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The impact of relationships, motivations, and meanings on dementia caregiving outcomes

Published online by Cambridge University Press:  01 June 2012

Catherine Quinn ,
Linda Clare ,
Ted McGuinness  and
Robert T. Woods
Catherine Quinn*
Affiliation:
School of Psychology, Bangor University, Bangor, Gwynedd, UK
Linda Clare
Affiliation:
School of Psychology, Bangor University, Bangor, Gwynedd, UK
Ted McGuinness
Affiliation:
Hulton Hospital, Bolton, UK
Robert T. Woods
Affiliation:
Dementia Services Development Centre, Bangor University, Bangor, Gwynedd, UK
*
Correspondence should be addressed to: Dr. Catherine Quinn, School of Psychology, Bangor University, Bangor, Gwynedd LL57 2AS, UK. Phone: +44 1248 388359; Fax: +44 1248 382599. Email: [email protected].
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Abstract

Background: Numerous theoretical models have been developed to explore how caregiving can impact on caregiving outcomes. However, limited attention has been given to the effects of caregivers’ motivations for providing care, the meaning they find in caregiving, and the nature of their relationship with the care-recipient. The current study explored the associations between intrinsic and extrinsic motivations, ability to find meaning in caregiving, and pre-caregiving and current relationship quality, and the way in which these variables interact to influence caregiving outcomes.

Methods: This was a cross-sectional questionnaire study, in which the respondents were 447 caregivers of people with dementia who were in receipt of a specialist nursing service.

Results: The results showed that intrinsic motivations, meaning, and pre-caregiving and current relationship quality were significantly related to each other, while extrinsic motivations were only related to intrinsic motivations and meaning. All these factors were significantly related to caregiving outcomes as measured by caregiver burden, role captivity, and competence.

Conclusions: Based on these findings, it is recommended that interventions aimed at reducing caregiving stress should take into account the impact of the quality of the relationship and the caregivers’ motivations for providing care. More longitudinal research is needed to explore how meanings, motivations, and relationship quality change over the caregiving career.

Keywords

cross-sectionalquantitative methodspositive aspects of careinformal caregiving
Type
Research Article
Information
International Psychogeriatrics , Volume 24 , Issue 11 , November 2012 , pp. 1816 - 1826
Copyright
Copyright © International Psychogeriatric Association 2012

