Hostname: page-component-586b7cd67f-2plfb Total loading time: 0 Render date: 2024-11-22T06:39:57.225Z Has data issue: false hasContentIssue false
  • English
  • Français

Being informed and involved in treatment: what do psychiatric patients think? A review

Published online by Cambridge University Press:  11 October 2011

Monica Paccaloni ,
Tecla Pozzan  and
Christa Zimmermann
Monica Paccaloni*
Affiliation:
Dipartimento di Medicina e Sanità Pubblica, Sezione di Psichiatria e di Psicologia Clinica, Università di Verona, Verona
Tecla Pozzan
Affiliation:
Dipartimento di Medicina e Sanità Pubblica, Sezione di Psichiatria e di Psicologia Clinica, Università di Verona, Verona
Christa Zimmermann
Affiliation:
Dipartimento di Medicina e Sanità Pubblica, Sezione di Psichiatria e di Psicologia Clinica, Università di Verona, Verona
*
Address for correspondence: Professor C. Zimmermann. Dipartimento di Medicina e Sanità Pubblica. Servizio di Psicologia Medica. Università di Verona. Policlinico G.B Rossi. Piazzale LA Scuro 10. 37134 Verona Fax: +39-045-585.871 E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Summary

Aims – A narrative review of studies on the information needs of psychiatric patients, the knowledge of their diagnosis and treatment expectations. Methods – A literature review, limited to studies between 1980 to 2003, was carried out using Medline and Psychlnfo databases. Results – Sixty five studies of interest were identified. Less than half of the psychiatric patients know their diagnosis and patients affected by schizophrenia are the least informed. Notions about aetiology and treatment are patchy, and the concept of ‘multifactorial cause’ seems unknown. Little knowledge emerged about drugs and side effects, expecially in the long term. Patients want to be informed, involved in decisions and their treatment programme. They feel that their psychiatrists are more interested in pharmacological aspects than in their personal problems. Conclusions – A better quality of communication, the involvement of patients in decision processes and meeting patients' information needs is necessary to improve therapeutic relationships, to encourage greater compliance with treatment programs and to reduce the stigma of psychiatric illness.

Declaration of Interest: none of the three authors has had any interest or received any form of support, including that from drug companies and honoraria for lectures and consultancies, potentially in conflict with this scientific work.

Keywords

psychiatric patientspsychiatrist-patient relationshipinformation givinginformation needspatient knowledgepatient experiencespatient opinionspatient requestspatient expectationspatient perspective
Type
Original Articles
Information
Epidemiology and Psychiatric Sciences , Volume 13 , Issue 4 , December 2004 , pp. 270 - 283
Copyright
Copyright © Cambridge University Press 2004

