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Implementing national guidelines for person-centered care of people with dementia in residential aged care: effects on perceived person-centeredness, staff strain, and stress of conscience

Published online by Cambridge University Press:  27 February 2014

David Edvardsson*
Affiliation:
School of Nursing and Midwifery, La Trobe University, Melbourne, Australia Department of Nursing, Umeå University, Umeå, Sweden
P. O. Sandman
Affiliation:
Department of Neurobiology, Care Sciences and Society (NVS), Division of Nursing, Karolinska Institutet, Stockholm, Sweden
Lena Borell
Affiliation:
Department of Neurobiology, Care Sciences and Society (NVS), Division of Occupational Therapy, Karolinska Institutet, Stockholm, Sweden
*
Correspondence should be addressed to: David Edvardsson, Associate Professor/Director of Nursing Research, Austin Health Clinical School of Nursing, La Trobe University, Level 4, Austin Tower, PO Box 5555, Heidelberg, Melbourne, Victoria 3084, Australia. Phone: +61 3 9496 4455. E-mail: [email protected].

Abstract

Background:

Person-centeredness has had substantial uptake in the academic literature on care of older people and people with dementia. However, challenges exist in interpreting and synthesizing the evidence on effects of providing person-centered care, as the person-centered components of some intervention studies are unclear – targeting very different and highly specific aspects of person-centeredness, as well as not providing empirical data to indicate the extent to which care practice was actually perceived to become more person-centered post-intervention.

Methods:

The study employed a quasi-experimental, one-group pre-test–post-test design with a 12-month follow-up to explore intervention effects on person-centeredness of care and the environment (primary endpoints), and on staff strain and stress of conscience (secondary endpoints).

Results:

The intervention resulted in significantly higher scores on person-centeredness of care at follow-up, and the facility was rated as being significantly more hospitable at follow-up. A significant reduction of staff stress of conscience was also found at follow-up, which suggests that, to a larger extent, staff could provide the care and activities they wanted to provide after the intervention.

Conclusions:

The results indicated that an interactive and step-wise action-research intervention consisting of knowledge translation, generation, and dissemination, based on national guidelines for care of people with dementia, increased the staff self-reported person-centeredness of care practice, perceived hospitality of the setting, and reduced staff stress of conscience by enabling staff to provide the care and activities they want to provide.

Type
Research Article
Copyright
Copyright © International Psychogeriatric Association 2014 

