Hostname: page-component-55f67697df-twqc4 Total loading time: 0 Render date: 2025-05-08T10:06:30.274Z Has data issue: false hasContentIssue false
  • English
  • Français

The association between aspects of daily life and quality of life of people with dementia living in long-term care facilities: a momentary assessment study

Published online by Cambridge University Press:  12 April 2016

Hanneke C. Beerens ,
Bram de Boer ,
Sandra M.G. Zwakhalen ,
Frans E.S. Tan ,
Dirk Ruwaard ,
Jan P.H. Hamers  and
Hilde Verbeek
Hanneke C. Beerens*
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Bram de Boer
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Sandra M.G. Zwakhalen
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Frans E.S. Tan
Affiliation:
Department of Methodology & Statistics, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Dirk Ruwaard
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Jan P.H. Hamers
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
Hilde Verbeek
Affiliation:
Department of Health Services Research, CAPHRI School for Public Health and Primary Care, Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands
*
Correspondence should be addressed to: Hanneke C. Beerens MSc, RN, Department of Health Services Research, CAPHRI School for Public Health and Primary Care Faculty of Health, Medicine and Life Sciences, Maastricht University, Maastricht, the Netherlands. P.O. Box 616, 6200 MD, Maastricht. Phone: +31 43 38 82815. Email: h.beerens@maastrichtuniversity.
Get access

Abstract

Background:

To improve the quality of life (QoL) of people with dementia (PwD) living in long-term care facilities, insight into the association between QoL and how people spend their daily lives is urgently needed. This study investigated which aspects of daily life are related to QoL in dementia.

Methods:

An observational study was conducted. Daily life was assessed with the tablet-based Maastricht Electronic Daily Life Observation-tool (MEDLO-tool). Aspects included activity, engagement in the activity, social interaction, physical effort, mood, and agitation. QoL was assessed by formal nursing caregivers using the Quality of Life-Alzheimer's Disease scale (QoL-AD). A total of 9,660 momentary assessments were conducted.

Results:

The mean age of the 115 participants was 84 years and most (75%) were women. Bivariate analyses showed that residents with a higher QoL carried out less passive/purposeless activities (25% vs. 38%), were more engaged in active, expressive, and social activities, (40% vs. 27%), had more social interaction (34% vs. 22%), and had better mood scores (scale 1–7, 5.0 vs. 4.8), compared with residents with a lower QoL (all p-values < 0.001). Multivariate analyses showed that having more social interaction and a positive mood are related to a higher QoL.

Conclusions:

The results underline the importance of social interaction and a positive mood for a higher QoL. Future research should investigate the importance of engagement in activities in more detail.

Keywords

dementiaquality of lifenursing homeslong-term careneuropsychiatric symptoms
Type
Research Article
Information
International Psychogeriatrics , Volume 28 , Issue 8 , August 2016 , pp. 1323 - 1331
Copyright
Copyright © International Psychogeriatric Association 2016 

