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Positive psychology outcome measures for family caregivers of people living with dementia: a systematic review

Published online by Cambridge University Press:  17 May 2017

Jacki Stansfeld ,
Charlotte R. Stoner ,
Jennifer Wenborn ,
Myrra Vernooij-Dassen ,
Esme Moniz-Cook  and
Martin Orrell
Jacki Stansfeld*
Affiliation:
Division of Psychiatry, University College London, Maple House, London, UK Research and Development, North East London NHS Foundation Trust, Goodmayes Hospital, UK
Charlotte R. Stoner
Affiliation:
Department of Clinical, Educational and Health Psychology, University College London, London, UK
Jennifer Wenborn
Affiliation:
Division of Psychiatry, University College London, Maple House, London, UK Research and Development, North East London NHS Foundation Trust, Goodmayes Hospital, UK
Myrra Vernooij-Dassen
Affiliation:
Radboud University Medical Centre, Nijmegen, the Netherlands
Esme Moniz-Cook
Affiliation:
Faculty of Health and Social Care, University of Hull, UK
Martin Orrell
Affiliation:
Institute of Mental Health, University of Nottingham, Nottingham, UK
*
Correspondence should be addressed to: Jacki Stansfeld, Division of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF. Phone: +0300-555-1200 ext 64491/07834392294. Email: [email protected].
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Abstract

Background:

Family caregivers of people living with dementia can have both positive and negative experiences of caregiving. Despite this, existing outcome measures predominately focus on negative aspects of caregiving such as burden and depression. This review aimed to evaluate the development and psychometric properties of existing positive psychology measures for family caregivers of people living with dementia to determine their potential utility in research and practice.

Method:

A systematic review of positive psychology outcome measures for family caregivers of people with dementia was conducted. The databases searched were as follows: PsychINFO, CINAHL, MEDLINE, EMBASE, and PubMed. Scale development papers were subject to a quality assessment to appraise psychometric properties.

Results:

Twelve positive outcome measures and six validation papers of these scales were identified. The emerging constructs of self-efficacy, spirituality, resilience, rewards, gain, and meaning are in line with positive psychology theory.

Conclusions:

There are some robust positive measures in existence for family caregivers of people living with dementia. However, lack of reporting of the psychometric properties hindered the quality assessment of some outcome measures identified in this review. Future research should aim to include positive outcome measures in interventional research to facilitate a greater understanding of the positive aspects of caregiving and how these contribute to well-being.

Keywords

dementiaAlzheimer's diseasecarersrating scales
Type
Review Article
Information
International Psychogeriatrics , Volume 29 , Issue 8 , August 2017 , pp. 1281 - 1296
Copyright
Copyright © International Psychogeriatric Association 2017 

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