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Building Bridges with Accessible Care: Disability Studies, Feminist Care Scholarship, and Beyond

Published online by Cambridge University Press:  11 March 2020

Christine Kelly
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Abstract

This article uses elements of autoethnography to theorize an in/formal support relationship between a friend with a physical disability, who uses attendant services, and me. Through thinking about our particular “frien‐tendant” relationship, I find the common scholarly orientations toward “care” are inadequate. Starting from the conversations between feminist and disability perspectives on care, I build on previous work to further develop the theoretical framework of accessible care. Accessible care takes a critical, engaged approach that moves beyond understanding “accessibility” as merely concrete solutions to create more inclusive forms of care. Care, in this context, is positioned as an unstable tension among competing definitions, including that it is a complex form of oppression. Accessible care draws on feminist disability perspectives and the feminist political ethic of care to build bridges in four areas: from daily experiences of disability and support to theoretical discussions; across feminist care research and disability perspectives; across divisions and anxieties within disability communities; and from the local to transnational applications. These bridges do not aim to resolve debates but allow us to travel back and forth between differing perspectives and demonstrate the tenuous possibility of accessible practices and concepts of care.

Type
Open Issue Content
Information
Hypatia , Volume 28 , Issue 4 , Fall 2013 , pp. 784 - 800
Copyright
Copyright © 2013 by Hypatia, Inc.

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Footnotes

Thanks go to Hugh Armstrong, Pauline Rankin, Roy Hanes, Sally Chivers, the anonymous reviewers, and of course, “Killian.” Scholarships and funding from Carleton University, the Social Sciences and Humanities Research Council, and the Ontario Ministry of Training, Colleges and Universities were essential to producing this article.

