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Specialty Care Programme for Autism Spectrum Disorders in an Urban Population: A Case-Management Model for Health Care Delivery in an asd Population

Published online by Cambridge University Press:  09 September 2011

M. Parellada ,
L. Boada ,
C. Moreno ,
C. Llorente ,
J. Romo ,
C. Muela  and
C. Arango
M. Parellada*
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Centro de Investigación Biomédica en Red de Salud Mental, CIBERSAM, Madrid, Spain
L. Boada
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Madrid, Spain
C. Moreno
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Centro de Investigación Biomédica en Red de Salud Mental, CIBERSAM, Madrid, Spain
C. Llorente
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Madrid, Spain
J. Romo
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Madrid, Spain
C. Muela
Affiliation:
Asociación Nuevo Horizonte, Federación Austismo, Madrid, Spain
C. Arango
Affiliation:
Department of psychiatry, Hospital General Universitario Gregorio Marañón, Centro de Investigación Biomédica en Red de Salud Mental, CIBERSAM, Madrid, Spain
*
⁎Corresponding author. E-mail address: [email protected] (M. Parellada).
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Abstract

Subjects with autism spectrum disorders (ASD) have more medical needs and more difficulties accessing health care services than the general population. Their verbal and non-verbal communication difficulties and particular behaviors, along with lack of expertise on the part of physicians and failure of the services to make adjustments, make it difficult for them to obtain an appropriate health care.

Purpose

To describe a model for health care delivery in an ASD population.

Method

Review of relevant literature and a discussion process with stakeholders leading to the design of a service to meet the specialty health needs of subjects of all ages with ASD for a region with a population of 6,000,000.

Results

A service was designed centred around the concepts of case management, individualization, facilitation, accompaniment, continuous training and updating, and quality management. Five hundred and thirteen patients with ASD have been seen over a period of 18 months. The programme generated 1566 psychiatric visits and 1052 visits to other specialties (mainly Nutrition, Stomatology, Neurology, and Gastroenterology) in the same period.

Conclusion

Persons with ASD may benefit from adjustments of health care services in order to improve their access to adequate health care at the quality level of the rest of the population.

Keywords

AutismQuality of carePsychiatry in Europe
Type
Original article
Information
European Psychiatry , Volume 28 , Issue 2 , February 2013 , pp. 102 - 109
Copyright
Copyright © Elsevier Masson SAS 2013

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