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Bibliografia

Abma, T.A. (1998). Storytelling as inquiry in mental hospital. Qualitatative Health Research 8. 821–838.CrossRefGoogle ScholarPubMed
Amaddeo, F.. Zambello, F., Tansella, M. & Thornicroft, G. (2001). Accessibility and pathways to psychiatric care in a community-based mental health system. Social Psychiatry and Psychiatric Epidemiology 36. 500–507.CrossRefGoogle Scholar
Baker, C. (1996). Subjective experience of symptoms in schizophrenia. Canadian Journal of Nursing Research 28. 19–35.Google ScholarPubMed
Balestrieri, M.. Bon, M.G.. Rodriguez-Sacristan, A. & Tansella, M. (1994). Pathways to psychiatric care in South-Verona, Italy. Psychological Medicine 24, 641–649.CrossRefGoogle ScholarPubMed
Balint, M.(1961). Medico, Paziente e Malattia. Feltrinelli Editore: Milano.Google Scholar
Barker, P.(2001). The Tidal Model: developing an empowering, personcentred approach to recovery within psychiatric and mental health nursing. Journal of Psychiatric and Mental Health Nursing 8, 233–240.CrossRefGoogle ScholarPubMed
Barker, P.J.. Reynolds, W. & Stevenson, C.(1997). The human science basis of psychiatric nursing: theory and practice. Journal of Advanced Nursing 25, 660–667.CrossRefGoogle ScholarPubMed
Biancosino, B.. Barbui, C.Pera, V.. Osti, M.. Rocchi, D.. Marmai, L.& Grassi, L. (2004). Patient's opinions on the benefits of treatment pro-grams in a residencial facility. Canadian Journal of Psychiatry 49. 613–619.CrossRefGoogle Scholar
Bjoerkman, T., Hansson, L.. Svensson, B. & Berglund, L. (1995). What is important in psychiatric outpatient care? Quality of care from the patient's perspective. International Journal for Quality in Health Care 7. 355.CrossRefGoogle ScholarPubMed
Blenkiron, P. (1998). Referral to a psychiatric clinic: what do patients expect? International Journal of Health Care Quality Assurance Incorporating Leadership in Health Senices 11.188–192.Google ScholarPubMed
Charles, C.Gafni, A. & Whelan, T.(1997). Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Social Science & Medicine 44, 681–692.CrossRefGoogle ScholarPubMed
Chien, V.T.. Kam, C.W. & Lee, I. F. (2001). An assessment of the patients' needs in mental health education. Journal of Advanced Nursing 34. 304–311.CrossRefGoogle Scholar
Churchill, R. (2003). Systematic reviews and the Cochrane Collaboration: improving the evidence-base for all psychiatric treatments. Epidemiologia e Psichiatria Sociale 12. 137–145.CrossRefGoogle ScholarPubMed
Clafferty, R.A.. Me Callum, S., McCabe, E. & Brown, K.W. (1999). Do patients with schizophrenia want information about their illness? In Royal College of Psychiatrist Annual Meeting Proceeding, London, pp. 194–195.Google Scholar
Clafferty, R.A.. Me Cabe, E. & Brown, K.W. (2000). Telling patients with schizophrenia their diagnosis. British Medical Journal 321. 384.Google ScholarPubMed
Clary, C.Dever, A. & Schweizer, E. (1992). Psychiatric inpatients' knowledge of medication at hospital discharge. Hospital & Community Psychiatry 43, 140–144.Google ScholarPubMed
Cruz, M. & Pincus, H.A.(2002). Research on the influence that communication in psychiatric encounters has on treatment. Psychiatric Senices 53, 1253–1265.Google ScholarPubMed
de Haan, L., Peters, B., Dingemans, P., Wouters, L. & Linszen, D. (2002). Attitudes of patients toward the first psychotic episode and the start of treatment. Schizophrenia Bulletin 28, 431–442.CrossRefGoogle ScholarPubMed
Eckman, T.A., Liberman, R.P., Phipps, C.C. & Blair, K.E. (1990). Teaching medication management skills to schizophrenic patients. Journal of Clinical Psychopharmacology 10, 33–38.CrossRefGoogle ScholarPubMed
Emanuel, E.J. & Emanuel, L.L.(1992). Four models of physician-patient relationship. Journal of Medical Association 267, 2221.CrossRefGoogle ScholarPubMed
Evans, M., Macpherson, R., Thompson, E. & Babiker, I. (1996). Educating psychiatric patients about their treatment: do fact sheets work? Journal of the Royal Society of Medicine 89, 690–3.CrossRefGoogle ScholarPubMed
Fenton, W.S. (2003). Shared decision making: a model for the physician-patient relationship in the 21st century? Ada Psychiatrica Scandinavica 107, 401–402.CrossRefGoogle Scholar
Ferreri, M, Rouillon, F., Nuss, P., Bazin, N.. Farah, S., Djaballah, K. & Gerard, D. (2000). De quelles informations les patients souffrant de schizophrenic disposent-ils sur leur malarie et leur traitement? l What is the schizophrenic patients' level of information about their disease and their treatment? Encephale 26, 30–28.Google Scholar
Frederikson, L.G. (1995). Exploring information-exchange in consultation: the patient's view of performance and outcomes. Patient Education and Counseling 25, 237–246.CrossRefGoogle ScholarPubMed
Geller, J.L.(1982). State hospital patients and their medication. Do they know what they label American Journal ofPsichiatry 139. 611–615.Google Scholar
Goldstein, M.J. (1995). Psychoeducation and relapse prevention. International Journal of Clinical Psychopharmacology 9, 59–69.CrossRefGoogle ScholarPubMed
Hamann, J.. Leucht, S. & Kissling, W. (2003). Shared decision making in psychiatry. Ada Psychiatrica Scandinavica 107, 403–409.CrossRefGoogle ScholarPubMed
Hansson, L.. Bjorkman, T. & Berglund, I. (1993). What is important in psychiatric inpatient care? Quality of care from the patient's perspective. Quality Assurance in Health Care 5. 41–47.CrossRefGoogle ScholarPubMed
Holzinger, A.. Kilian, R.. Lindenbach, I., Petscheleit, A. & Angermeyer, M.C. (2003). Patients' and their relatives' causal explanations of schizophrenia. Social Psychiatry and Psychiatric Epidemiology 38. 155–162.CrossRefGoogle ScholarPubMed
