Hostname: page-component-586b7cd67f-2plfb Total loading time: 0 Render date: 2024-11-22T18:49:51.087Z Has data issue: false hasContentIssue false

Nivel de la carga del cuidador entre los familiares del enfermo mental en el sur de Verona

Published online by Cambridge University Press:  12 May 2020

C. Samele
Affiliation:
Sección de Psiquiatría General, Departamento de Medicina Psicológica, Instituto de Psiquiatría, De Crespigny Park, Londres SE58AF, Reino Unido;
N. Manning
Affiliation:
Escuela de Estudios Sociales, Universidad de Nottingham, University Park, Nottingham NG7 2RD Reino Unido.
Get access

Resumen

Identificar la carga de los cuidados sobre los familiares del enfermo mental es una parte integral de la investigación en los servicios psiquiátricos comunitarios. El presente estudio tenía el propósito de evaluar el nivel y el alcance de la carga sobre los familiares en el sur de Verona (noreste de Italia). El área de captación del sur de Verona proporciona un servicio psiquiátrico comunitario amplio con dependencia mínima del hospital. Se seleccionó a los pacientes a partir del Registro de Casos Psiquiátricos del sur de Verona y se entrevistó a 40 de sus familiares utilizando evaluaciones estructuradas que medían la caiga objetiva, el comportamiento del paciente, las estrategias de afrontamiento, la satisfacción y las necesidades de servicios. Se pusieron de manifiesto tanto los aspectos positivos como negativos de la caiga: el 92% de los familiares continuaban manteniendo contacto con amigos o familiares, el 72% no habían experimentado cambios en sus ingresos familiares y el 52% podían resolver cualquier perturbación en la casa durante una crisis. Los efectos negativos principales para los familiares incluían una reducción de las actividades de ocio (57%) y problemas psicológicos (67%). La carga mayor se ejercía sobre los familiares de los pacientes varones (P = 0,016), sin empleo (P = 0,013) y diagnosticados con psicosis (P = 0,041). Se comentan las implicaciones del empleo para los pacientes y su asociación con niveles inferiores de caiga del cuidador.

