Hostname: page-component-cd9895bd7-lnqnp Total loading time: 0 Render date: 2024-12-26T22:16:20.090Z Has data issue: false hasContentIssue false

Needing to Acquire a Physical Impairment/Disability: (Re)Thinking the Connections between Trans and Disability Studies through Transability

Published online by Cambridge University Press:  08 September 2014

Abstract

This article discusses the acquisition of a physical impairment/disability through voluntary body modification, or transability. From the perspectives of critical genealogy and feminist intersectional analysis, the article considers the ability and cis*/trans* axes in order to question the boundaries between trans and transabled experience and examines two assumptions impeding the conceptualization of their placement on the same continuum: 1) trans studies assumes an able‐bodied trans identity and able‐bodied trans subject of analysis; and 2) disability studies assumes a cis* disabled identity. The perception of transsexuality and transability as mutually exclusive phenomena results from a nonintersectional analysis of transsexuality as an issue of sex/gender, but not of ability, and of transability as an issue of ability, but not of sex/gender. Difficulty recognizing continuities between these phenomena thus stems from an ableist interpretation of sex/gender and a cis(gender)normative* interpretation of ability. This article aims to: 1) enrich intersectional analysis in trans and disability studies and transability scholarship; 2) complicate disability studies, in which disabilities are often presumed to be “involuntary,” and encourage the decentering of a cis* subject; 3) encourage trans studies to decenter an able‐bodied subject; and 4) advocate for increased dialogue and the creation of alliances between trans and disability studies and movements.

Type
Articles
Copyright
Copyright © 2015 by Hypatia, Inc.

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

Previous versions of this paper were presented in July 2012 at the European Association of Social Anthropologists Biennial Conference and in May 2014 at the Sexuality Studies Association Conference. I would like to thank the two anonymous reviewers of this article for their helpful insights and Kim Hall for her invaluable contribution throughout the publication process. I would also like to thank the Social Sciences and Humanities Research Council (SSHRC) for its generous support.

