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Quality of life in the people with disability: individual’s perception

Published online by Cambridge University Press:  27 August 2024

M. M. Matsumoto ,
D. Cardilli-Dias  and
D. R. Molini-Avejonas
M. M. Matsumoto*
Affiliation:
Speech-Language Patology, University of São Paulo, São Paulo, Brazil
D. Cardilli-Dias
Affiliation:
Speech-Language Patology, University of São Paulo, São Paulo, Brazil
D. R. Molini-Avejonas
Affiliation:
Speech-Language Patology, University of São Paulo, São Paulo, Brazil
*
*Corresponding author.

Abstract

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Introduction

There are few studies about how people with intellectual disability (ID) perceive their own quality of life (QoL), with research being focus, mainly, in the opinion of caregivers and/or family. Thinking about QoL, the World Health Organization developed an instrument that measures QoL, the WHOQOL. In Brazil, this instrument was adapted, validated and translated for people with ID and their caregivers.

Objectives

The aim of this study was to increase knowledge and understanding of how people with ID perceive their own QoL.

Methods

This study was approved by the Ethics and Research Committee. Sample of 51 individuals aged between 19 and 54 years (G1), with medical diagnosis of ID, who did not present physical/mental disabilities and/or mental disorders and 31 caregivers (G2). G1 answered the WHOQOL-DIS-ID questionnaire and G2 answered the WHOQOL-DISID Proxy questionnaire. The results were statistically analyzed considering p-value ≤ 0.05.

Results

The individuals with ID presented higher score on the psychological and lower score in the discrimination domain. The caregivers presented higher scores on the physical and lower scores in the autonomy domain. Regard the comparison between self-perception and the perception of caregivers, on Table 1, it was possible to observe significant differences in Psychological, Social, Environmental and all domains for the Disabilities Module.Table 1.

Correlation between Domains

DomainMean G1Mean G2SD G1SD G2Median G1Median G2P value
Physical Capacity72,368,817,119,178,571,40,32
Psychological80,167,717,517,983,366,6<0,01*
Social Relationships68,854,322,621,666,650<0,01*
Environment73,963,314,518,47568,7<0,01*
Discrimination43,155,125,416,750500,04*
Autonomy65,541,931,425,266,650<0,01*
Inclusion77,058,916,120,17554,1<0,01*

Conclusions

It is critical that people with ID participate in the creation and/or changes of inclusion policies and actions. Since the relationship between the perception of self-reported QoL and reported by caregivers are different and converge only in the physical domain.

Disclosure of Interest

None Declared

Type
Abstract
Information
European Psychiatry , Volume 67 , Special Issue S1: Abstracts of the 32nd European Congress of Psychiatry , April 2024 , pp. S589 - S590
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
© The Author(s), 2024. Published by Cambridge University Press on behalf of European Psychiatric Association
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