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Emotional reactions toward people with dementia – results of a population survey from Germany

Published online by Cambridge University Press:  22 November 2013

Olaf von dem Knesebeck ,
Matthias C. Angermeyer ,
Daniel Lüdecke  and
Christopher Kofahl
Olaf von dem Knesebeck*
Affiliation:
Department of Medical Sociology, University Medical Center Hamburg Eppendorf, Martinistr. 52, 20246 Hamburg, Germany
Matthias C. Angermeyer
Affiliation:
Centre for Public Mental Health, Gösing am Wagram, Austria
Daniel Lüdecke
Affiliation:
Department of Medical Sociology, University Medical Center Hamburg Eppendorf, Martinistr. 52, 20246 Hamburg, Germany
Christopher Kofahl
Affiliation:
Department of Medical Sociology, University Medical Center Hamburg Eppendorf, Martinistr. 52, 20246 Hamburg, Germany
*
Correspondence should be addressed to: Dr Olaf von dem Knesebeck, PhD, Department of Medical Sociology, University Medical Center Hamburg Eppendorf, Martinistr. 52, D-20246, Hamburg. Phone: +49-40-741057849; Fax: +49-40-741054934. Email: [email protected].
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Abstract

Background:

Emotional reactions toward people with disorders are an important component of stigma process. In this study, emotional reactions of the German public toward people with dementia were analyzed.

Methods:

Analyses are based on a national mail survey conducted in 2012. Sample consists of persons aged 18 to 79 years living in private households in Germany. In all 1,795 persons filled out the questionnaire, reflecting a response rate of 78%. Respondents were asked about their emotional reactions and beliefs about dementia.

Results:

A vast majority of the respondents expressed pro-social reactions, i.e. they felt pity, sympathy, and the need to help a person with dementia. Dementia patients rarely evoked anger (10% or less). Between 25% and 50% of the population showed reactions indicating fear. Respondents who had contacts with a person having dementia or had cared for a dementia patient tended to show less negative reactions (fear, anger) and more pro-social reactions. Respondents who showed pronounced fearful reactions were less likely to believe that dementia patients had a high quality of life, were less willing to care for a family member with dementia at home, and were more skeptical about early detection of dementia. Comparison with the results of another study suggests that fearful reactions toward persons with dementia are much more pronounced than in the case of depression, and less pronounced than in the case of schizophrenia.

Conclusions:

Fearful reactions toward people with dementia are quite common in the German general public. To reduce fear, educational programs and contact-based approaches should be considered.

Keywords

emotional reactionsdementiapopulation surveyGermany
Type
Research Article
Information
International Psychogeriatrics , Volume 26 , Issue 3 , March 2014 , pp. 435 - 441
Copyright
Copyright © International Psychogeriatric Association 2013 