References

American Psychiatric Association (APA). 2013. Diagnostic and statistical manual of mental disorders, 5th ed. (DSM‐5). Washington, D.C.: APA.Google Scholar
Baril, Alexandre. 2013. La normativité corporelle sous le bistouri: Une analyse intersectionnelle de la transsexualité et de la transcapacité pour (re)penser les solidarités entre les études féministes, trans et sur le handicap. PhD thesis, Institute of Women's Studies, University of Ottawa, Ottawa. https://www.academia.edu/5087232/La_normativite_corporelle_sous_le_bistouri_re_penser_lintersectionnalite_et_les_solidarites_entre_les_etudes_feministes_trans_et_sur_le_handicap_a_travers_la_transsexualite_et_la_transcapacite (accessed December 10, 2013).Google Scholar
Baril, Alexandre, and Trevenen, Kathryn. 2014a. Exploring ableism and cisnormativity in the conceptualization of identity and sexuality “disorders”. Annual Review of Critical Psychology (11): 389416.Google Scholar
Baril, Alexandre, and Trevenen, Kathryn. 2014b Transformations “extrêmes”: Le cas de l'acquisition volontaire de handicaps pour (re)penser les solidarités entre les mouvements sociaux. Recherches Féministes 27 (1): 4968.CrossRefGoogle Scholar
Bayne, Tim, and Levy, Neil. 2005. Amputees by choice: Body integrity identity disorder and the ethics of amputation. Journal of Applied Philosophy 22 (1): 7586.CrossRefGoogle ScholarPubMed
BBC. 2000. Complete obsession. London. http://www.bbc.co.uk/science/horizon/1999/obsession_script.shtml (accessed August 10, 2013).Google Scholar
Bell, Chris. 2010. Is disability studies actually white disability studies? In The disability studies reader, ed. Davis, L. J. New York: Routledge.Google Scholar
Bennett, Theodore. 2011. It's but a flesh wound: Criminal law and the conceptualisation of healthy limb amputation. Alternative Law Journal 36 (3): 158–62.CrossRefGoogle Scholar
BIID info. 2013. http://biid-info.org/Main_Page (accessed August 10, 2013).Google Scholar
Blanchard, Ray. 2003. Theoretical and clinical parallels between body integrity identity disorder and gender identity disorder. Paper, Third Annual International BIID Conference, Columbia University, New York.Google Scholar
Blanchard, Ray. 2008. Deconstructing the feminine essence narrative. Archives of Sexual Behavior 37 (3): 434–38.CrossRefGoogle ScholarPubMed
Blom, Rianne M., Hennekam, Raoul C., and Denys, Damiaan. 2012. Body integrity identity disorder. Plos One 7 (4): 16.CrossRefGoogle ScholarPubMed
Braam, A. W., et al. 2006. Investigation of the syndrome of apotemnophilia and course of a cognitive‐behavioural therapy. Psychopathology 39 (1): 3237.CrossRefGoogle ScholarPubMed
Bridy, Annemarie. 2004. Confounding extremities: Surgery at the medico‐ethical limits of self‐modification. Journal of Law, Medicine & Ethics 32 (1): 148–58.CrossRefGoogle Scholar
Clare, Eli. 2009. Exile and pride: Disability, queerness, and liberation, 2nd ed. New York: South End Press.Google Scholar
Clare, Eli. 2013. Body shame, body pride: Lessons from the disability rights movement. In The transgender studies reader, ed. Stryker, S. and Aizura, A. Z. New York: Routledge.Google Scholar
Conway, Lynn. 2004. With the theory of autogynephilia in disarray, Blanchard and Lawrence propose a theory that transsexualism is an “amputation fetish,” by “lumping” GID, BIID and apotemnophilia. http://www.ai.eecs.umich.edu/people/conway/TS/Bailey/BIID/BIID.html (accessed August 10, 2013).Google Scholar
Crenshaw, Kimberlé. 1989. Demarginalizing the intersection of race and sex: A black feminist critique of discrimination doctrine, feminist theory, and antiracist practice. University of Chicago Legal Forum 89: 139–67.Google Scholar
Davis, Jenny. 2012. Narrative construction of a ruptured self: Stories of transability on Transabled.org. Sociological Perspectives 55 (2): 319–40.CrossRefGoogle Scholar
Davis, Kathy. 2009. Revisiting feminist debates on cosmetic surgery: Some reflections on suffering, agency, and embodied difference. In Cosmetic surgery: A feminist primer, ed. Heyes, C. J. and Jones, M. Farnham, UK: Ashgate.Google Scholar
Davis, Lennard J. 2000. Gaining a daughter: A father's transgendered tale. The Chronicle Review March 24. http://chronicle.com/article/Gaining-a-Daughter-a/10529 (accessed May 14, 2014).Google Scholar
Davis, Lennard J. ed. 2010. The disability studies reader. 3rd ed. New York: Routledge.Google Scholar
Elliott, Carl. 2003. Amputees by choice. In Better than well: American medicine meets the American dream. New York: Norton.Google Scholar
Elliott, Tracey. 2009. Body dismorphic disorder, radical surgery and the limits of consent. Medical Law Review 17 (2): 149–82.CrossRefGoogle Scholar
Enke, Anne Finn. 2012. The education of little cis: Cisgender and the discipline of opposing bodies. In Transfeminist perspectives in and beyond transgender and gender studies, ed. Enke, A. Philadelphia: Temple University Press.Google Scholar