References

ADAPT Free our people! 2010. http://www.adapt.org (accessed May 10, 2010).Google Scholar
Arenas Conejo, Míriam. 2011. Disabled women and transnational feminisms: Shifting boundaries and frontiers. Disability & Society 26 (5): 597–609.CrossRefGoogle Scholar
Barnes, Marian. 2006. Caring and social justice. New York: Palgrave Macmillan.CrossRefGoogle Scholar
Beatty, Phillip W., Richmond, Gordon W., Tepper, Sherri, and DeJong, Gerben. 1998. Personal assistance for people with physical disabilities: Consumer‐direction and satisfaction with services. Archives of Physical Medical Rehabilitation 79 (6): 674–77.CrossRefGoogle ScholarPubMed
Beckett, Clare. 2007. Women, disability, care: Good neighbours or uneasy bedfellows? Critical Social Policy 27 (3): 360–80.CrossRefGoogle Scholar
Centre for Independent Living in Toronto. 2010. http://www.cilt.ca (accessed November 25, 2010).Google Scholar
Charlton, James I. 1998. Nothing about us without us: Disability oppression and empowerment. Berkeley: University of California Press.CrossRefGoogle Scholar
Clare, Eli. 1999. Exile & pride: Disability, queerness, and liberation. Cambridge, Mass.: South End Press.Google Scholar
Clement, Grace. 1996. Care, autonomy, and justice: Feminism and the ethic of care. Boulder, Colo.: Westview Press.Google Scholar
Collins, Patrica Hill. 2009. Black feminist thought: Knowledge, consciousness, and the politics of empowerment. New York: Routledge Classics.Google Scholar
Daly, Mary. 2002. Care as a good for social policy. Journal of Social Policy 31 (2): 251–70.CrossRefGoogle Scholar
Davis, Lennard J. 1995. Enforcing normalcy: Disability, deafness, and the body. New York: Verso.Google Scholar
Deal, Mark. 2003. Disabled people's attitudes toward other impairment groups: A hierarchy of impairments. Disability & Society 18 (7): 897–910.CrossRefGoogle Scholar
Douglas, Patty. 2010. The paradox of “care”: Disability studies’ challenge. Paper delivered at Society for Disability Studies Conference. June 2–5. Philadelphia.Google Scholar
Duffy, Mignon. 2005. Reproducing labor inequalities: Challenges for feminists conceptualizing care at the intersections of gender, race, and class. Gender & Society 19 (1): 66–82.CrossRefGoogle Scholar
Ellis, Carolyn. 2007. Telling secrets, revealing lives. Qualitative Inquiry 13 (1): 3–29.CrossRefGoogle Scholar
Erevelles, Nirmala. 2006. Disability in the new world order. In Color of violence: The Incite! anthology, edited by Incite! Women of Color against Violence. Cambridge, Mass.: South End Press.Google Scholar
Erevelles, Nirmala. 2011. Disability and difference in global contexts: Enabling a transformative body politic. New York: Palgrave Macmillan.CrossRefGoogle Scholar
Erickson, Loree. 2007. Revealing femmegimp: A sex‐positive reflection on sites of shame as sites of resistance for people with disabilities. Atlantis 31 (2): 42–52.Google Scholar
Fine, Michael D. 2007. A caring society? Care and dilemmas of human service in the 21st century. New York: Palgrave Macmillan.Google Scholar
Fine, Michelle. 1992. Disruptive voices: The possibilities of feminist research. Ann Arbor: University of Michigan Press.CrossRefGoogle Scholar
Fineman, Martha Albertson. 2004. The autonomy myth: A theory of dependency. New York: The New Press.Google Scholar
Fritsch, Kelly. 2010. Intimate assemblages: Disability, intercorporeality, and the labour of attendant care. Critical Disability Discourse/Discours Critiques dans le Champ du Handicap http://pi.library.yorku.ca/ojs/index.php/cdd/article/viewFile/23854/28098 (accessed June 12, 2012).Google Scholar
Garland‐Thomson, Rosemarie. 2002. Integrating disability, transforming feminist theory. NWSA Journal 14 (3): 1–32.CrossRefGoogle Scholar
Garland‐Thomson, Rosemarie. 2011. Misfits: A feminist materialist disability concept. Hypatia 26 (3): 591–609.CrossRefGoogle Scholar
Ghai, Anita. 2002. Disability in the Indian context: Post‐colonial perspectives. In Disability/Postmodernity: Embodying disability theory, ed. Corker, Mairian and Shakespeare, Tom. New York: Continuum.Google Scholar
Gibson, Barbara. 2006. Disability, connectivity and transgressing the autonomous body. Journal of Medical Humanities 27 (3): 187–96.CrossRefGoogle ScholarPubMed
