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Psychosocial factors and chronic illness in childhood

Published online by Cambridge University Press:  16 April 2020

C Zimmermann Tansella
C Zimmermann Tansella*
Affiliation:
Department of Medical Psychology, Institute of Psychiatry, University of Verona, Ospedale Policlinico, 37134Verona, Italy
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Summary

Chronic illness in a child requires successful organisational and emotional adjustment of the child and the family. The way in which the child and the family adapt to the illness will affect their psychological well-being and their quality of life. This review summarizes recent research findings on the relationship between illness factors, individual and family functioning, coping strategies and psychosocial adjustment. The findings are presented within the framework of three complementary theoretical models: the family developmental approach; the psychosocial typology of illnesses; and the process model of stress and coping. These models are useful for a better understanding of the complex interactions between illness, family and coping and offer to the professionals engaged in the care of chronically sick children, guidelines for assessment and the development of intervention programs. The review starts with examining the impact of chronic illness on the psychosocial adjustment of the sick child, his/her siblings and parents. Then psychosocial Stressors and risk factors in terms of illness and family related characteristics are discussed. Coping resources and strategies are presented which have been shown to be related to child and parental adjustment; and finally, successful intervention programs are described.

Keywords

chronically ill childrenpsychosocial adjustmentcoping strategiesfamily
Type
Original article
Information
European Psychiatry , Volume 10 , Issue 6 , 1995 , pp. 297 - 305
Copyright
Copyright © Elsevier, Paris 1995

