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Daily life impairments associated with self-reported childhood/adolescent attention-deficit/hyperactivity disorder and experiences of diagnosis and treatment: Results from the European Lifetime Impairment Survey

Published online by Cambridge University Press:  15 April 2020

H. Caci ,
M. Doepfner ,
P. Asherson ,
R. Donfrancesco ,
S.V. Faraone ,
A. Hervas  and
M. Fitzgerald
H. Caci*
Affiliation:
Pediatric Department, Hôpitaux Pédiatriques de Nice, CHU Lenval, 57, avenue de la Californie, 06200Nice, France
M. Doepfner
Affiliation:
Department of Child and Adolescent Psychiatry, University of Cologne, Cologne, Germany
P. Asherson
Affiliation:
Social Genetic and Developmental Psychiatry (SGDP), King's College, Institute of Psychiatry, London, UK
R. Donfrancesco
Affiliation:
Child Neuropsychiatry Department, Sandro Pertini Hospital, Rome, Italy
S.V. Faraone
Affiliation:
Departments of Psychiatry and of Neuroscience and Physiology, SUNY Upstate Medical University, Syracuse, New York, NY, USA
A. Hervas
Affiliation:
Child and Adolescent Mental Health Unit, University Hospital Mutua of Terrassa, Barcelona, Spain
M. Fitzgerald
Affiliation:
Department of Psychiatry, Trinity College, Dublin, Ireland
*
*Corresponding author. Tel.: +33 4 92 03 08 71; fax: +33 4 92 03 05 58. E-mail address:[email protected] (H. Caci).
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Abstract

The Lifetime Impairment Survey assessed impairment and symptoms of attention-deficit/hyperactivity disorder (ADHD) in children/adolescents from six European countries. Parents/caregivers of children/adolescents aged < 20 years with ADHD (ADHD group; n = 535) and without ADHD (control group; n = 424) participated in an online survey. History of ADHD diagnosis was self-reported. ADHD and control groups were compared using impairment and symptom scales; higher scores indicate greater impairment. Mean (SD) age at ADHD diagnosis was 7.0 (2.8) years, following consultation of 2.7 (2.6) doctors over 20.4 (23.9) months. Parents/caregivers (64%; 344/535) reported frustration with some aspect of the diagnostic procedure; 74% (222/298) were satisfied with their child's current medication. ADHD had a negative impact on children/adolescents in all aspects of life investigated. The ADHD group had a higher mean (SD) school impairment score (2.7 [0.7]) compared with the control group (2.1 [0.7]; P < 0.001) and were more likely to be in the bottom of their class (P < 0.001). These data provide insights into impairments associated with ADHD in childhood/adolescence, and identify areas for improvement in its management and treatment.

Keywords

ADHDFunctional impairmentTreatmentDiagnosis
Type
Original articles
Information
European Psychiatry , Volume 29 , Issue 5 , June 2014 , pp. 316 - 323
Copyright
Copyright © Elsevier Masson SAS 2014

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Footnotes

1

These authors both contributed equally.

2

Tel.: +49 221 478 6105; fax: +49 221 478 3962.

3

Tel.: +44 2078 480 078; fax: +44 2078 480 866.

4

Tel.: +39 3397740368; fax: +39 0641435416.

5

Tel.: +1 315 464 3113; fax: +1 315 849 1839.

6

Tel.: +34 937365903.

7

Tel.: +353 086 859 75 47.

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