Gibson, Barbara E., Brooks, Dina, DeMatteo, Dale, and King, Audrey. 2009. Consumer‐directed personal assistance and “care”: Perspectives of workers and ventilator users. Disability & Society 24 (3): 317–30.CrossRefGoogle Scholar
Gilligan, Carol. 1982. In a different voice: Psychological theory and women's development. Cambridge, Mass.: Harvard University Press.Google Scholar
Hillyer, Barbara. 1993. Feminism and disability. Norman: University of Oklahoma Press.Google Scholar
Hochschild, Arlie Russell. 2000. Global care chains and emotional surplus value. In On the edge: Living with global capitalism, eds. Hutton, Will and Giddens, Anthony. London: Jonathan Cape.Google Scholar
Hondagneu‐Sotelo, Pierrette. 2007. Doméstica: Immigrant workers cleaning & caring in the shadows of affluence. Berkeley: University of California Press.Google Scholar
Hughes, Bill, McKie, Linda, Hopkins, Debra, and Watson, Nick. 2005. Love's labours lost? Feminism, the disabled people's movement and an ethic of care. Sociology 39 (2): 259–75.CrossRefGoogle Scholar
Kelly, Christine. 2011. Making “care” accessible: Personal assistance for disabled people and the politics of language. Critical Social Policy 31 (4): 562–82.CrossRefGoogle Scholar
Kelly, Christine. 2012. Re/moving care: Making care accessible through the Ontario Direct Funding program. PhD dissertation, School of Canadian Studies, Carleton University, Ottawa, Ont.Google Scholar
Kittay, Eva Feder. 1999. Love's labor: Essays on women, equality, and dependency. New York: Routledge.Google Scholar
Kittay, Eva Feder. 2002. When caring is just and justice is caring: Justice and mental retardation. In The subject of care: Feminist perspectives on dependency, eds. Kittay, Eva Feder and Feder, Ellen K.New York: Rowman & Littlefield Publishers.Google Scholar
Kröger, Teppo. 2009. Care research and disability studies: Nothing in common? Critical Social Policy 29 (3): 398–420.CrossRefGoogle Scholar
Krogh, Kari. 2004. Redefining homecare for women with disabilities: A call for citizenship. In Caring for/caring about: Women, home care and unpaid caregiving, eds. Grant, Karen, Amaratunga, Carol, Armstrong, Pat, Boscoe, Madeline, Pederson, Ann, and Willson, Kay. Aurora, Ont.: Garamond Press.Google Scholar
Linton, Simi. 1998. Claiming disability: Knowledge and identity. New York: New York University Press.Google Scholar
Longmore, Paul K. 2003. Why I burned my book and other essays on disability. Philadelphia: Temple University Press.Google Scholar
Macdonald, Cameron Lynne, and Merrill, David A. 2002. “It shouldn't have to be a trade”: Recognition and redistribution in care work advocacy. Hypatia 17 (2): 67–83.Google Scholar
Manning, Rita C. 1992. Speaking from the heart: A feminist perspective on ethics. Lanham, Md.: Rowman & Littlefield.Google Scholar
Marfisi, Carol. 2010. Bearing the self: A personal critique of human dynamics in PAS. Paper delivered at Society for Disability Studies Annual Conference: Disability in the Geopolitical Imagination. June 2–5. Philadelphia.Google Scholar
McRuer, Robert. 2006. Crip theory: Cultural signs of queerness and disability. New York: New York University Press.Google Scholar
Meekosha, Helen. 2011. Decolonising disability: Thinking and acting globally. Disability & Society 26 (6): 667–82.CrossRefGoogle Scholar
Mohanty, Chandra Talpade. 2003. Feminism without borders: Decolonizing theory, practicing solidarity. Durham, N.C., and London: Duke University Press.CrossRefGoogle Scholar
Morris, Jenny. 2001. Impairment and disability: Constructing an ethics of care that promotes human rights. Hypatia 16 (4): 1–16.CrossRefGoogle Scholar
Naples, Nancy A. 2003. Standpoint epistemology: Explicating multiple dimensions. In Feminism and method: Ethnography, discourse analysis, and activist research. New York: Routledge.Google Scholar
Noddings, Nel. 1984. Caring: A feminine approach to ethics and moral education. Berkeley: University of California Press.Google Scholar
Oliver, Mike. 1983. Social work with disabled people. Basingstoke, UK: Macmillan Press.CrossRefGoogle Scholar
Parreñas, Rhacel Salazar. 2001. Servants of globalization: Women, migration, and domestic work. Stanford: Stanford University Press.Google Scholar
Price, Janet, and Shildrick, Margit. 2002. Bodies together: Touch, ethics and disability. In Disability/postmodernity: Embodying disability theory, eds. Corker, Mairian and Shakespeare, Tom. New York: Continuum.Google Scholar
