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The challenge of providing a timely and holistic approach to support people with dementia and their caregivers

Published online by Cambridge University Press:  06 May 2020

Kirsten J. Moore Open the ORCID record for Kirsten J. Moore [Opens in a new window]  and
Sophie Crawley
Kirsten J. Moore*
Affiliation:
Marie Curie Palliative Care Research Department, UCL, London, UK
Sophie Crawley
Affiliation:
Marie Curie Palliative Care Research Department, UCL, London, UK
*
Email: [email protected]
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Abstract

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Type
Commentary
Information
International Psychogeriatrics , Volume 32 , Issue 5: Issue Theme: Challenges and Facilitators for Diagnosis and Treatment of Dementia , May 2020 , pp. 543 - 546
Copyright
© International Psychogeriatric Association 2020

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References

Alzheimer’s Disease International (2011). World Alzheimer Report 2011: The Benefits of Early Diagnosis and Intervention. London: Alzheimer’s Disease International.Google Scholar
Andrén, S. and Elmståhl, S. (2008). Effective psychosocial intervention for family caregivers lengthens time elapsed before nursing home placement of individuals with dementia: A five-year follow-up study. International Psychogeriatrics, 20, 1177–1192. doi: 10.1017/s1041610208007503CrossRefGoogle ScholarPubMed
Brodaty, H., Gresham, M. and Luscombe, G. (1997). The Prince Henry Hospital dementia caregivers’ training programme. International Journal of Geriatric Psychiatry, 12, 183–192.3.0.CO;2-J>CrossRefGoogle Scholar
Chu, P., Edwards, J., Levin, R. and Thomson, J. (2000). The use of clinical case management for early stage Alzheimer’ patients and their families. American Journal of Alzheimer’s Disease and Other Dementias, 15, 284–290. doi: 10.1177/153331750001500506CrossRefGoogle Scholar
Dickinson, C., Dow, J., Gibson, G., Hayes, L., Robalino, S. and Robinson, L. (2017). Psychosocial intervention for carers of people with dementia: What components are most effective and when? A systematic review of systematic reviews. International Psychogeriatrics, 29, 31–43. doi: 10.1017/s1041610216001447CrossRefGoogle ScholarPubMed
Gitlin, L. N., Marx, K., Stanley, I. H. and Hodgson, N. (2015). Translating evidence-based dementia caregiving interventions into practice: State-of-the-science and next steps. The Gerontologist, 55, 210–226. doi: 10.1093/geront/gnu123CrossRefGoogle ScholarPubMed
Jolley, D. and Moniz-Cook, E.(2009). Memory clinics in context. Indian Journal of Psychiatry, 51 (Suppl 1), S70–S76.Google ScholarPubMed
Kawakita, H.et al. (2019). Clinical characteristics of participants enrolled in an early identification and health care management program for dementia based on cluster analysis and the effectiveness of associated support efforts. International Psychogeriatrics, 32, 573–583.CrossRefGoogle Scholar
Khanassov, V., Vedel, I. and Pluye, P. (2014). Barriers to implementation of case management for patients with dementia: A systematic mixed studies review. The Annals of Family Medicine, 12, 456–465. doi: 10.1370/afm.1677CrossRefGoogle ScholarPubMed
Livingston, G., Johnston, K., Katona, C., Paton, J. and Lyketsos, C. G. (2005). Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia. American Journal of Psychiatry, 162, 1996–2021.CrossRefGoogle ScholarPubMed
LoGiudice, D., Waltrowicz, W., Brown, K., Burrows, C., Ames, D. and Flicker, L. (1999). Do memory clinics improve the quality of life of carers? A randomized pilot trial. International Journal of Geriatric Psychiatry, 14, 626–632.3.0.CO;2-5>CrossRefGoogle ScholarPubMed