Type
Artículo Original

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bibliografía

Anderson, CMReiss, DNHogarty, GE.Schizophrenia and the family: a practitioner’s guide to psychoeducation and management. New York: Guildford Press; 1986.Google Scholar
Bell, MDLysaker, PH.Clinical benefits of paid work activity in schizophrenia: 1-year follow-up. Schizophr Bull 1997;23:317–28.CrossRefGoogle Scholar
Bibou-Nakou, IDikaiou, MBairactaris, C.Psychosocial dimensions of family burden among two groups of carers looking after psychiatric patients. Soc Psychiatry Psychiatr Epidemiol 1997;32:104–8.CrossRefGoogle ScholarPubMed
Biegel, DEMilligan, SEPutnam, PLSong, LY.Predictors of burden among lower socio-economic status caregivers of person with chronic mental illness. Community Ment Health J 1994;30:473–94.CrossRefGoogle ScholarPubMed
Black, BJ.Work and mental illness: transitions to employment. Baltimore: John Hopkins; 1988.Google Scholar
Bulger, MWWandersman, AGoldman, CR.Burdens and gratifications of caregiving: appraisal of parental care of adults with schizophrenia. Am J Orthopsychiatry 1993;63:255–65.CrossRefGoogle ScholarPubMed
Fadden, GBebbington, PKuipers, L.Caring and its burdens: a study of relatives of depressed patients. Br J Psychiatry 1987;150:660–7.CrossRefGoogle Scholar
Falloon, IRHGraham-Hole, VWoodroffe, R.Stress and health of informal carers of people with chronic mental disorders. J Ment Health 1993;2:165–73.CrossRefGoogle Scholar
Gibbons, JSHorn, SMPowell, JMGibbons, JL.Schizophrenic patients and their families: a survey in a psychiatric Service based on a DGH unit. Br J Psychiatry 1984;144:70–7.CrossRefGoogle Scholar
Hoenig, JHamilton, MW.The schizophrenic patient in the community and his effect on the household. Int J Soc Psychiatry 166;12:165–76.CrossRefGoogle Scholar
Jones, SLRother, DJones, PK.Effect of demographic and behavioral variables on burden of caregivers of chronic mentally ill persons. Psychiatr Serv 1995;46:141–5.Google ScholarPubMed
Lesage, ADPollini, D.A new schedule to assess relatives’ satisfaction with psychiatric Services: preliminary results on a sample of relatives living with a mentally retarded young adult. New Trends Exp Clin Psychiatry 1989;5:151–9.Google Scholar
Loukissa, DA.Family burden in chronic mental illness: a review of research studies. J Adv Nurs 1995;21:248–55.CrossRefGoogle ScholarPubMed
MacCarthy, B.The role of relatives. In: Lavender, AHolloway, F, eds.Community care in practice. London: John Wiley and Sons; 1988. p. 207–27.Google Scholar
Me Creadie, RGWiles, DHMoore, JWGrant, SMCrocket, GTLivingston, MG, et al. The Scottish first episode schizophrenia study: IV. Psychiatric and social impact on relatives. Br J Psychiatry 1987;150:340–4.Google Scholar
Moos, RHBillings, AG.Conceptualizing and measuring coping resources and processes. In: Goldberger, LBrenizt, S, eds. Handbook of stress: theoretical and clinical aspeets. New York: MacMillan; 1982. p. 212–30.Google Scholar
Mosher, LRBurti, L.Community mental health. Principies and practice. New York: Norton; 1989.Google Scholar
Perring, CTwigg, JAtkin, K.Families caring for people diagnosed as mentally ill: the literature re-examined. London: HMSO; 1990.Google Scholar
Platt, S.Measuring the burden of psychiatric illness on the family: An evaluation of some rating scales. Psychol Med 1985;15:383–93.CrossRefGoogle ScholarPubMed
Platt, SHirsch, SWeyman, A.Social behaviour assessment schedule. Windsor: NFER-Nelson; 1983.Google Scholar
Rutter, MBrown, GW.The reliability and validity of measures of family life and relationships in families containing a psychiatric patient. Soc Psychiatry 1966;1:3853.CrossRefGoogle Scholar
Schene, AH.Objective and subjective dimensions of family burden. Soc Psychiatry Psychiatr Epidemiol 1990;25:289–97.CrossRefGoogle ScholarPubMed
Schene, AHTessler, RCGamache, GM.Instruments measuring family or caregiver burden in severe mental illness. Soc Psychiatry Psychiatr Epidemiol 1994;29:228–40.CrossRefGoogle ScholarPubMed
Stueve, AVine, PStruening, EL.Perceived burden among caregivers of adults with serious mental illness: comparison of Black, Hispanic, and white families. Am J Orthopsychiatry 1997;67:199209.CrossRefGoogle ScholarPubMed
Szmukler, GIBurgess, PHerrman, HBenson, AColusa, SBloch, S.Caring for a relative with serious mental illness: the development of the Experience of Caregiving Inventory. Soc Psychiatry Psychiatr Epidemiol 1996;31:137–48.CrossRefGoogle ScholarPubMed
Szmukler, GIHerrman, HColusa, SBenson, ABloc, S.A controlled trial of a counselling intervention for caregivers of relatives with schizophrenia. Soc Psychiatry Psychiatr Epidemiol 1996;31:149–55.CrossRefGoogle ScholarPubMed
Thompson, EHDoll, W.The burden of families coping with the mentally iil: an invisible crisis. Fam Relat: J Appl Fam Child Stud 1982;35:379–88.CrossRefGoogle Scholar
Van Dongen, CJ.Quality of life and self-esteem in working and non-working persons with mental illness. Community Ment Health J 1996;32:535–48.CrossRefGoogle Scholar
Vaughn, CELeff, JP.The influence of family and social factors on the course o psychiatric illness: a comparison of schizophrenic and depressed neurotic patients. Br J Psychiatry 1976;129:125–37.CrossRefGoogle Scholar
Veltro, FMagliano, LLabrace, SMorocini, PL.Severely and persistently mentally ill patients in Italy: an overview of epidemiological and psychosocial findings. Int J Soc Psychiatry 1993;39:285302.CrossRefGoogle ScholarPubMed