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Telling life stories: a dyadic intervention for older Korean couples affected by mild Alzheimer's disease

Published online by Cambridge University Press:  07 November 2017

Minyoung Kwak ,
Ji Won Han  and
Jung-Hwa Ha
Minyoung Kwak
Affiliation:
Department of Social Work, The Chinese University of Hong Kong, Hong Kong
Ji Won Han
Affiliation:
Department of Neuropsychiatry, Seoul National University Bundang Hospital, Seongnam, South Korea
Jung-Hwa Ha*
Affiliation:
Department of Social Welfare and Center for Social Sciences, Seoul National University, Seoul, South Korea
*
Correspondence should be addressed to: Jung-Hwa Ha, Associate Professor, Department of Social Welfare, Seoul National University, 1 Kwanak-ro, Kwanak-gu, Seoul, South Korea. Phone: 82-2-880-6463; Fax: 82-2-888-6981. Email:[email protected].
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Abstract

Background:

Dementia has negative consequences for both persons with dementia and their family caregivers. Dyadic interventions in which both groups participate together have shown an effective and promising approach. The Couples Life Story Approach (CLSA) that was recently developed for older couples dealing with dementia in the USA was adapted and implemented for the older Korean population in this study. The purpose of this paper is to understand how older Korean couples dealing with dementia experienced the CLSA.

Method:

Fifty six couples (n = 102) completed the five-week intervention from December 2013 to October 2015. The participants completed a survey including open-ended questions one week after finishing the intervention. A thematic content analysis was conducted to analyze the responses.

Results:

Qualitative analysis revealed benefits and challenges in the experience of CLSA. Themes related to benefits were: (1) emotional benefits of reminiscing; (2) positive evaluation of life as a couple; (3) gratitude toward spouse; (4) changes in communications or activities with spouse; and (5) changes in relationship quality. Couples’ experience varied, with some having mixed feelings about the intervention. Challenges perceived by participants included revival of bitterness and identification of loss.

Conclusions:

Findings suggest the CLSA contributes to enhancing the quality of life for couples affected by Alzheimer's disease and improving their relationship. Challenges that emerged in the CLSA will guide future research to identify the sub-population that is appropriate for the couple-oriented intervention in dementia care.

Keywords

dyadic interventionlife reviewdementiacaregivingreminiscence
Type
Original Research Article
Information
International Psychogeriatrics , Volume 30 , Issue 7: Issue Theme: Benzodiazepines and Hypnotics , July 2018 , pp. 1009 - 1018
Copyright
Copyright © International Psychogeriatric Association 2017 

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Footnotes

*

The two first authors have equally contributed to the work.

