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Caregiver psychoeducation for first-episode psychosis

Published online by Cambridge University Press:  16 April 2020

Stephen McWilliams ,
Patrick Egan ,
Deirdre Jackson ,
Laoise Renwick ,
Sharon Foley ,
Caragh Behan ,
Emma Fitzgerald ,
Alastair Fetherston ,
Niall Turner  and
Anthony Kinsella
...Show all authors
Stephen McWilliams*
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Patrick Egan
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Deirdre Jackson
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Laoise Renwick
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Sharon Foley
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Caragh Behan
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Emma Fitzgerald
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Alastair Fetherston
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Niall Turner
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Anthony Kinsella
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland
Eadbhard O’Callaghan
Affiliation:
DETECT Early Intervention in Psychosis Service, DETECT, Avila House, Block 5, Blackrock Business Park Carysfort Avenue, Co. Dublin, Ireland Department of Psychiatry, University College Dublin, Donnybrook Dublin 4, Ireland
*
*Corresponding author. Tel.: +35312791700; fax: +35312791799. E-mail address: [email protected] (S. McWilliams).
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Abstract

Introduction

International best-practice guidelines for the management of first-episode psychosis have recommended the provision of psychoeducation for multifamily groups. While there is ample evidence of their efficacy in multiepisode psychosis, there is a paucity of evidence supporting this approach specifically for first-episode psychosis. We sought to determine whether a six-week caregiver psychoeducation programme geared specifically at first-episode psychosis improves caregiver knowledge and attitudes.

Methods

Caregivers of people with first-episode psychosis completed a 23-item adapted version of the self-report Family Questionnaire (KQ) and a 17-item adapted version of the self-report Drug Attitudes Inventory (DAI) before and after the six-week DETECT Information and Support Course (DISC). Using a Generalised Linear Repeated Measures Model, we analyzed the differences in proportions of correct answers before and after the programme.

Results

Over a 24-month study period, 31 caregivers (13 higher socioeconomic; 13 lower socioeconomic; five unspecified socioeconomic; 19 female; 12 male) participated in the DISC programme and completed inventories before and after the course. Knowledge of psychosis and specific knowledge of medication treatment improved among caregivers overall (p < .01; effect sizes 0.78 and 0.94 respectively). There were no significant gender or socioeconomic differences in any improvement.

Discussion

This study confirms that caregiver psychoeducation specifically for first-episode psychosis directly improves knowledge of the illness overall and, in particular, knowledge of medication. Gender is not a factor in this, while the lack of any socioeconomic differences dispels the myth that patients in lower socioeconomic groups are disadvantaged because their caregivers know less.

Keywords

First-episode psychosisMultiepisode psychosisSchizophreniaCaregiverGenderSocioeconomicPsychoeducationKnowledgeAttitudes
Type
Original articles
Information
European Psychiatry , Volume 25 , Issue 1 , January 2010 , pp. 33 - 38
Copyright
Copyright © Elsevier Masson SAS 2010