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References

Beresford, BAResources and strategies: how parents cope with the care of a disabled child. J Child Psychol Psychiatry. 1994 171-209CrossRefGoogle ScholarPubMed
Bregman, AMLiving with progressive childhood illness: parental management of neuromuscular disease. Soc Work Health Care. 1980;5:387-408CrossRefGoogle ScholarPubMed
Breslau, NPsychiatric disorder in children with physical disability. J Am Academy Child Psychiatry. 1985;24:87-94CrossRefGoogle Scholar
Bristol, MMFamily resources and successful adaptation to autistic children. In: Schopler, ESMeisbov, GThe Effect of Autism on the Family. New York: Plenum Press, 1984Google Scholar
Brown, AHepple, SHow Parents Cope. Hertford: Barnardo's, 1989Google Scholar
Bush, PPain in children: a review of the literature from a developmental perspective. Psychol Health. 1987;1:215-36CrossRefGoogle Scholar
Byrne, EACunningham, CCSloper, PFamilies and their Children with Down's Syndrome: One Feature in Common. Routledge, London:1988CrossRefGoogle Scholar
Cadman, DBoyle, MSzatmari, POford, DRChronic illness, disability and mental and social well-being: findings of the Ontario Child Health Study. Pediatrics. 1987;79:805-13Google ScholarPubMed
Caplan, GKillilea, MSupport Systems and Mutual Help. New York: Grune Stratum, 1976Google Scholar
Drotar, DBush, MMental issues and services. In: Hobbs, NPerrin, JMIssues in the Care of Children with Chronic Illness. San Francisco: Jossey-Bass, 1985Google Scholar
Drotar, DCrawford, PPsychological adaptation od siblings of chronically ill children: research and practice implications. Developm Behav Pediatrics. 1985;6:355-62Google Scholar
Duvall, EMarriage and Family Development. New York: JP Lippincott, 1977Google Scholar
Dym, BThe cybernetics of physical illness. Fam Proc. 1987;26:35-48CrossRefGoogle ScholarPubMed
Dyson, LLAdjustment of siblings of handicapped children; a comparison. J Pediatr Psychol. 1989;14:215-29CrossRefGoogle ScholarPubMed
Eiser, CPsychological effects of chronic disease. J Child Psychol Psychiatry. 1990;31:85-98CrossRefGoogle ScholarPubMed
Eiser, CThe Eleventh Jack Tizard Memorial Lecture. Making sense of chronic disease. J Child Psychol Psychiat. 1994;35:1373-90Google ScholarPubMed
Fewell, RRSupport from religious organisations and personal beliefs. Fewell, RRVadasy, PEFamilies of Handicapped Children. Needs and Supports across the Life Span. Austin: Pro-Ed, 1986Google Scholar
Folkman, SLazarus, RSManual for the Ways of Coping Questionnaire. Palo Alto: Counselling Psychologist Press, 1988Google Scholar
Frey, KSGreenberg, MTFewell, RStress and coping among parents of handicapped children: a multidimensional approach. Am J Ment Retard. 1989;94:240-9Google ScholarPubMed
Goldberg, RJTull, RMThe Psychosocial Dimensions of Cancer. New York: The Free Press, 1983Google Scholar
Gammon, EARose, SDThe coping skills training program for parents of children with developmental disabilities: an experimental evaluation. Res Soc Work Practice. 1991;1:244-56CrossRefGoogle Scholar
Hauser, SJacobson, AWertlieb, DThe contribution of family environment to perceived competence and illness adjustment in diabetic and acutely ill adolescents. Fam Relations. 1985;34:99-108CrossRefGoogle Scholar
Hobbs, NPerrin, JMIssues in the Care of Children with Chronic Illness. San Francisco: Jossey-Bass, 1985Google Scholar
Howe, GWFeinstein, CReiss, DMolock, SBerger, KAdolescent adjustment to chronic physical disorders —I. Comparing neurological and non-neurological conditions. J Child Psychol Psychiatry. 1993;34:1153-71CrossRefGoogle ScholarPubMed
Hulstijn-Dirkmaat, JContinous ambulatory peritoneal dialysis in children and family stress. Int J Adolesc Med Health. 1989;4:19-25CrossRefGoogle Scholar
Kazak, AEFamilies with physically handicapped children: social ecology and family systems. Fam Proc. 1986;25:265-81CrossRefGoogle ScholarPubMed
Kazak, AEFamilies with disabled children: stress and social networks in three samples. J Abn Child Psychol. 1987;15:137-46CrossRefGoogle ScholarPubMed
Kazak, AEMarvin, RSDifferences, difficulties and adaptation: stress and social networks in families with a handicapped child. Fam Relations. 1984;33:67-77CrossRefGoogle Scholar
Kazak, AEWilcox, BLThe structure and function of social support networks in families with handicapped children. Am J Comm Psychol. 1984;12:645-61CrossRefGoogle ScholarPubMed
Kirkham, MATwo year follow-up of skills training with mothers of children with disabilities. Am J Ment Retard. 1993;97:509-20Google ScholarPubMed
Kirkham, MASchilling, RFLife skills training with mothers of handicapped children. J Soc Service Res. 1990;13:67-77CrossRefGoogle Scholar
Koocher, GO'Malley, JThe Damocles Syndrome: Psychological Consequences of Surviving Childhood Cancer. New York: McGraw-Hill, 1981Google Scholar
Kovacs, MIyengar, SGoldston, DObrosky, DSPsychological functioning among mothers of children with insulin-dependent diabetes mellitus: a longitudinal study. J Consult Clin Psychol. 1990;58:189-95CrossRefGoogle ScholarPubMed