Low, L., Yap, M. and Brodaty, H. (2011). A systematic review of different models of home and community care services for older persons. BMC Health Services Research, 11, 93–107. doi: 10.1186/1472-6963-11-93CrossRefGoogle ScholarPubMed
Minkman, M.M.N., Ligthart, S. A. and Huijsman, R. (2009). Integrated dementia care in The Netherlands: A multiple case study of case management programmes. Health and Social Care in the Community, 17, 485–494. doi: 10.1111/j.1365-2524.2009.00850.xCrossRefGoogle ScholarPubMed
Monsch, A. U.et al. (1998). Memory clinics in Switzerland. Collaborative group of Swiss memory clinics. Annales de Medecine Interne, 149, 221–227.Google Scholar
Moore, K. J., Goodison, H. and Sampson, E. L. (2019a). The role of the memory service in helping carers to prepare for end of life: A mixed methods study. International Journal of Geriatric Psychiatry, 34, 360–368. doi: 10.1002/gps.5034CrossRefGoogle ScholarPubMed
Moore, K. J., Lee, C. Y., Sampson, E. L. and Candy, B. (2019b). Do interventions that include education on dementia progression improve knowledge, mental health and burden of family carers? A systematic review. Dementia (London). doi: 10.1177/1471301219831530 [Epub ahead of print].CrossRefGoogle ScholarPubMed
Orrell, M. (2012). The new generation of psychosocial interventions for dementia care. The British Journal of Psychiatry: The Journal of Mental Science, 201, 342–343. doi: 10.1192/bjp.bp.111.107771CrossRefGoogle ScholarPubMed
Pinquart, M. and Sorensen, S. (2006). Helping caregivers of persons with dementia: Which interventions work and how large are their effects? International Psychogeriatrics, 18, 577–595. Epub 2006 May 11. doi: 10.1017/S1041610206003462CrossRefGoogle ScholarPubMed
Prince, M., Comas-Herrera, A., Knapp, M., Guerchet, M. and Karagiannidou, M. (2016). World Alzheimer report 2016: Improving healthcare for people living with dementia: Coverage, quality and costs now and in the future. London: Alzheimer’s Disease International. https://www.alz.co.uk/research/WorldAlzheimerReport2016.pdf; last accessed 15 October 2019.Google Scholar
Reilly, S.et al. (2015). Case management approaches to home support for people with dementia. Cochrane Database of Systematic Reviews, 1, Cd008345. doi: 10.1002/14651858.CD008345.pub2Google ScholarPubMed
Schoenmakers, B., Buntinx, F. and DeLepeleire, J. (2010). Supporting the dementia family caregiver: The effect of home care intervention on general well-being. Aging and Mental Health, 14, 44–56. doi: 10.1080/13607860902845533CrossRefGoogle ScholarPubMed
Tam-Tham, H., Cepoiu-Martin, M., Ronksley, P. E., Maxwell, C. J. and Hemmelgarn, B. R. (2013). Dementia case management and risk of long-term care placement: A systematic review and meta-analysis. International Journal of Geriatric Psychiatry, 28, 889–902. doi: 10.1002/gps.3906CrossRefGoogle ScholarPubMed
van der Steen, J. T.et al. (2014). White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative Care. Palliative Medicine, 28, 197–209. doi: 10.1177/0269216313493685CrossRefGoogle ScholarPubMed
van der Steen, J. T., Onwuteaka-Philipsen, B. D., Knol, D. L., Ribbe, M. W. and Deliens, L. (2013). Caregivers’ understanding of dementia predicts patients’ comfort at death: A prospective observational study. BMC Medicine 11, 105. doi: 10.1186/1741-7015-11-105CrossRefGoogle ScholarPubMed
van de Ven, G.et al. (2013). Effects of dementia-care mapping on residents and staff of care homes: A pragmatic cluster-randomised controlled trial. PloS One, 8, e67325. doi: 10.1371/journal.pone.0067325CrossRefGoogle ScholarPubMed
World Health Organization. (2018). The top 10 causes of death. Fact sheet N°310. Available at: http://www.who.int/mediacentre/factsheets/fs310/en/; last accessed 15 October 2019.Google Scholar