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References

American Psychiatric Association. DSM-IV – Diagnostic and Statistical Manual of Mental Disorders. 4th ed., 1994.Google Scholar
Argimon, J.M., Limon, E., Vila, J., Cabezas, C.Health-related quality of life in caregivers of patients with dementia. Fam Pract 2004: 21(4); 454–457.CrossRefGoogle ScholarPubMed
Birchwood, M., Smith, J., Cochrane, R.Specific and non-specific effects of educational intervention for families living with schizophrenia. A comparison of three methods. Br J Psychiatry 1992;160:806–814.CrossRefGoogle ScholarPubMed
Burns, A.The burden of Alzheimer's disease. Int J Neuropsychopharmacol 2000:3(7); 31–38.CrossRefGoogle ScholarPubMed
Butler, S.S., Turner, W., Kaye, L.W., Ruffin, L., Downey, R.Depression and caregiver burden among rural elder caregivers. J Gerontol Soc Work 2005;46(1): 47–63.CrossRefGoogle ScholarPubMed
Carmichael, F., Charles, S.The opportunity costs of informal care: does gender matter?. J Health Econ 2003;22(5):781–803.CrossRefGoogle ScholarPubMed
Cassidy, E., Hill, S., O’Callaghan, E.Efficacy of psychoeducational intervention on improving relatives’ knowledge about schizophrenia and improving hospitalization. Eur Psychiatry 2001;16(8):446–450.CrossRefGoogle Scholar
Donaldson, C., Burns, A.Burden of Alzheimer's disease: helping the patient and caregiver. J Geriatr Psychiatry Neurol 1999;12(1):21–28.CrossRefGoogle ScholarPubMed
Donaldson, C., Tarrier, N., Burns, A.Determinants of carer stress in Alzheimer's disease. Int J Geriatr Psychiatry 1998;13(4):248–256.3.0.CO;2-0>CrossRefGoogle ScholarPubMed
First, M.B., Spitzer, R.L., Gibbon, M., Williams, J.B.Structured Clinical Interview for DSM-IV Axis I Disorders. Clinician Version (SCID-CV) Washington D.C: American Psychiatric Press, Inc; 1996.Google Scholar
Foldemo, A., Gullberg, M., Ek, A.C., Bogren, L.Quality of life and burden in parents of outpatients with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 2005;40(2):133–138.CrossRefGoogle ScholarPubMed
Goldstein, M.J.Psychoeducation and family treatment related to the phase of the psychotic disorder. Int Clin Psychopharmacol 1996;11 S277–83.CrossRefGoogle Scholar
Harrison, G., Hopper, K., Craig, T., Laska, A., Siegel, J., Wanderling, K.et al. Recovery from psychotic illness: a 15- and 25-year follow-up study. Br J Psychiatry 2001;178:506–517.CrossRefGoogle Scholar
Hepburn, K.W., Lewis, M., Sherman, C.W., Tornatore, J.The savvy caregiver programme: developing and testing a transportable dementia family caregiver training programme. Gerontologist 2003;43(6):908–915.CrossRefGoogle Scholar
Hogan, T.P., Awad, A.G., Eastwood, R.A self-report scale predictive of drug compliance in schizophrenics: reliability and discriminative validity. Psychol Med 1983;13:177–183.CrossRefGoogle ScholarPubMed
International Early Psychosis Association Writing Group. International Clinical Practice Guidelines. BJPsych 2005;187(Suppl. 48):s120–s124.Google Scholar
Isaac, M., Chand, P., Murthy, P.Schizophrenia outcome measures in the wider international community. Br J Psychiatry 2007;50:s71–s77.CrossRefGoogle ScholarPubMed
Jorm, A.F., Blewitt, K.A., Griffiths, K.M., Kitchener, B.A., Parslow, R.A.Mental health first aid responses of the public: results from an Australian national survey. BMC Psychiatry 2005;5(1).9.CrossRefGoogle ScholarPubMed
Kramer, M.K.Self-characterizations of adult female informal caregivers: gender identity and the bearing of burden. Res Theory Nurs Pract 2005;19(2):137–161.CrossRefGoogle ScholarPubMed
Lyse, H.G., Haahr, U.H., Fjell, A., Dichmann, B., Flensborg, E., Simonsen, E.Psychoeducation and multifamily groups for patients with first-episode psychosis. Ugeskr Laeger 2007;169(43):3668–3672.Google ScholarPubMed
McCullagh, E., Brigstocke, G., Donaldson, N., Kalra, L.Determinants of caregiving and quality of life in caregiving of stroke patients. Stroke 2005;36(10):2181–2186.CrossRefGoogle ScholarPubMed
McGorry, P.D.Psychoeducation in first-episode psychosis: a therapeutic process. Psychiatry 1995;58(4):313–328.CrossRefGoogle ScholarPubMed
McWilliams, S., Hill, S., Mannion, N., Kinsella, A., O’Callaghan, E.Does psychoeducation influence carers’ attitudes to treatment of schizophrenia?. Ir J Psychol Med 2007;24(1):27–30.CrossRefGoogle ScholarPubMed
McWilliams, S., Hill, S., Mannion, N., Kinsella, A., O’Callaghan, E.Caregiver psychoeducation for schizophrenia: Is gender important?. Eur Psychiatry 2007;22(5):323–327.CrossRefGoogle ScholarPubMed
Montero, I., Masanet, M., Lacruz, M., Bellver, F., Asencio, A., Garcia, E.Family intervention in schizophrenia: long-term effect on main caregivers. Actas Esp Psiquiatr 2006;34(3):169–174.Google ScholarPubMed
Mueser, K.T., McGurk, S.R.Schizophrenia. Lancet 2004;363(9426):2063–2072.CrossRefGoogle ScholarPubMed
National Institute of Health and Clinical Excellence (NICE). www.nice.org.uk (website accessed on 2nd February 2009).Google Scholar
Paccaloni, M., Pozzan, T., Zimmermann, C.Being informed and involved in treatment: what do psychiatric patients think? A review. Epidemiol Psichiatr Soc 2004;13(4):270–283.CrossRefGoogle ScholarPubMed
Pekkala, E., Merinder, L.Psychoeducation for schizophrenia. Cochrane Database Syst Rev(4)2002. CD002831.Google Scholar
Pharoah, F.M., Rathbone, J., Mari, J.J., Streiner, D.Family intervention for schizophrenia. Cochrane Database Syst Rev 2003;3:CD000088.Google Scholar
Pinquart, M., Sorensen, S.Helping caregivers of persons with dementia: which interventions work and how large are their effects?. Int Psychogeriatr 2006;18(4):577–595.CrossRefGoogle ScholarPubMed
Reinares, M., Vieta, E., Colom, F., Martinez-Aran, A., Torrent, C., Comes, M.et al. Impact of a psychoeducational family intervention on caregivers of stabilized bipolar patients. Psychother Psychosom 2004;73(5): 312–319.CrossRefGoogle ScholarPubMed
Samele, C., van Os, J., McKenzie, K., Wright, A., Gilvarry, C., Manley, C.et al. Does socioeconomic status predict course and outcome in patients with psychosis?. Soc Psychiatry Psychiatr Epidemiol 2001;36(12): 573–581.CrossRefGoogle ScholarPubMed
Smith, J.V., Birchwood, M.J.Specific and non-specific effects of educational intervention with families living with a schizophrenic relative. Br J Psychiatry 1987;150:645–652.CrossRefGoogle ScholarPubMed
SPSS Version 15.0. ©SPSS Ltd.Google Scholar
Tarrier, N., Lewis, S., Haddock, G., Bentall, R., Drake, R., Kinderman, P.et al. Cognitive-behavioural therapy in first-episode and early schizophrenia. 18-month follow-up randomised controlled trial. Br J Psychiatry 2004;184:231–239.CrossRefGoogle ScholarPubMed
Tennakoon, L.A., Fannon, D., Doku, V., O’Ceallaigh, S., Soni, W., Santamaria, M.et al. Experience of caregiving: relatives of people experiencing a first episode of psychosis. Br J Psychiatry 2000;177:529–533.CrossRefGoogle ScholarPubMed
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