., Penyack, S. E. and MacLeod, C. E. (2006). Challenges to intervention implementation: lessons learned in the bathing persons with Alzheimer's disease at home study. Nursing Research and Practice, 55, S10S16.Google ScholarPubMed
Minkman, M. M., Ligthart, S. A. and Huijsman, R. (2009). Integrated dementia care in the Netherlands: a multiple case study of case management programmes. Health and Social Care in the Community, 17, 485494.Google Scholar
Meiland, F. J., Dröes, R. M., De Lange, J. and Vernooij-Dassen, M. J. (2004). Development of a theoretical model for tracing facilitators and barriers in adaptive implementation of innovative practices in dementia care. Archives of Gerontology and Geriatrics, 9, 279290.Google Scholar
Meiland, F. J., Dröes, R. M., de Lange, J. and Vernooij-Dassen, M. J. (2005). Facilitators and barriers in the implementation of the meeting centres model for people with dementia and their carers. Health Policy, 71, 243253.Google Scholar
Mittelman, M. S., Ferris, S. H., Shulman, E., Steinberg, G. and Levin, B. (1996). A family intervention to delay nursing home placement of patients with Alzheimer's Disease. Journal of the American Medical Association, 276, 17251731.Google Scholar
Moniz-Cook, E., Vernooij-Dassen, M., Woods, B. and Orrell, M. (2014). Psychosocial interventions in dementia care research: the INTERDEM manifesto. Aging & Mental Health, 15, 283290.Google Scholar
Moyle, W., Venturato, L., Cooke, M., Hughes, J., van Wyk, S. and Marshall, J. (2014). Promoting value in dementia care: staff, resident and family experience of the capabilities model of dementia care. Aging & Mental Health, 17, 587594.Google Scholar
Nies, H. (1994). Innovation in the Field of Care for the Elderly. A Systematic Guideline to Care Innovations. Bohn, Stafleu Van Lochum, Houten/Zaventem.Google Scholar
Peeters, L. M., de Lange, J., Spreeuwenberg, P., Veerbeek, M., Pot, A. M. and Francke, A. L. (2012). Landelijke evaluatie van casemanagement dementie. (National Evaluation of Case Management in Dementia) Case Management Report available at: http://www.nivel.nl/sites/default/files/bestanden/Rapport-casemanagement-dementie.pdf; last accessed 26 February 2014.Google Scholar
Phung, K. T. et al. (2013). A three-year follow-up on the efficacy of psychosocial interventions for patients with mild dementia and their caregivers: the multicentre, rater-blinded, randomised Danish Alzheimer Intervention Study (DAISY). British Medical Journal, 3, e003584.Google Scholar
Rokstad, A. M., Røsvik, J., Kirkevold, Ø., Selbaek, G., Saltyte Benth, J. and Engedal, K. (2013). The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: a 10-month randomized controlled trial. Dementia and Geriatric Cognitive Disorders, 36, 340353.Google Scholar
Stein-Parbury, J., Chenoweth, L., Jeon, Y. H., Brodaty, H., Haas, M. and Norman, R. (2012). Implementing person-centered care in residential dementia care. Clinical Gerontologist, 35, 404424.Google Scholar
Testad, I. et al. (2014). The value of personalized psychosocial interventions to address behavioral and psychological symptoms in people with dementia living in care home settings: a systematic review. International Psychogeriatrics, 26, 10831098.Google Scholar
Van der Roest, H. G. et al. (2008). Finding the service you need: human centered design of a Digital Interactive Social Chart in DEMentia care (DEM-DISC). Studies in Health Technology and Informatics, 137, 210224.Google ScholarPubMed
Van Haeften-van Dijk, A. M., Meiland, F. J. M., Van Mierlo, L. D. and Dröes, R. M. (2015). Transforming nursing home-based day care for people with dementia into socially integrated community day care: process analysis of the transition of six day cares. International Journal of Nursing Studies, 52, 13101322.Google Scholar
Van Mierlo, L. D., Van der Roest, H. G., Meiland, F. J. M. and Dröes, R. M. (2010). Personalized dementia care: proven effectiveness of psychosocial interventions in subgroups. Ageing Research Reviews, 9, 163183.Google Scholar
Van Mierlo, L. D., Meiland, F. J. M. and Dröes, R. M. (2012a). Dementelcoach: effect of telephone coaching on carers of community-dwelling people with dementia. International Psychogeriatrics, 24, 212222.Google Scholar
Van Mierlo, L. D., Meiland, F. J. M., Van der Roest, H. G. and Dröes, R. M. (2012b). Personalised caregiver support: effectiveness of psychosocial interventions in subgroups of caregivers of people with dementia. International Journal of Geriatric Psychiatry, 27, 114.CrossRefGoogle ScholarPubMed
Van Mierlo, L. D., Meiland, F. J. M., Van Hout, H. P. J. and Dröes, R. M. (2014). Towards personalised integrated dementia care: a qualitative study into the implementation of different models of case management. BMC Geriatrics, 14, 84.Google Scholar
Van Mierlo, L. D., Bootsma-Van der Wiel, A., Meiland, F. J. M., Van Hout, H. P. J., Stek, M. L. and Dröes, R. M. (2015a). Tailored mental health care after nursing home admission: improving transfers of people with dementia with behavioral problems. An explorative study. Aging & Mental Health, 7, 110.Google Scholar
Van Mierlo, L. D., Meiland, F. J., Van de Ven, P. M., Van Hout, H. P. J. and Dröes, R. M. (2015b). Evaluation of DEM-DISC, customized e-advice on health and social support services for informal carers and case managers of people with dementia; a cluster randomized trial. International Psychogeriatrics, 27, 13651378.CrossRefGoogle ScholarPubMed
Van't Leven, N., Graff, M. J., Kaijen, M., de Swart, B. J., Olde Rikkert, M. G. and Vernooij-Dassen, M. J. (2012). Barriers to and facilitators for the use of an evidence-based occupational therapy guideline for older people with dementia and their carers. International Journal of Geriatric Psychiatry, 27, 742748.Google Scholar
Verkaik, R., Francke, A. L., van Meijel, B., Ouwerkerk, J., Ribbe, M. W. and Bensing, J. M. (2011). Introducing a nursing guideline on depression in dementia: a multiple case study on influencing factors. International Journal of Nursing Studies, 48, 11291139.Google Scholar
Vernooij-Dassen, M., Huygen, F., Felling, A. and Persoon, J. (1995). Home care for dementia patients. Journal of the American Geriatrics Society, 43, 456457.Google Scholar
Vernooij-Dassen, M. and Moniz-Cook, E. (2014, May 12). Raising the standard of applied dementia care research: addressing the implementation error. Aging & Mental Health, 18, 809814.Google Scholar
Vrakking, W. J. and Cozijnsen, A. J. (1990). Management Technieken bij Effectief Innoveren. (Management Techniques in Effective Innovation). Deventer, Netherlands: Kluwer.Google Scholar