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Feasibility and acceptability evaluation of the Promoting Independence in Dementia (PRIDE) intervention for living well with dementia

Published online by Cambridge University Press:  27 August 2020

Emese Csipke ,
Esme Moniz-Cook ,
Phuong Leung ,
Lauren Yates ,
Linda Birt ,
Holly Walton ,
Eef Hogervorst ,
Gail Mountain ,
Georgina Charlesworth  and
Martin Orrell
Emese Csipke*
Affiliation:
Division of Psychiatry, University College London, London, UK
Esme Moniz-Cook
Affiliation:
Faculty of Health Sciences, University of Hull, Hull, UK
Phuong Leung
Affiliation:
Division of Psychiatry, University College London, London, UK
Lauren Yates
Affiliation:
Institute of Mental Health, University of Nottingham, Nottingham, UK
Linda Birt
Affiliation:
Faculty of Medicine and Health Sciences, University of East Anglia, Norwich, UK
Holly Walton
Affiliation:
Department of Applied Health Research, University College London, London, UK
Eef Hogervorst
Affiliation:
National Centre for Sports and Exercise Medicine, Loughborough University, Loughborough, UK
Gail Mountain
Affiliation:
Centre for Applied Dementia Studies, University of Bradford, Bradford, UK
Georgina Charlesworth
Affiliation:
Clinical Educational and Health Psychology, University College London, London, UK
Martin Orrell
Affiliation:
Institute of Mental Health, University of Nottingham, Nottingham, UK
*
Correspondence should be addressed to: Emese Csipke, Division of Psychiatry, 149 Tottenham Court Rd, LondonW1T7NF, UK. Phone: +44 (0)207 679 9306; Email: [email protected].
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Abstract

Objectives:

Post-diagnostic psychosocial interventions could play an important role in supporting people with mild dementia remain independent. The Promoting Independence in Dementia (PRIDE) intervention was developed to address this.

Method:

The mixed methods non-randomized, pre-post feasibility study occurred across England. Facilitators were recruited from the voluntary sector and memory services. Participants and their supporters took part in the three-session intervention. Outcome measures were collected at baseline and follow-up. To evaluate acceptability, focus groups and interviews were conducted with a subsample of participants and facilitators.

Results:

Contextual challenges to delivery including national research governance changes, affected recruitment of study sites. Thirty-four dyads consented, with 14 facilitators providing the intervention. Dyads took part in at least two sessions (79%), and 73% in all three. Outcome measures were completed by 79% without difficulty, with minimal missing data. No significant changes were found on pre and post assessments. Post hoc analysis found moderate effect size improvements for self-management (SMAS instrument) in people with dementia (d = 0.41) and quality of life (EQ5D measure) in carers (d = 0.40). Qualitative data indicated that dyads found PRIDE acceptable, as did intervention facilitators.

Conclusions:

The three-session intervention was well accepted by participant-dyads and intervention facilitators. A randomized controlled trial of PRIDE would need to carefully consider recruitment potential across geographically varied settings and site stratification according to knowledge of contextual factors, such as the diversity of post-diagnostic services across the country. Letting sites themselves be responsible for identifying suitable intervention facilitators was successful. The self-report measures showed potential to be included in the main trial.

Keywords

cognitive declinepsychosocial interventionresearch design and methodologycommunity care
Type
Original Research Article
Information
International Psychogeriatrics , Volume 33 , Special Issue 6: Issue Theme: Diverse Strategies for Improving Seniors’ Well-Being , June 2021 , pp. 601 - 614
Copyright
© International Psychogeriatric Association 2020

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