Lavigne, JVRyan, MPsychological adjustment of siblings of children with chronic illness. Pediatrics. 1979;63:616-26Google ScholarPubMed
Lazarus, RSFolkman, SStress, Appraisal and Coping. New York: Springer, 1984Google Scholar
Lobato, DBarbour, LHall, LJMiller, CTPsychosocial characteristics of preschool siblings of handicapped and non handicapped children. J Abn Child Psychol. 1987;15:329-38CrossRefGoogle Scholar
Mc Goldrick, MCarter, EAThe family life cycle. Walsh, FNormal Family Processes. New York: Guilford Press, 1982Google Scholar
Miller, ALGordon, RMDaniele, RJKDiller, LStress, appraisal and coping in mothers of disabled and non disabled children. J Ped Psychol. 1992;17:587-605CrossRefGoogle Scholar
Moos, RCoping with Physical Illness. New York: Plenum Press, 1984CrossRefGoogle Scholar
Howe, GWFeinstein, CReiss, DMolock, SBerger, KAdolescent adjustment to chronic physical disorders —I. Comparing neurological and non-neurological conditions. J Child Psych Psychol. 1993;34:1153-71CrossRefGoogle ScholarPubMed
Olson, DHSprenkle, DHRussel, CCircumplex model of marital and family systems. Fam Proc. 1983;22:69-83Google ScholarPubMed
Penn, PCoalitions and binding interactions in families with chronic illness. Fam Systems Med. l 1983 16-25CrossRefGoogle Scholar
Perrin, ECAyoub, CCWillett, JBIn the eyes of the beholder: family and maternal influences on perceptions of adjustment of children with chronic illness. Developm Behav Pediatrics. 1993;14:94-105Google ScholarPubMed
Pless, JBDouglas, JWBChronic illness in childhood: part I epidemiological and clinical characteristics. Pediatrics. 1971;47:405-414Google Scholar
Quine, LPahl, JStress and coping in mothers caring for a child with severe learning difficulties: a test of Lazarus' transaction model of coping. J Comm Applied Soc Psychol. 1991;1:57-70CrossRefGoogle Scholar
Reiss, DThe Family Construction of Reality. Cambridge: Harvard Press University, 1981Google Scholar
Reiss, DOlivieri, MEFamily paradigm and family coping: a proposal for linking the family's intrinsic capacities to its response to stress. Fam Relations. 1980;29:431-44CrossRefGoogle Scholar
Rolland, JSToward a psychosocial typology of chronic and life-threatening illness. Fam Systems Med. 1984;2:245-262CrossRefGoogle Scholar
Rolland, JSChronic illness and the life cycle: a conceptual framework. Fam Proc. 1987;26:203-21CrossRefGoogle ScholarPubMed
Rutter, MTizard, JWhitmore, KEducation, Health and Behaviour. London: Longman, 1970Google Scholar
Sabbeth, BFLeventhal, JMMarital adjustment to chronic illness: a critique of the literature. Pediatrics. 1984;73:762-8Google ScholarPubMed
Sattherwhite, BBImpact of chronic illness on child and family: an overview on five surveys with implication for management. Int J Rehabil Res. 1978;1:7-17CrossRefGoogle Scholar
Scheier, MFCarver, CSOptimism, coping and health: assessment and implications of generalized outcome expectancies. Health Psychol. 1985;4:219-47CrossRefGoogle ScholarPubMed
Sloper, PTurner, SParental and professional views on the needs of families with a child with severe physical disability. Couns Psychol Quarterly. 1991;4:323-30CrossRefGoogle Scholar
Sloper, PTurner, SRisk and resistance factors in the adaptation of parents with children with severe physical disability. J Child Psychol Psychiatry. 1993;34:167-88CrossRefGoogle ScholarPubMed
Sloper, PKnussen, CTurner, SCunningham, CFactors related to stress and satisfaction with life in families of children with Down's syndrome. J Child Psychol Psychiatry. 1991;32:655-76CrossRefGoogle ScholarPubMed
Stein, RFKJessop, DJA non-categorical approach to chronic childhood illness. Public Health Rep. 1982;97:354-62Google Scholar
Thompson, RJZeman, ILFanurik, DSirotkin-Roses, MThe role of parent stress and coping and family functioning in parent and child adjustment to Duchenne Muscular Dystrophy. J Clin Psychol. ,48 1992 11-193.0.CO;2-4>CrossRefGoogle ScholarPubMed
Turnbull, APBrotherson, MJSummers, JAThe impact of deinstitutionalization on families: a family systems approach. Bruinicks, RHLiving and Learning in the Least Restrictive Environment. Baltimore: Paul H Brooks, 1985Google Scholar
Varni, JWBabani, LWallander, JLRoe, TFSocial support and self-esteem effects on psychological adjustment in children and adolescents with insulin-dependent diabetes mellitus. Child Fam Behav Therapy. 1989;11:1-17CrossRefGoogle Scholar
Wallander, JLVarni, JWSocial support and adjustment in chronically ill and handicapped children. Am J Commun Psychol. 1989;17:185-201CrossRefGoogle ScholarPubMed
Wallander, JLVarni, JWBabani, LBanis, HTWilcox, KTFamily resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. J Ped Psychol. 1989;14:157-73CrossRefGoogle ScholarPubMed
Wallander, JLVarni, JWBabani, LBanis, HTDeHaan, CBWilcox, KTDisability parameters, chronic strain and adaptation of physical handicapped children and their mothers. J Ped Psychol. 1989;14:23-42CrossRefGoogle Scholar
Zeitlin, SRosenblatt, WPWilkinson, GGFamily stress: a coping model for intervention. BC J Special Education. 1986;10:231-42Google Scholar
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