Hostname: page-component-cd9895bd7-hc48f Total loading time: 0 Render date: 2024-12-22T17:06:52.041Z Has data issue: false hasContentIssue false
  • English
  • Français

Quality of Life: Organ Transplantation and Artificial Organs

Published online by Cambridge University Press:  10 March 2009

Lois K. Christopherson
Lois K. Christopherson
Affiliation:
Stanford University
Get access Rights & Permissions [Opens in a new window]

Extract

This article describes issues that are clinically significant when assessing quality of life of patients whose organ disease can be treated only through transplantation or reliance upon an artificial organ. Emphasis is placed on stresses that affect the family as well as the immediate patient, because, over time, these are inextricably interwoven. The transplant recipient who experiences a “good” medical outcome may perceive that he has little to live for if his family is severely disrupted or broken apart by the strain of the illness. The family of a patient who dies after unremitting complications while being sustained by an artificial organ may experience both relief at the lifting of an unmanageable burden, and continuing guilt that they were unable to provide unconditional love and support to a dying family member.

Type
Special Section: Transplantation and Artificial Organs
Information
International Journal of Technology Assessment in Health Care , Volume 2 , Issue 3 , July 1986 , pp. 553 - 562
Copyright
Copyright © Cambridge University Press 1986

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

REFERENCES

1.Abram, H. S., Moore, G. L., & Westervelt, F. B. JrSuicidal behavior in chronic dialysis patients. American Journal of Psychiatry 1971, 127, 1119–204.CrossRefGoogle ScholarPubMed
2.Berenson, C. K., & Grosser, B. I.Total artificial heart implantation. Archives of General Psychiatry, 1984, 41, 910–16.CrossRefGoogle ScholarPubMed
3.Buxton, M., Acheson, R., Caine, N., Gibson, S., & O'Brien, B.Costs and benefits of the heart transplant programmes at Harefield and Papworth Hospitals. London: Her Majesty's Stationery Office. 1985.Google Scholar
4.Christopherson, L. K.Cardiac transplantation: preparation for dying or for living. Health and Social Work, 1976, 1, 58–72.CrossRefGoogle ScholarPubMed
5.Christopherson, L. K., & Gonda, T. A.Patterns of grief: end stage renal failure and kidney transplantation. Journal of Thanatology, 1975, 3, 49–57.Google Scholar
6.Christopherson, L. K., Griepp, R. B., & Stinson, E. B.Rehabilitation after cardiac transplantation. Journal of the American Medical Association, 1976, 236, 2082–84.CrossRefGoogle ScholarPubMed
7.DeVries, W. C., Anderson, J. L., Joyce, L. D., Anderson, F. L., Hammond, E. H., Jarvik, R. K., & Kolff, W. J.Clinical use of the total artificial heart. The New England Journal of Medicine, 1984, 310, 273–78.CrossRefGoogle ScholarPubMed
8.Evans, R. W., Hart, L. G., & Manninen, D. L.A comparative assessment of the quality of life of successful kidney transplant patients according to source of graft. Transplantation Proceedings, 1984, 16, 1353–58.Google ScholarPubMed
9.Evans, R. W., Manninen, D. L., Garrison, L. P. Jr, Hart, L. G., Blagg, C. R., Gutman, R. A., Hull, A. R., & Lowrie, E. G.The quality of life of patients with end-stage renal disease. The New England Journal of Medicine, 1985, 312, 553–59.CrossRefGoogle ScholarPubMed
10.Forslund, T., Hortling, L., Timonen, T., & Laasonen, L.Two primary lung malignancies after a successful kidney transplantation. Ada Radiologica Oncology, 1984, 23, 411–14.CrossRefGoogle ScholarPubMed