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References

Bone, C., Cheung, G. and Wade, B. (2010). Evaluating person centred care and dementia care mapping in a psychogeriatric hospital in New Zealand: a pilot study. New Zealand Journal of Occupational Therapy, 57, 3540.Google Scholar
Brooker, D. (2007). Person-Centered Dementia Care: Making Services Better. London: Jessica Kingsley.Google Scholar
Chenoweth, L. et al. (2009). Caring for Aged Dementia Care Resident Study (CADRES) of person-centred care, dementia-care mapping, and usual care in dementia: a cluster-randomised trial. The Lancet Neurology, 8, 317325.Google Scholar
Cohen-Mansfield, J. (1997) Turnover among nursing home staff. Nursing Management, 28, 5964.CrossRefGoogle ScholarPubMed
Edvardsson, D., Winblad, B. and Sandman, P. O. (2008). Person-centred care for people with severe Alzheimer's disease – current status and ways forward. The Lancet Neurology, 7, 362367.Google Scholar
Edvardsson, D., Sandman, P. O. and Rasmussen, B. (2009). Construction and psychometric evaluation of the Swedish person-centred climate questionnaire – staff version. Journal of Nursing Management, 17, 790795.Google Scholar
Flodgren, G., Rojas-Reyes, M. X., Cole, N. and Foxcroft, D. R. (2012). Effectiveness of organisational infrastructures to promote evidence-based nursing practice. Cochrane Database of Systematic Reviews, 2. Art. No: CD002212. doi:10.1002/14651858. CD002212.pub2.Google Scholar
Freire, P. (1993) Pedagogy of the Oppressed. New York: Herder and Herder.Google Scholar
Glasberg, A. L. et al. (2006). Development and initial validation of the stress of conscience questionnaire. Nursing Ethics, 13, 633648.Google Scholar
Gray, M., Joy, E., Plath, D. and Webb, S. A. (2012). Implementing evidence-based practice: a review of the empirical research literature. Research on Social Work Practice, 23, 157166.CrossRefGoogle Scholar
Grol, R. and Grimshaw, J. (2003). From best evidence to best practice: effective implementation of change in patients’ care. The Lancet, 362, 12251230.Google Scholar
Jeon, Y. H. et al. (2012). Staff outcomes from the Caring for Aged Dementia Care REsident Study (CADRES): a cluster randomised trial. International Journal of Nursing Studies, 49, 508518.CrossRefGoogle ScholarPubMed
Juthberg, C., Eriksson, S., Norberg, A. and Sundin, K. (2010). Perceptions of conscience, stress of conscience and burnout among nursing staff in residential elder care. Journal of Advanced Nursing, 66, 17081718.Google Scholar
Karasek, R. and Theorell, T. (1990). Healthy Work: Stress, Productivity, and the Reconstruction of Working Life. New York: Basic Books.Google Scholar
Kitwood, T. M. (1997). Dementia Reconsidered: The Person Comes First. Buckingham: Open University Press.Google Scholar
Marcel, G. (1951). The Mystery of Being, Vol. 1, Reflection and Mystery. London: The Harvill Press.Google Scholar
McCormack, B. (2004). Person-centredness in gerontological nursing: an overview of the literature. Journal of Clinical Nursing, 13, 3138.CrossRefGoogle ScholarPubMed
McCormack, B. and McCance, T. (2010). Person-Centred Nursing: Theory and Practice. Chichester: Wiley-Blackwell.CrossRefGoogle Scholar
McCormack, B. et al. (2010). Developing person-centred practice: nursing outcomes arising from changes to the care environment in residential settings for older people. International Journal of Older People Nursing, 5, 93107.CrossRefGoogle Scholar
McKeown, J., Clarke, A., Ingleton, C., Ryan, T. and Repper, J. (2010). The use of life story work with people with dementia to enhance person-centered care. International Journal of Older People Nursing, 5, 148158.Google Scholar
Oxford English Dictionary. (2013). Available at: http://www.oed.com/; last accessed 18 October 2013.Google Scholar
Palese, A., Granzotto, D., Broll, M. G. and Carlesso, N. (2010). From health organization-centred standardization work process to a personhood-centred care process in an Italian nursing home: effectiveness on bowel elimination model. International Journal of Older People Nursing, 5, 179187 CrossRefGoogle Scholar
Passalacqua, S. A. and Harwood, J. (2012). VIPS communication skills training for paraprofessional dementia caregivers: an intervention to increase person-centered dementia care. Clinical Gerontologist, 35, 425445.Google Scholar
Prior, M., Guerin, M. and Grimmer-Somers, K. (2008). The effectiveness of clinical guideline implementation strategies: a synthesis of systematic review findings. Journal of Evaluation in Clinical Practice, 14, 888897.CrossRefGoogle ScholarPubMed
Rahman, A. N., Applebaum, R. A., Schnelle, J. F. and Simmons, S. F. (2012). Translating research into practice in nursing homes: can we close the gap? The Gerontologist, 52, 597606.CrossRefGoogle ScholarPubMed
Rasmussen, B. and Edvardsson, D. (2007). The influence of environment in palliative care: supporting or hindering experiences of ‘at-homeness’? Contemporary Nurse, 27, 119131.Google Scholar
Sanne, B., Torp, S., Mykletun, A. and Dahl, A. A. (2005). The Swedish Demand—Control—Support Questionnaire (DCSQ): factor structure, item analyses, and internal consistency in a large population. Scandinavian Journal of Public Health, 33, 166174.Google Scholar
Sjögren, K., Sandman, P. O., Zingmark, K. and Edvardsson, D. (2012). Psychometric evaluation of the Swedish version of the Person-Centred Care Assessment Tool (P-CAT). International Psychogeriatrics, 24, 406415.CrossRefGoogle Scholar
The Swedish National Board of Health and Welfare. (2010). Nationella riktlinjer för vård och omsorg vid demenssjukdom 2010: stöd för styrning och ledning. Stockholm: Socialstyrelsen.Google Scholar
Vernooij-Dassen, M. J. et al. (2009). Dementia care and the labour market: the role of job satisfaction. Aging and Mental Health, 14, 383390.Google Scholar