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References

Bédard, M., Molloy, W., Squire, L., Dubois, S., Lever, J. A. and O'Donnell, M. (2001). The Zarit Burden Interview: a new short version and screening version. The Gerontologist, 41, 652–657.CrossRefGoogle ScholarPubMed
Bengtson, V. L. and Schrader, S. S. (1982). Parent-child relations. In Mangen, D. J. and Peterson, W. A. (eds.), Research Instruments in Social Gerontology (pp. 115–185). Minneapolis, MN: University of Minneapolis Press.Google Scholar
Camden, A., Livingston, G. and Cooper, C. (2011). Reasons why family members become carers and the outcome for the person with dementia: results from the CARD study. International Psychogeriatrics, 23, 1442–1450. doi:10.1017/S1041610211001189.CrossRefGoogle ScholarPubMed
Cicirelli, V. G. (1993). Attachment and obligation as daughters’ motives for caregiving behavior and subsequent effect on subjective burden. Psychology and Aging, 8, 144–155. doi:10.1037/0882-7974.8.2.144.CrossRefGoogle ScholarPubMed
Clare, L. et al. (2012). Marital relationship quality in early-stage dementia: perspectives from people with dementia and their spouses. Alzheimer's Disease and Associated Disorders. Advance online publication. doi:10.1097/WAD.0b013e318221ba23.CrossRefGoogle Scholar
Ducharme, F. C. et al. (2011). “Learning to become a family caregiver” efficacy of an intervention program for caregivers following diagnosis of dementia in a relative. The Gerontologist, 51, 484–494. doi:10.1093/geront/gnr014.CrossRefGoogle ScholarPubMed
Feeney, B. C. and Collins, N. L. (2003). Motivations for caregiving in adult intimate relationships: influences on caregiving behavior and relationship functioning. Personality and Social Psychology Bulletin, 29, 950–968. doi:10.1177/0146167203252807.CrossRefGoogle ScholarPubMed
Folkman, S. (1997). Positive psychological states and coping with severe stress. Social Science & Medicine, 45, 1207–1221.CrossRefGoogle ScholarPubMed
Harwood, D. G., Barker, W. W., Ownby, R. L., Bravo, M., Aguero, H. and Duara, R. (2000). Predictors of positive and negative appraisal among Cuban American caregivers of Alzheimer's disease patients. International Journal of Geriatric Psychiatry, 15, 481–487. doi:10.1002/1099-1166(200006)15:6<481::AID-GPS984>3.0.CO;2-J.3.0.CO;2-J>CrossRefGoogle ScholarPubMed
Knight, B. G. and Sayegh, P. (2010). Cultural values and caregiving: the updated sociocultural stress and coping model. Journal of Gerontology: Psychological Sciences, 65, 5–13. doi:10.1093/geronb/gbp096.CrossRefGoogle Scholar
Kolmer, D. B., Tellings, A., Gelissen, J., Garretsen, H. and Bongers, I. (2008). Ranked motives of long-term care providing family caregivers. Scandinavian Journal of Caring Sciences, 22, 29–39. doi:10.1111/j.1471-6712.2007.00516.x.CrossRefGoogle Scholar
Levine, N. B. et al. (1984). Existential issues in the management of the demented elderly patient. American Journal of Psychotherapy, 38, 215–223.CrossRefGoogle ScholarPubMed
López, J., López-Arrieta, J. and Crespo, M. (2005). Factors associated with the positive impact of caring for elderly and dependent relatives. Archives of Gerontology and Geriatrics, 41, 81–94. doi:10.1016/j.archger.2004.12.001.CrossRefGoogle ScholarPubMed
Lyonette, C. and Yardley, L. (2003). The influence on carer wellbeing of motivations to care for older people and the relationship with the care recipient. Ageing and Society, 23, 487–506. doi:10.1017/S0144686×03001284.CrossRefGoogle Scholar
McLennon, S. M., Habermann, B. and Rice, M. (2011). Finding meaning as a mediator of burden on the health of caregivers of spouses with dementia. Aging and Mental Health, 15, 522–530.CrossRefGoogle ScholarPubMed
Munro, B. H. (2005). Statistical Methods for Health Care Research. Philadelphia, PA: Lippincott, Williams, Wilkins.Google Scholar
Noonan, A. E. and Tennstedt, S. L. (1997). Meaning in caregiving and its contribution to caregiver well-being. The Gerontologist, 37, 785–794.CrossRefGoogle ScholarPubMed
Norton, M. C. et al. (2009). Caregiver-recipient closeness and symptom progression in Alzheimer's disease. The Cache County dementia progression study. Journal of Gerontology: Psychological Sciences, 64, 560–568. doi:10.1093/geronb/gbp052.CrossRefGoogle ScholarPubMed
Pallant, J. (2005). SPSS Survival Manual. Berkshire: Open University Press.Google Scholar
Pearlin, L. I., Mullan, J. T., Semple, S. J. and Skaff, M. M. (1990). Caregiving and the stress process: an overview of concepts and their measures. The Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583.CrossRefGoogle ScholarPubMed
Pinquart, M. and Sörensen, S. (2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. Journal of Gerontology: Psychological Sciences, 58, 112–128. doi:10.1093/geronb/58.2.P112.CrossRefGoogle ScholarPubMed
Quinn, C., Clare, L. and Woods, R. T. (2009). The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. Aging and Mental Health, 13, 143–154. doi:10.1080/13607860802459799.CrossRefGoogle ScholarPubMed
Quinn, C., Clare, L. and Woods, R. T. (2010). The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. International Psychogeriatrics, 22, 43–55. doi:10.1017/S1041610209990810.CrossRefGoogle ScholarPubMed
Quinn, C., Clare, L. and Woods, R. T. (2012). What predicts whether caregivers of people with dementia find meaning in their role? International Journal of Geriatric Psychiatry. Advance online publication. doi:10.1002/gps.3773.CrossRefGoogle Scholar
Reker, G. T. and Wong, P. T. P. (1988). Aging as an individual process: towards a theory of personal meaning. In Birren, J. E. and Bengtson, V. L. (eds.), Emergent Theories of Aging (pp. 214–246). New York: Springer.Google Scholar
Robertson, S. M., Zarit, S. H., Duncan, L. G., Rovine, M. J. and Femia, E. E. (2007). Family caregivers’ patterns of positive and negative affect. Family Relations, 56, 12–23. doi:10.1111/j.1741-3729.2007.00436.x.CrossRefGoogle Scholar
Romero-Moreno, R., González, M., Losada, A. and López, J. (2011). Motives for caring: relationship to stress and coping dimensions. International Psychogeriatrics, 23, 573–582. doi:10.1017/S1041610210001821.CrossRefGoogle ScholarPubMed
Sörensen, S., Duberstein, P., Gill, D. and Pinquart, M. (2006). Dementia care: mental health effects, intervention strategies, and clinical implications. Lancet Neurology, 5, 961–973.CrossRefGoogle ScholarPubMed
Steadman, P. L., Tremont, G. and Davis, J. D. (2007). Premorbid relationship satisfaction and caregiver burden in dementia caregivers. Journal of Geriatric Psychiatry and Neurology, 20, 115–119. doi:10.1177/0891988706298624.CrossRefGoogle ScholarPubMed
Townsend, A. L. and Franks, M. M. (1995). Binding ties: closeness and conflict in adult children's caregiving relationships. Psychology and Aging, 10, 343–351. doi:10.1037/0882-7974.10.3.343.CrossRefGoogle ScholarPubMed
Wright, L. K. (1998). Affection and sexuality in the presence of Alzheimer's disease: a longitudinal study. Sexuality and Disability, 16, 167–178. doi:10.1023/A:1023042924997.CrossRefGoogle Scholar
Zarit, S. H. and Edwards, A. B. (2008). Family caregiving: research and clinical intervention. In Woods, R. T. and Clare, L. (eds.), Handbook of the Clinical Psychology of Ageing, 2nd edn (pp. 255–288). Chichester: Wiley.CrossRefGoogle Scholar