Feinberg, Leslie. 2006. Transgender liberation: A movement whose time has come. In The transgender studies reader, ed. Stryker, S. and Whittle, S. New York: Routledge.Google Scholar
First, Michael B. 2005. Desire for amputation of a limb: Paraphilia, psychosis, or a new type of identity disorder. Psychological Medicine 35 (6): 919–28.CrossRefGoogle ScholarPubMed
First, Michael B., and Fisher, Carl E. 2012. Body integrity identity disorder: The persistent desire to acquire a physical disability. Psychopathology 45 (1): 314.CrossRefGoogle ScholarPubMed
Foucault, Michel. 1976. Histoire de la sexualité: La volonté de savoir. Paris: Gallimard.Google Scholar
Foucault, Michel. 2001. Dits et écrits II: 1976–1988. Paris: Gallimard.Google Scholar
Furth, Gregg M., and Smith, Robert C. 2002. Amputee identity disorder. New York: 1st Books.Google Scholar
Garland‐Thomson, Rosemarie. 2002. Integrating disability, transforming feminist theory. NWSA Journal 14 (3): 132.CrossRefGoogle Scholar
Gilbert, Melody. 2003. Whole. US. DVD, 56 min.Google Scholar
Hale, C. Jacob. 1998. Consuming the living, dis(re)membering the dead in the butch/ftm borderlands. GLQ 4 (2): 311–48.CrossRefGoogle Scholar
Hall, Kim Q. 2009. Queer breasted experience. In “You've changed.” Sex reassignment and personal identity, ed. Shrage, L. J. Oxford: Oxford University Press.Google Scholar
Hall, Kim Q., ed. 2011. Feminist disability studies. Bloomington and Indianapolis: Indiana University Press.Google Scholar
Heyes, Cressida J. 2006. Changing race, changing sex: The ethics of self‐transformation. Journal of Social Philosophy 37 (2): 266–82.CrossRefGoogle Scholar
Irving, Dan. 2008. Normalized transgressions: Legitimizing the transsexual body as productive. Radical History Review 100: 3859.CrossRefGoogle Scholar
Johnston, Josephine, and Elliott, Carl. 2002. Healthy limb amputation: Ethical and legal aspects. Clinical Medicine 2 (5): 431–35.CrossRefGoogle ScholarPubMed
Kafer, Alison. 2011. Debating feminist futures: Slippery slopes, cultural anxiety, and the case of the deaf lesbians. In Feminist disability studies, ed. Hall, K. Bloomington and Indianapolis: Indiana University Press.Google Scholar
Koyama, Emi. 2006. Whose feminism is it anyway? The unspoken racism of the trans inclusion debate. In The transgender studies reader, ed. Stryker, S. and Whittle, S. New York: Routledge.Google Scholar
Lane, Harlan. 2010. Construction of deafness. In The disability studies reader, ed. Davis, L. J. 3rd ed. New York: Routledge.Google Scholar
Lawrence, Anne A. 2003. BIID and GID: Paraphilia, identity, and access to care. Paper, Third Annual International BIID Conference, Columbia University, New York.Google Scholar
Lawrence, Anne A. 2004. Autogynephilia: A paraphilic model of gender identity disorder. Journal of Gay and Lesbian Psychotherapy 8 (1/2): 6987.Google Scholar
Lawrence, Anne A. 2006. Clinical and theoretical parallels between desire for limb amputation and gender identity disorder. Archives of Sexual Behavior 35 (3): 263–78.CrossRefGoogle ScholarPubMed
MacKenzie, Robin. 2008. Somatechnics of medico‐legal taxonomies: Elective amputation and transableism. Medical Law Review 16 (3): 390412.CrossRefGoogle ScholarPubMed
Mackenzie, Robin, and Cox, Stephen. 2006. Transableism, disability and paternalism in public health ethics: Taxonomies, identity disorders and persistent unexplained physical symptoms. International Journal of Law in Context 2 (4): 363–75.CrossRefGoogle Scholar
Marie. 2007. A comparison between transsexuality and transableism. http://transabled.org/thoughts/a-comparison-between-transsexuality-and-transableism.htm (accessed August 10, 2013).Google Scholar
McGeoch, Paul D., et al. 2011. Xenomelia: A new right parietal lobe syndrome. Journal of Neurology, Neurosurgery & Psychiatry 82: 1314–19.CrossRefGoogle ScholarPubMed
McRuer, Robert. 2006. Crip theory. New York: New York University Press.Google Scholar
McRuer, Robert, and Mollow, Anna, eds. 2012. Sex and disability. Durham, N.C., and London: Duke University Press.Google Scholar
Meekosha, Helen. 2006. What the hell are you? An intercategorical analysis of race, ethnicity, gender and disability in the Australian body politic. Scandinavian Journal of Disability Research 8 (2/3): 161–76.CrossRefGoogle Scholar
Money, John, Jobaris, Russell, and Furth, Gregg. 1977. Apotemnophilia: Two cases of self‐demand amputation as a paraphilia. Journal of Sex Research 13 (2): 115–25.CrossRefGoogle Scholar
Money, John, and Simcoe, K. W. 1986. Acrotomophilia, sex, and disability: New concepts and case report. Sexuality and Disability 7 (1/2): 4350.CrossRefGoogle Scholar
Müller, Sabine. 2009. Body integrity identity disorder (BIID): Is the amputation of healthy limbs ethically justified? American Journal of Bioethics 9 (1): 3643.CrossRefGoogle ScholarPubMed
Namaste, Viviane K. 2000. Invisible lives: The erasure of transsexual and transgendered people. Chicago: University of Chicago Press.Google Scholar