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References

Angermeyer, M. C. and Dietrich, S. (2006). Public beliefs about and attitudes towards people with mental illness: a review of population studies. Acta Psychiatrica Scandinavica, 113, 163–179.CrossRefGoogle ScholarPubMed
Angermeyer, M. C. and Matschinger, H. (2003). The stigma of mental illness: effects of labeling on public attitudes towards people with mental disorder. Acta Psychiatrica Scandinavica, 108, 303–309.CrossRefGoogle ScholarPubMed
Angermeyer, M. C., Holzinger, A. and Matschinger, H. (2010). Emotional reactions to people with mental illness. Epidemiologia e Psichiatria Sociale, 19, 2010, 26–32.CrossRefGoogle ScholarPubMed
Angermeyer, M. C., Matschinger, H. and Schomerus, G. (2013). Attituds towards psychiatric treatment and people with mental illness: changes over two decades. British Journal of Psychiatry, 203, 146–151.CrossRefGoogle Scholar
Blay, S. L. and Peluso, E. T. P. (2010). Public stigma: the community's tolerance of Alzheimer disease. American Journal of Geriatric Psychiatry, 18, 163–171.CrossRefGoogle ScholarPubMed
Corrigan, P. W. and Watson, A. C. (2002). Understanding the impact of stigma on people with mental illness. World Psychiatry 1, 16–20.Google ScholarPubMed
Hinshaw, S. P. (2007). The Mark of Shame. Oxford, UK: Oxford University Press.Google Scholar
Kalaitzaki, A. E., Kateri, E. and Pattakou-Parasyri, V. (2012). Identification, emotional reactions, and perceived threat to persons with Alzheimer's disease. American Journal of Alzheimer's Disease & Other Dementias, 27, 509–519.CrossRefGoogle ScholarPubMed
Kane, R. L. and Kane, R. A. (2001). What older people want from long-term care, and how they can get it. Health Affairs, 20, 114–127.CrossRefGoogle ScholarPubMed
Knesebeck, O. v. d. et al. (2013a). Socio-economic status and beliefs about depression, schizophrenia and eating disorders. Social Psychiatry and Psychiatric Epidemiology, 48, 775–782.CrossRefGoogle Scholar
Knesebeck, O. v. d. et al. (2013b). Estimated prevalence of mental disorders and the desire for social distance: results from population surveys in two large German cities. Psychiatry Research, 209, 670–674.CrossRefGoogle Scholar
Knesebeck, O. v. d., Angermeyer, M. C., Kofahl, C., Makowski, A. and Mnich, E. (in press). Education and the public's desire for social distance towards people with depression and schizophrenia – the contribution of emotional reactions and causal attributions. International Journal of Social Psychiatry.Google Scholar
Kofahl, C. Lüdecke, D., Schalk, B., Härter, M. and Knesebeck, O. v. d. (in press). Was weiß und denkt die Bevölkerung über Alzheimer und andere Demenz-Erkrankungen? [What does the population know and believe about Alzheimer's and related diseases?] In Böcken, J., Braun, B. and Repschläger, U. (eds.), Gesundheitsmonitor 2013. Bürgerorientierung im Gesundheitswesen. Gütersloh, Germany: Verlag Bertelsmann Stiftung.Google Scholar
Link, B. G., Yang, L. H., Phelan, J. C. and Collins, P. Y. (2004). Measuring mental illness stigma. Schizophrenia Bulletin, 30, 511–541.CrossRefGoogle ScholarPubMed
Luck, T. et al. (2012). Attitudes of the German general population toward early diagnosis of dementia – results of a representative telephone survey. PLoS ONE, 7, e50792.CrossRefGoogle ScholarPubMed
Mukadam, N. and Livingston, G. (2012). Reducing the stigma associated with dementia: approaches and goals. Aging Health, 8, 377–386.CrossRefGoogle Scholar
Quinn, C., Clare, L. and Woods, R. T. (2010). The impact of motivations and meanings of caregivers of people with dementia: a systematic review. International Psychogeriatrics, 22, 43–55.CrossRefGoogle ScholarPubMed
Rüsch, N., Angermeyer, M. C. and Corrigan, P. W. (2005). Mental illness stigma: concepts, consequences, and initiatives to reduce stigma. European Psychiatry, 20, 529–539.CrossRefGoogle ScholarPubMed
Schwarzkopf, L. et al. (2012). Excess costs of dementia disorders and the role of age and gender – an analysis of German health and long-term care insurance claims data. BMC Health Services Research, 12, 165.CrossRefGoogle ScholarPubMed
Spector, A., Orrell, M., Schepers, A. and Shanahan, N. (2012). A systematic review of “knowledge of dementia” outcome measures. Ageing Research Reviews, 11, 67–77.CrossRefGoogle ScholarPubMed
Werner, P. and Davidson, M. (2004). Emotional reactions of lay persons to someone with Alzheimer's disease. International Journal of Geriatric Psychiatry, 19, 391–397.CrossRefGoogle ScholarPubMed
Werner, P., Goldberg, S., Mandel, S. and Korczyn, A. D. (2013). Gender differences in lay persons' beliefs and knowledge about Alzheimer's disease (AD): a national representative study of Israeli adults. Archives of Gerontology and Geriatrics, 56, 400–404.CrossRefGoogle Scholar