11.Flechner, S. M., Novick, A. C., Braun, W. E., Popowniak, K. L., & Steinmuller, D.Functional capacity and rehabilitation of recipients with a functioning renal allograft for ten years or more. Transplantation, 1983, 35, 572–76.CrossRefGoogle ScholarPubMed
12.Gaffney, F. A., & Fenton, B. J.Barney, B. Clark, DDS. Archives of General Psychiatry, 1984, 41, 917–18.CrossRefGoogle ScholarPubMed
13.Gartner, J. C. Jr, Zitelli, B. J., Malatack, J. J., Shaw, B. W., Iwatsuki, S., & Starzl, T. E.Orthotopic liver transplantation in children: Two-year experience with 47 patients. Pediatrics, 1984, 74, 140–45.CrossRefGoogle ScholarPubMed
14.Goldstein, A. M., & Reznikoff, M.Suicide in chronic hemodialysis patients from an external locus of control framework. American Journal of Psychiatry, 1971, 127, 124–27.CrossRefGoogle ScholarPubMed
15.House, R., Dubovsky, S. L., & Penn, I.Psychiatric aspects of hepatic transplantation. Transplantation, 1983, 36, 146–50.CrossRefGoogle ScholarPubMed
16. Kubler-Ross, E.On death and dying. New York: The Macmillan Company, 1969.Google Scholar
17.Lanza, R. P., Cooper, D. K. C., Cassidy, M. J. D., & Barnard, C. N.Malignant neoplasms occurring after cardiac transplantation. Journal of the American Medical Association, 1983, 249, 1746–48.CrossRefGoogle ScholarPubMed
18. Lubeck, D. P., & Bunker, J. P.Case study #9: the artificial heart: costs, risks, and benefits. Washington, DC: U.S. Government Printing Office, 1982.Google Scholar
19.McKegney, F. P., & Lange, P.The decision no longer to live on chronic hemodialysis. Americal Journal of Psychiatry, 1971, 128, 267–74.CrossRefGoogle ScholarPubMed
20. National Heart, Lung, and Blood Institute. Working Group on Mechanical Circulatory Support. Artificial heart and assist devices: directions, needs, costs, societal and ethical issues. Bethesda, MD: National Heart, Lung, and Blood Institute, 1985.Google Scholar
21.Neu, S. N., & Kjellstrand, C. M.Stopping long term dialysis: An empirical study of withdrawal of life-supporting treatment. The New England Journal of Medicine, 1986, 314, 14–20.CrossRefGoogle ScholarPubMed
22. Poole, V.Thursday's Child. Boston: Little, Brown, and Company, 1980.Google Scholar
23.Reitz, B. A., & Stinson, E. B.Cardiac transplantation–1982. Journal of the American Medical Association, 1982, 248, 1225–27.CrossRefGoogle ScholarPubMed
24.Samuelsson, R. G., Hunt, S. A., & Schroeder, J. S.Functional and social rehabilitation of heart transplant recipients under age thirty. Scandanavian Journal of Thoracic and Cardiovascular Surgery, 1984, 18, 97–103.CrossRefGoogle ScholarPubMed
25.Scharschmidt, B. F.Human liver transplantation: analysis of data on 540 patients from four centers. Hepatology, 1984, 4, 958–1018.CrossRefGoogle ScholarPubMed
26.Simmons, R. G., Anderson, C., & Kamstra, L.Comparison of quality of life of patients on continuous ambulatory peritoneal dialysis, hemodialysis, and after transplantation. American Journal of Kidney Diseases, 1984, 4, 253–55.CrossRefGoogle ScholarPubMed
27.Tarter, R. E., Van Thiel, D. H., Hedegus, A. M., Schade, R. R., Galaver, J. S., & Starzl, T. E.Neuropsychiatric status after liver transplantation. Journal of Laboratory' and Clinical Medicine, 1984, 103, 776–82.Google ScholarPubMed
28.Wallis, C.Implants: a family affair. Time, 1985, 126, 73.Google Scholar
29.Woolley, F. R.Ethical issues in the implantation of the total artificial heart. The New England Journal of Medicine, 1984, 310, 292–96.CrossRefGoogle ScholarPubMed