Nicki, Andrea. 2001. The abused mind: Feminist theory, psychiatric disability, and trauma. Hypatia 16 (4): 80104.CrossRefGoogle Scholar
Nieder, Timo O., and Richter‐Appelt, Hertha. 2009. Parallels and differences between gender identity disorders (GID) and body integrity identity disorder (BIID) and implications for research and treatment of BIID. In Body integrity identity Disorder, ed. Stirn, A., Thiel, A. and Oddo, S. Lengerich, Germany: PABST Science Publishers.Google Scholar
Noble, Jean Bobby. 2006. Sons of the movement. Toronto: Women's Press.Google Scholar
O'Connor, Sean. 2009. My life with BIID. In Body integrity identity disorder, ed. Stirn, A., Thiel, A. and Oddo, S. Lengerich, Germany: PABST Science Publishers.Google Scholar
Patronne, D. 2009. Disfigured anatomies and imperfect analogies: Body integrity identity disorder and the supposed right to self‐demanded amputation of healthy body parts. Journal of Medical Ethics 35 (9): 541–45.Google Scholar
Pitts‐Taylor, Victoria. 2003. In the flesh: The cultural politics of body modification. New York: Palgrave MacMillan.CrossRefGoogle Scholar
Richardson, Niall. 2010. Transgressive bodies. Farnham: Ashgate.Google Scholar
Roth, Roswith. 2009. Consent to an elective amputation: Response of students and experts. In Body integrity identity disorder, ed. Stirn, A., Thiel, A. and Oddo, S. Lengerich, Germany: PABST Science Publishers.Google Scholar
Ryan, Christopher James. 2009. Out on a limb: The ethical management of body integrity identity disorder. Neuroethics 2 (1): 2133.CrossRefGoogle Scholar
Serano, Julia. 2007. Whipping girl: A transsexual woman on sexism and the scapegoating of femininity. Berkeley: Seal Press.Google Scholar
Silvers, Anita. 2009. Feminist perspectives on disability. In Stanford Encyclopedia of Philosophy, ed. Zalta, E. N. Stanford: The Metaphysics Research Lab/Stanford University.Google Scholar
Smith, Robert C. 2004. Amputee identity disorder and related paraphilias. Psychiatry 3 (8): 2730.CrossRefGoogle Scholar
Smith, Robert C. 2009. Body integrity identity disorder: The surgeon's perspective. In Body integrity identity disorder, ed. Stirn, A., Thiel, A. and Oddo, S. Lengerich, Germany: PABST Science Publishers.Google Scholar
Spade, Dean. 2011. Normal life. New York: South End Press.Google Scholar
Stirn, Aglaja, Thiel, Aylin, and Oddo, Silvia (eds.). 2009. Body integrity identity disorder. Lengerich, Germany: PABST Science Publishers.Google Scholar
Stryker, Susan, Currah, Paisley, and Moore, Lisa Jean. 2008. Introduction: Trans‐, trans, or transgender? Women's Studies Quarterly 36 (3–4): 1122.CrossRefGoogle Scholar
Stryker, Susan, and Sullivan, Nikki. 2009. King's member, queen's body: Transsexual surgery, self‐demand amputation and the somatechnics of sovereign power. In Somatechnics: Queering the technologisation of bodies, ed. Sullivan, N. and Murray, S. Farnham, UK: Ashgate.Google Scholar
Stryker, Susan, and Whittle, Stephen (eds.). 2006. The transgender studies reader. New York: Routledge.Google Scholar
Sullivan, Nikki. 2005. Integrity, mayhem, and the question of self‐demand amputation. Continuum: Journal of Media & Culture Studies 19 (3): 325–33.CrossRefGoogle Scholar
Sullivan, Nikki. 2008a. Dis‐orienting paraphilias? Disability, desire, and the question of (bio)ethics. Journal of Bioethical Inquiry 5 (2/3): 183–92.CrossRefGoogle Scholar
Sullivan, Nikki. 2008b. The role of medicine in the (trans)formation of “wrong” bodies. Body & Society 14 (1): 105–16.CrossRefGoogle Scholar
Tewksbury, Richard. 2006. “Click here for HIV”: An analysis of internet‐based bug chasers and bug givers. Deviant Behavior 27 (4): 379–95.CrossRefGoogle Scholar
Thiel, Aylin, et al. 2009. Psychotherapy and psychometric research with BIID‐sufferers. In Body integrity identity disorder, ed. Stirn, A., Thiel, A. and Oddo, S. Lengerich, Germany: PABST Science Publishers.Google Scholar
Transabled.org. 2013. http://transabled.org/ (accessed August 10, 2013).Google Scholar
Valentine, David. 2007. Imagining transgender: An ethnography of a category. Durham, N.C.: Duke University Press.Google Scholar
Vidal‐Ortiz, Salvador. 2002. Queering sexuality and doing gender: Transgender men's identification with gender and sexuality. In Gendered sexualities, ed. Gagne, P. and Tewksbury, R. Kidlington, UK: Elsevier Science.Google Scholar
Wendell, Susan. 1989. Toward a feminist theory of disability. Hypatia 4 (2): 104–24.CrossRefGoogle Scholar
Wendell, Susan. 1996. The rejected body. New York: Routledge.Google Scholar
Wendell, Susan. 2001. Unhealthy disabled: Treating chronic illnesses as disabilities. Hypatia 16 (4): 1733.CrossRefGoogle Scholar
Wilkerson, Abby. 2002. Disability, sex radicalism, and political agency. NWSA Journal 14 (3): 3357.CrossRefGoogle Scholar
Zane, Kathleen. 2003. Reflections on a yellow eye: Asian i(/eye/)cons and cosmetic surgery. In The feminism and visual culture reader, ed. Jones, A. New York: Routledge.Google Scholar