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Article purchase

Temporarily unavailable

References

Banerjee, S. et al. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 24, 15–24. Doi: 10.1002/gps.2090.CrossRefGoogle ScholarPubMed
Beerens, H. C., Zwakhalen, S. M., Verbeek, H., Ruwaard, D. and Hamers, J. P. (2013). Factors associated with quality of life of people with dementia in long-term care facilities: a systematic review. International Journal of Nursing Studies, 50, 1259–1270. Doi: 10.1016/j.ijnurstu.2013.02.005.CrossRefGoogle ScholarPubMed
Brodaty, H., Draper, B. and Low, L. F. (2003). Nursing home staff attitudes towards residents with dementia: strain and satisfaction with work. Journal of Advanced Nursing, 44, 583–590. Doi: 10.1046/j.0309-2402.2003.02848.x.CrossRefGoogle ScholarPubMed
Cahill, S. and Diaz-Ponce, A. M. (2011). ‘I hate having nobody here. I'd like to know where they all are’: can qualitative research detect differences in quality of life among nursing home residents with different levels of cognitive impairment?. Aging & Mental Health, 15, 562–572. 10.1080/13607863.2010.551342.CrossRefGoogle ScholarPubMed
de Boer, B., Beerens, H. C., Zwakhalen, S. M. G., Tan, F., Hamers, J. P. H. and Verbeek, H. (2016). Daily lives of people with dementia: development of the Maastricht electronic daily life observation tool. International Psychogeriatrics. Doi: 10.1017/S1041610216000478 CrossRefGoogle ScholarPubMed
de Boer, B., Hamers, J., Beerens, H., Zwakhalen, S., Tan, F. and Verbeek, H. (2015). Living at the farm, innovative nursing home care for people with dementia–study protocol of an observational longitudinal study. BMC Geriatrics, 15, 144. Doi: 10.1186/s12877-015-0141-x.Google ScholarPubMed
de Haan, R., Limburg, M., Schuling, J., Broeshart, J., Jonkers, L. and van Zuylen, P. (1993). Klinimetrische evaluatie van de Barthel-Index, een maat voor beperkingen in het dagelijks leven. Nederlands Tijdschrift voor Geneeskunde, 137, 917–921.Google Scholar
Dröes, R.-M. et al. (2006). Quality of life in dementia in perspective an explorative study of variations in opinions among people with dementia and their professional caregivers, and in literature. Dementia, 5, 533–558. Doi: 10.1177/1471301206069929.CrossRefGoogle Scholar
Edvardsson, D., Petersson, L., Sjogren, K., Lindkvist, M. and Sandman, P. O. (2013). Everyday activities for people with dementia in residential aged care: associations with person-centredness and quality of life. International Journal of Older People Nursing, 9, 269–276. Doi: 10.1111/opn.12030.CrossRefGoogle ScholarPubMed
Ettema, T. P., Droes, R. M., de Lange, J., Mellenbergh, G. J. and Ribbe, M. W. (2005). A review of quality of life instruments used in dementia. Quality of Life Research, 14, 675–686.CrossRefGoogle ScholarPubMed
Giebel, C. M., Challis, D. J. and Montaldi, D. (2014). A revised interview for deterioration in daily living activities in dementia reveals the relationship between social activities and well-being. Dementia, 0, 1–14. Doi: 10.1177/1471301214553614.Google Scholar
Gräske, J., Fischer, T., Kuhlmey, A. and Wolf-Ostermann, K. (2012). Quality of life in dementia care–differences in quality of life measurements performed by residents with dementia and by nursing staff. Aging & Mental Health, 16, 819–827. Doi: 10.1080/13607863.2012.667782.CrossRefGoogle ScholarPubMed
Kolanowski, A. and Litaker, M. (2006). Social interaction, premorbid personality, and agitation in nursing home residents with dementia. Archives of Psychiatric Nursing, 20, 12–20. Doi: 10.1016/j.apnu.2005.08.006.CrossRefGoogle ScholarPubMed
Kuhn, D., Edelman, P. and Fulton, B. R. (2005). Daytime sleep and the threat to well-being of persons with dementia. Dementia, 4, 233–247. Doi: 10.1177/1471301205051094.CrossRefGoogle Scholar
Lawton, M. P. (1994). Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 8, 138–150.CrossRefGoogle ScholarPubMed
Logsdon, R. G., Gibbons, L. E., McCurry, S. M. and Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510–519.CrossRefGoogle ScholarPubMed
Molloy, D. W., Alemayehu, E. and Roberts, R. (1991). Reliability of a standardized mini-mental state examination compared with the traditional mini-mental state examination. American Journal of Psychiatry, 148, 102–105.Google ScholarPubMed
Moniz-Cook, E. et al. (2008). A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging & Mental Health, 12, 14–29. Doi: 10.1080/13607860801919850.CrossRefGoogle ScholarPubMed
Morley, J. E. et al. (2014a). International survey of nursing home research priorities. Journal of the American Medical Directors Association, 15, 309–312. Doi: 10.1016/j.jamda.2014.03.003.CrossRefGoogle ScholarPubMed
Morley, J. E., Philpot, C. D., Gill, D. and Berg-Weger, M. (2014b). Meaningful activities in the nursing home. Journal of the American Medical Directors Association, 15, 79–81. Doi: 10.1016/j.jamda.2013.11.022.CrossRefGoogle ScholarPubMed
Moyle, W. et al. (2011). Factors influencing quality of life for people with dementia: a qualitative perspective. Aging & Mental Health, 15, 970–977. Doi: 10.1080/13607863.2011.583620.CrossRefGoogle ScholarPubMed
Perkins, G. and Nolan, M. (1992). Purposeful activity as an indicator of quality in the care of elderly patients. British Journal of Nursing, 2, 197–201.CrossRefGoogle Scholar
Phinney, A., Chaudhury, H. and O'Connor, D. L. (2007). Doing as much as I can do: the meaning of activity for people with dementia. Aging & Mental Health, 11, 384–393. Doi: 10.1080/13607860601086470.CrossRefGoogle Scholar
Shiffman, S., Stone, A. A. and Hufford, M. R. (2008). Ecological momentary assessment. Annual Review of Clinical Psychology, 4, 1–32. doi: 10.1146/annurev.clinpsy.3.022806.091415.CrossRefGoogle ScholarPubMed
Smit, D., de Lange, J., Willemse, B., Twisk, J. and Pot, A. M. (2016). Activity involvement and quality of life of people at different stages of dementia in long term care facilities. Aging & Mental Health, 20, 100–109. Doi: 10.1080/13607863.2015.1049116.CrossRefGoogle ScholarPubMed
Smit, D., Willemse, B., de Lange, J. and Pot, A. M. (2014). Wellbeing-enhancing occupation and organizational and environmental contributors in long-term dementia care facilities: an explorative study. International Psychogeriatrics, 26, 69–80. Doi: 10.1017/S1041610213001397.CrossRefGoogle ScholarPubMed
Thorgrimsen, L. et al. (2003). Whose quality of life is it anyway? the validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Disease and Associated Disorders, 17, 201–208.CrossRefGoogle ScholarPubMed
van der Ploeg, E. S., Eppingstall, B., Camp, C. J., Runci, S. J., Taffe, J. and O'Connor, D. W. (2013). A randomized crossover trial to study the effect of personalized, one-to-one interaction using Montessori-based activities on agitation, affect, and engagement in nursing home residents with dementia. International Psychogeriatrics, 25, 565–575. doi: 10.1017/S1041610212002128.CrossRefGoogle Scholar
Ward, R., Vass, A. A., Aggarwal, N., Garfield, C. and Cybyk, B. (2008). A different story: exploring patterns of communication in residential dementia care. Ageing & Society, 28, 629–651. Doi: 10.1017/S0144.686x07006927.CrossRefGoogle Scholar
Zuidema, S. U., Derksen, E., Verhey, F. R. J. and Koopmans, R. T. C. M. (2007). Prevalence of neuropsychiatric symptoms in a large sample of Dutch nursing home patients with dementia. International Journal of Geriatric Psychiatry, 22, 632–638. Doi: 10.1002/gps.1722.CrossRefGoogle Scholar