Price, Margaret. 2011. Cripping revolution: A crazed essay. Paper delivered at Society for Disability Studies Conference. June 15–18. San Jose, Calif.Google Scholar
Robinson, Fiona. 2006. Beyond labour rights: The ethics of care and women's work in the global economy. International Feminist Journal of Politics 83 (3): 21–42.Google Scholar
Ryan, Sara, and Runswick‐Cole, Katherine. 2008. Repositioning mothers: Mothers, disabled children and disability studies. Disability & Society 23 (3): 199–210.CrossRefGoogle Scholar
Schriempf, Alexa. 2001. (Re)fusing the amputated body: An interactionist bridge for feminism and disability. Hypatia 16 (4): 53–79.CrossRefGoogle Scholar
Sevenhuijsen, Selma. 1998. Citizenship and the ethics of care: Feminists considerations on justice, morality and politics. New York: Routledge.Google Scholar
Shakespeare, Tom. 2006. Disability rights and wrongs. New York: Routledge.CrossRefGoogle Scholar
Silvers, Anita. 1997. Reconciling equality to difference: Caring (f)or justice for people with disabilities. In Feminist ethics and social policy, eds. DiQuinzio, Patrice and Young, Iris Marion. Indianapolis: Indiana University Press.Google Scholar
Stainton, Tim, and Boyce, Steve. 2004. “I have got my life back”: Users’ experience of direct payments. Disability & Society 19 (5): 443–54.CrossRefGoogle Scholar
Stasiulis, Daiva, and Bakan, Abigail B. 1997. Negotiating citizenship: The case of foreign domestic workers in Canada. Feminist Review 57 (1): 112–39.CrossRefGoogle Scholar
Thomas, Carol. 2007. Care and dependency: A disciplinary clash. In Sociologies of disability and illness: Contested ideas in disability studies and medical sociology. New York: Palgrave Macmillan.CrossRefGoogle Scholar
Tillmann‐Healy, Lisa. 2003. Friendship as method. Qualitative Inquiry 9 (5): 729–49.CrossRefGoogle Scholar
Titchkosky, Tanya. 2003. Disability, self, and society. Toronto: University of Toronto Press.Google Scholar
Titchkosky, Tanya. 2011. The question of access: Disability, space, meaning. Toronto: University of Toronto Press.Google Scholar
Tronto, Joan C. 1993. Moral boundaries: A political argument for an ethic of care. New York: Routledge.Google Scholar
Tumolva, Cecilia, and Tomeldan, Darla. 2004. Domestic workers and caregivers’ rights: The impact of changes to B.C.'s employment standards regulation. Canadian Woman Studies 23 (3/4): 153–56.Google Scholar
Ungerson, Clare, and Yeandle, Sue, eds. 2007. Cash for care in developed welfare states. New York: Palgrave Macmillan.Google Scholar
Vosko, Leah F. 2000. Temporary work: The gendered rise of a precarious employment relationship. Toronto: University of Toronto Press.CrossRefGoogle Scholar
Watson, Nick. 2002. Well, I know this is going to sound very strange to you, but I don't see myself as a disabled person: Identity and disability. Disability & Society 17 (5): 509–527.CrossRefGoogle Scholar
Watson, Nick, McKie, Linda, Hughes, Bill, Hopkins, Debra, and Gregory, Sue. 2004. (Inter)dependence, needs and care: The potential for disability and feminist theorists to develop an emancipatory model. Sociology 38 (2): 331–50.CrossRefGoogle Scholar
Wendell, Susan. 1996. The rejected body: Feminist philosophical reflections on disability. New York: Routledge.Google Scholar
Williams, Fiona. 2001. In and beyond new labour: Towards a new political ethics of care. Critical Social Policy 21 (4): 467–93.CrossRefGoogle Scholar
Williams, Fiona. 2011. Towards a transnational analysis of the political economy of care. In Feminist ethics and social policy: Towards a new global political economy of care, eds. Mahon, Rianne and Robinson, Fiona. Vancouver: University of British Columbia Press.Google Scholar
Yoshida, Karen, Willi, Vic, Parker, Ian, and Locker, David. 2004. The emergence of Self‐Managed Attendant Services in Ontario: Direct Funding Pilot Project—An Independent Living model for Canadians requiring attendant services. Research in the Sociology of Health Care 22: 177–204.CrossRefGoogle Scholar
Zarb, Gerry, and Nadash, Pamela. 1994. Cashing in on independence: Comparing the costs and benefits of cash and services. London: British Council of Disabled People.Google Scholar
Zimmerman, Mary K., Litt, Jacquelyne S., and Bose, Christine E., eds. 2006. Global dimensions of gender and carework. Stanford: Stanford University Press.Google Scholar