Hostname: page-component-586b7cd67f-t7fkt Total loading time: 0 Render date: 2024-11-21T21:50:11.889Z Has data issue: false hasContentIssue false
  • English
  • Français

In search of the holy grail of quality dying with dementia

Published online by Cambridge University Press:  09 June 2021

Carmelle Peisah Open the ORCID record for Carmelle Peisah [Opens in a new window]  and
Tiffany Jessop
Carmelle Peisah*
Affiliation:
School of Psychiatry and Ageing Futures Institute, University New South Wales (UNSW), Sydney, Australia
Tiffany Jessop
Affiliation:
School of Psychiatry, University New South Wales (UNSW), Sydney, Australia
*
Email: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

An abstract is not available for this content so a preview has been provided. Please use the Get access link above for information on how to access this content.
Image of the first page of this content. For PDF version, please use the ‘Save PDF’ preceeding this image.'
Type
Commentary
Information
International Psychogeriatrics , Volume 33 , Special Issue 10: Issue Theme: Non-cognitive Concerns in People with Dementia , October 2021 , pp. 1011 - 1013
Copyright
© International Psychogeriatric Association 2021

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Aminoff, B. Z. (2008). End-Stage dementia: Aminoff suffering syndrome and relief of suffering units. The Open Geriatric Medicine Journal, 1, 29–32.CrossRefGoogle Scholar
Aminoff, B. Z. and Adunsky, A. (2006). Their last 6 months: suffering and survival of end stage dementia patients. Age and Ageing, 35, 597–601.CrossRefGoogle ScholarPubMed
Ballard, C. et al. (2018). Impact of person-centred care training and person-centred activities on quality of life, agitation, and antipsychotic use in people with dementia living in nursing homes: a cluster-randomised controlled trial. PLoS Medicine, 15, e1002500.10.1371/journal.pmed.1002500CrossRefGoogle ScholarPubMed
Chenoweth, L. et al. (2014). PerCEN: a cluster randomized controlled trial of person-centered residential care and environment for people with dementia. International Psychogeriatrics, 26, 1147–1160.10.1017/S1041610214000398CrossRefGoogle ScholarPubMed
Honinx, E. et al. (2020). Lack of effect of a multicomponent palliative care program for nursing home residents on hospital use in the last month of life and on place of death: a secondary analysis of a multicountry cluster randomized control trial. Journal of the American Medical Directors Association. doi: 10.1016/j.jamda.2020.05.003.CrossRefGoogle Scholar
Hunt, L. J., Stephens, C. E. and Smith, A. K. (2020). Palliative care in the nursing home—shifting paradigms. The Journal of the American Medical Association, 180, 243–244.Google ScholarPubMed
Lichtwarck, B. et al. (2018). Targeted interdisciplinary model for evaluation and treatment of neuropsychiatric symptoms: a cluster randomized controlled trial. The American Journal of Geriatric Psychiatry, 26, 25–38.10.1016/j.jagp.2017.05.015CrossRefGoogle ScholarPubMed
Livingston, G. et al. (2017). Prevalence of and associations with agitation in residents with dementia living in care homes: MARQUE cross-sectional study. BJPsych Open, 3, 171–178.10.1192/bjpo.bp.117.005181CrossRefGoogle ScholarPubMed
Livingston, G. et al. (2019). Clinical and cost-effectiveness of the Managing Agitation and Raising Quality of Life (MARQUE) intervention for agitation in people with dementia in care homes: a single-blind, cluster-randomised controlled trial. Lancet Psychiatry, 6, 293–304.10.1016/S2215-0366(19)30045-8CrossRefGoogle ScholarPubMed
Low, L. F. et al. (2015). A systematic review of interventions to change staff care practices in order to improve resident outcomes in nursing homes. PLoS One, 10, e0140711.CrossRefGoogle ScholarPubMed
Moore, D. C., Payne, S., Van den Block, L., Ten Koppel, M., Szczerbińska, K. and Froggatt, K. (2019). PACE (Palliative Care for Older People in care and nursing homes in Europe) Consortium. Research, recruitment and observational data collection in care homes: lessons from the PACE study. BMC Research Notes, 12, 508.CrossRefGoogle Scholar
Peisah, C., Weaver, J., Wong, L. and Strukovski, J. (2014). Silent and suffering: a pilot study exploring gaps between theory and practice in pain management for people with severe dementia in residential care facilities. Clinical Interventions in Ageing, 9, 1767–1774.10.2147/CIA.S64598CrossRefGoogle Scholar
Rapp, M. A. et al. (2013). Agitation in nursing home residents with dementia (VIDEANT Trial): effects of a cluster-randomized, controlled, guideline implementation trial. Journal of the American Medical Directors Association, 14, 690–695.10.1016/j.jamda.2013.05.017CrossRefGoogle ScholarPubMed
Sampson, E. et al. (2020). Development, feasibility and acceptability of an intervention to improve care for agitation in people living in nursing homes with dementia nearing the end of life. International Pyschogeriatrics. doi: 10.1017/S1041610220001647.CrossRefGoogle Scholar
Temkin-Greener, H. et al. (2018). Impact of nursing home palliative care teams on end-of-life outcomes: a randomized controlled trial. Medical Care, 56, 11–18.CrossRefGoogle ScholarPubMed
Van den Block, L. et al. (2020). Evaluation of a palliative care program for nursing homes in 7 countries: the PACE cluster-randomized clinical trial. JAMA Internal Medicine, 180, 233–242.10.1001/jamainternmed.2019.5349CrossRefGoogle ScholarPubMed