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Predictors of caregiver burden among parents of children with neurological impairement

Published online by Cambridge University Press:  19 July 2023

A. Mellouli ,
S. Zouari ,
N. Smaoui ,
O. Jallouli ,
S. Omri ,
W. Bouchaala ,
I. Gassara ,
S. Ben Nsir ,
F. Kamoun  and
M. Maâlej
...Show all authors
A. Mellouli*
Affiliation:
Psychiatry C Department
S. Zouari
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
N. Smaoui
Affiliation:
Psychiatry C Department
O. Jallouli
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
S. Omri
Affiliation:
Psychiatry C Department
W. Bouchaala
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
I. Gassara
Affiliation:
Psychiatry C Department
S. Ben Nsir
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
F. Kamoun
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
M. Maâlej
Affiliation:
Psychiatry C Department
C. Charfi Triki
Affiliation:
Child Neurology Department, Hedi Chaker University Hospital LR19ES15 laboratory of Child Neurology, Sfax medical school-Sfax university, Sfax, Tunisia
*
*Corresponding author.

Abstract

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Introduction

Many neurological, sensory and behavioural deficits, are linked with significant limitations in the overall functioning not only of the child but also his/her closest family, and poses a great challenge for the primary parental caregivers.

Objectives

To assess the caregiver burden in parents of children with neurological impairement (NI), and itsrelated factors.

Methods

A total of33 caregivers of children with NI participated in this cross-sectional, descriptive and analytical study, carried out in Child Neurology Department of the University Hospital in Sfax (Tunisia), between February and April 2021.

The Zarit-Caregiver-Burden-Scale (Zarit-CBS) was administered.

Results

The average age of the caregivers (27 mothers and 6 fathers) was 38,33 ± 6,53 years. Among the parents, 17.14% had another disabled child and 30.3% had a mediocre health status. Mother caregivers constitutes the majority of caregiving (82.85%).

The average of the number of children in the family was 1.97±1.18 and the average age of the children (21 boys and 12 girls) was 7,58±4,29 years. Near to the half of them (51,51%) had intellectual disability.Over 54.54% of the children had a functional independence, while 21.21% required help in walking and 24.24% were unable to walk. The intervention was based on motor rehabilitation (57,57%), adequate equipment (24,24%), ergotherapy (45,45%) and speech therapy (60,6%).After the intervention, 63,63% of children had an improvement and 30,3% had a stationary state.

The mean score of Zarit-CBS was 52,45±14,26. The caregiver burden was noted in 96,96%.

The total Zarit-CBS score was associated with the number of children in the family (p=0.047).

There was no significant relationship between Zarit-CBS and the severity of impairement (p=0.418).

Conclusions

Given the variety of factors affecting caregiver burden, specific interventions may promote parental caregivers’well-being, and consequently lead to improved quality of care provided to children with NI.

Disclosure of Interest

None Declared

Type
Abstract
Information
European Psychiatry , Volume 66 , Special Issue S1: Abstracts of the 31st European Congress of Psychiatry , March 2023 , pp. S947 - S948
Creative Commons
Creative Common License - CCCreative Common License - BY
This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution, and reproduction in any medium, provided the original work is properly cited.
Copyright
© The Author(s), 2023. Published by Cambridge University Press on behalf of the European Psychiatric Association
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