References

Allen, R. S., Hilgeman, M. M., Ege, M. A., Shuster, J. L. Jr. and Burgio, L. D. (2008). Legacy activities as interventions approaching the end of life. Journal of Palliative Medicine, 11, 1029–1038.Google Scholar
American Psychiatry Association. (1994). Diagnostic Criteria from DSM-IV. Washington DC: American Psychiatry Association.Google Scholar
Braun, V. and Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101.Google Scholar
Cahill, S. et al. (2008). Early Psychosocial Interventions in Dementia: Evidence-Based Practice. London, UK: Jessica Kingsley Publishers.Google Scholar
Gonzalez, J., Mayordomo, T., Torres, M., Sales, A. and Melѐndez, J. C. (2015). Reminiscence and dementia: a therapeutic intervention. International Psychogeriatrics, 27, 1731–1737.Google Scholar
Green, J. and Thorogood, N. (2013). Qualitative Methods for Health Research. Los Angeles, CA: Sage.Google Scholar
Haight, B. K. and Haight, B. S. (2007). The Handbook of Structured Life Review. Baltimore, MD: Health Professions Press.Google Scholar
Haight, B. K., Bachman, D. L., Hendrix, S., Wagner, M. T., Meeks, A. and Johnson, J. (2003). Life review: treating the dyadic family unit with dementia. Clinical Psychology & Psychotherapy, 10, 165–174.Google Scholar
Haight, B. K., Gibson, F. and Michel, Y. (2006). The Northern Ireland life review/life storybook project for people with dementia. Alzheimer's and Dementia, 2, 56–58.Google Scholar
HIRA (2015). 2014 Medical Fee Statistics [Online]. Available at: http://www.hira.or.kr/dummy.do?pgmid=HIRAA020045030000&cmsurl=/cms/medi_info/07/03/03/1332395_27404.html&subject=2014%EB%85%84+%EC%A7%84%EB%A3%8C%EB%B9%84%ED%86%B5%EA%B3%84%EC%A7%80%ED%91%9C.Google Scholar
Hong, G.-R. S. and Kim, H. (2008). Family caregiver burden by relationship to care recipient with dementia in Korea. Geriatric Nursing, 29, 267–274.Google Scholar
Hwang, H. R. et al. (2012). The effect of cognitive training in patients with mild cognitive impairment and early Alzheimer's disease: a preliminary study. Journal of Clinical Neurology, 8, 190–197.Google Scholar
Ingersoll-Dayton, B., Spencer, B., Kwak, M., Scherrer, K., Allen, R. S. and Cambell, R. (2013). The couples life story approach: a dyadic intervention for dementia. Journal of Gerontological Social Work, 56, 237–254.Google Scholar
Kim, K. W. et al. (2011). A nationwide survey on the prevalence of dementia and mild cognitive impairment in South Korea. Journal of Alzheimer's Disease, 23, 281–291.Google Scholar
Kim, S. Y., Kim, J. W., Sohn, S. K. and Min, S. Y. (2007). The effectiveness of the group education program among the family caregivers of the demented elderly. Journal of Welfare for the Aged Instutute, 36, 7–34.Google Scholar
Kitwood, T. (1997). The Concept of Personhood and its Relevance for a New Culture of Dementia Care. London: Routledge.Google Scholar
Kwak, M., Ha, J., Hwang, S., Ingersoll-Dayton, B. and Spencer, B. (in press). Cultural adaptation of a dyadic intervention for Korean couples coping with Alzheimer's disease. Clinical Gerontologist. Epub ahead of print. doi: 10.1080/07317115.2017.1366385Google Scholar
Lee, J. H. et al. (2002). Development of the Korean version of the Consortium to Establish a Registry for Alzheimer's Disease Assessment Packet (CERAD-K): clinical and neuropsychological assessment batteries. The journals of gerontology. Series B, Psychological Sciences and Social Sciences, 57, 47–53.Google Scholar
Mckhann, G., Drachman, D., Folstein, M., Katzman, R., Price, D. and Stadlan, E. M. (1984). Clinical diagnosis of Alzheimer's disease report of the NINCDS-ADRDA Work Group* under the auspices of department of health and human services task force on Alzheimer's disease. Neurology, 34, 939–939.Google Scholar
Ministry of Health and Welfare (2008). Dementia Comprehensive Management Measures [Online]. Available at: http://stat.mw.go.kr/front/include/download.jsp?bbsSeq=7&nttSeq=11067&atchSeq=1210.Google Scholar
Ministry of Health and Welfare (2012). Second National Dementia Management Comprehensive Plan [Online]. Available at: http://stat.mw.go.kr/front/include/download.jsp?bbsSeq=7&nttSeq=11067&atchSeq=1210.Google Scholar
Ministry of Health and Welfare (2016). Third national dementia management comprehensive plan.Google Scholar
Park, J. E. et al. (2015). Impact of stigma on use of mental health services by elderly Koreans. Social Psychiatry and Psychiatric Epidemiology, 50, 757–766.Google Scholar
Van't Leven, N., Prick, A.-E. J., Groenewoud, J. G., Roelofs, P. D., De Lange, J. and Pot, A. M. (2013). Dyadic interventions for community-dwelling people with dementia and their family caregivers: a systematic review. International Psychogeriatrics, 25, 1581–1603.Google Scholar
Wadham, O., Simpson, J., Rust, J. and Murray, C. (2016). Couples' shared experiences of dementia: a meta-synthesis of the impact upon relationships and couplehood. Aging & Mental Health, 20, 463– 473.Google Scholar
Wang, J.-J., Yen, M. and Ouyang, W.-C. (2009). Group reminiscence intervention in Taiwanese elders with dementia. Archives of Gerontology and Geriatrics, 49, 227–232.Google Scholar
Webster, J. D. and Mccall, M. E. (1999). Reminiscence functions across adulthood: a replication and extension. Journal of Adult Development, 6, 73–85.Google Scholar
Woods, R. T. et al. (2012). REMCARE: reminiscence groups for people with dementia and their family caregivers-effectiveness and cost-effectiveness pragmatic multicentre randomised trial. Health technology assessment, 16, v–xv.Google Scholar
Zarit, S. H., and Femia, E. E. (2008). A future for family care and dementia intervention research? Challenges and strategies. Aging and Mental Health, 12, 5–13.Google Scholar