Ilcchuwu, S.T. (1988). Interrelationships of beliefs about mental illness. psychiatric diagnosis and mental health care delivery among Africans. International Journal of Social Psychiatry 34. 200–206.CrossRefGoogle Scholar
Kelstrup, A.. Lund, K.. Lauritsen, B. & Bech, P. (1993). Satisfaction with care reported by psychiatric inpatients. Relationship to diagnosis and medical treatment. Ada Psrchiatrica Scandinavica 87. 374–379.CrossRefGoogle ScholarPubMed
Kilkku, N.. Munnukka, T. & Lehtinen, K. (2003). From information to knowledge: the meaning of information-giving to patients who had experienced first-episode psychosis. Journal of Psychiatric and Mental Health Nursing 10. 57–64.CrossRefGoogle ScholarPubMed
Kleinman, I.. Schachter, D.. Jeffries, J. & Goldharmer, P.(1993). Effectiveness of two methods for informing schizophrenic patients about neuroleptic medication. Hospital & Commimitx Psychiatry 44.1189–1191.Google ScholarPubMed
Koivisto, K.. Janhonen, S. & Väisanen, L. (2002). Applying a phenomenological method of analysis derived from Giorgi to a psychiatric nursing study. Journal of Advanced Nursing 39. 258–265.CrossRefGoogle ScholarPubMed
Koivisto, K.. Janhonen, S. & Väisanen, L. (2003). Patients' experiences of psychosis in an inpatient setting. Journal of Psychiatric and Mental Health Nursing 10. 221–229.CrossRefGoogle Scholar
Längle, G.. Baum, W.. Wollinger, A.. Renner, G., Uren, R.. Schwarzler, F. & Eschweiler, G.W. (2003). Indicators of quality of inpatient psychiatric treatment: the patients' view. International Journal for Quality in Health Care 15. 213–221.CrossRefGoogle ScholarPubMed
Ley, P. (1988). Communicating with Patients: Improving Communication, Satisfaction and Compliance. Croom Helm: London.Google Scholar
Linden, M. & Chaskel, R. (1981). Information and consent in schizophrenic patients in longterm treatment. Schizophrenia Bulletin 7. 372–378.CrossRefGoogle Scholar
Luderer, H.J. (1989). Knowledge of the diagnosis and drug treatment of psychiatric patients. Der Nenvnarzt 60. 213–219.Google ScholarPubMed
Luderer, H.J. & Bocker, F.M. (1993). Clinicians' information habits, patient' knowledge of diagnosis and etiological concepts in four different clinical samples. Ada Psychiatrica Scandinavica 88, 266–272.CrossRefGoogle ScholarPubMed
Macpherson, R.. Double, D.B.. Rowlands, R.P. & Harrison, D.M.(1993). Long-term psychiatric patients' understanding of neuroleptic medication. Hospital & Community Psychiatry 44. 71–73.Google ScholarPubMed
McCabe, R.. Heath, C.Burns, T. & Priebe, S. (2002). Engagement of patients with psychosis in the consultation: conversation analytic study. British Medical Journal 325. 1148–1151.CrossRefGoogle ScholarPubMed
Mclntyre, K.. Farrell, M. & David, A. (1989). In-patient psychiatric care: the patient's view. British Journal of Medical Psychology 62. 249–255.CrossRefGoogle Scholar
Morgan, D.G. (1999). Please see and advise: a qualitative study of patients' experiences of psychiatric outpatient care. Social Psychiatry and Psychiatric Epidemiology 34. 442–450.CrossRefGoogle ScholarPubMed
Mueser, K.T., Bellack, A.S.. Wade, J.H.. Sayers, S.L. & Rosenthal, C.K. (1992). An assessment of the educational needs of chronic psychiatric patients and their relatives. British Journal of Psychiatry 160. 674–680.CrossRefGoogle ScholarPubMed
Noble, L.M.. Douglas, B.C. & Newman, S.P. (1999). What do patients want and do we want to know? A review of patients' requests of psychiatric services. Ada Psychiatrica Scandinarica 100. 321–327.CrossRefGoogle Scholar
Noble, L.M.. Douglas, B.C. & Newman, S.P. (2001). What do patients expect of psychiatric services? A systematic and critical review of empirical studies. Social Science & Medicine 52. 985–998.CrossRefGoogle ScholarPubMed
Owen, S.. Repper, J.. Perkins, R. & Robinson, J. (1998). An evaluation of services for women with long-term mental health problems. Journal of Psychiatric and Mental Health Nursing 5, 281–290.CrossRefGoogle ScholarPubMed
Razali, S.M.. Khan, U.A. & Hasanah, C.I. (1996). Belief in supernatural causes of mental illness among Malay patients:impact on treatment. Ada Psychiatrica Scandinavica 94. 229–233.CrossRefGoogle ScholarPubMed
Retolaza, A. & Grandes, G. (2003). Expectations and satisfaction in mental health center users. Adas Espanolas de Psiquiatria 31. 171–176.Google ScholarPubMed
Ricketts, T. & Kirshbaum, M.N. (1994). Helpfulness of health day care: client and staff views. Journal of Advanced Nursing 20. 297–306.CrossRefGoogle ScholarPubMed
Schulze, B. & Angermeyer, M.C. (2003). Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Social Science & Medicine 56, 299–312.CrossRefGoogle ScholarPubMed
Shahin, S.H. & Daly, E.B.(1999). Knowledge, attitudes and beliefs about psychotropic medication among Saudi hospitalised psychiatric patients. International Journal of Nursing Studies 36, 51–55.CrossRefGoogle Scholar
Shergill, S.S.. Barker, D. & Greenberg, M. (1998). Communication of psychiatric diagnosis. Social Psychiatry and Psychiatric Epidemiology 33, 32–38.Google ScholarPubMed
Shooter, M. (2003). The patient's perspective on medicines in mental illness. Drug treatment is only a part of what the patients needs. British Medical Journal 327, 824–826.CrossRefGoogle Scholar
Spiessl, H., Leber, C., Kaatz, S. & Cording, C. (2002). What do patients expect from a psychiatric department at a general hospital? Psychiatrische Praxis 29, 417–419.Google ScholarPubMed
Stratico, E. & Degli, Esposti M. (2002). L'empowerment e la sua valutazione. Psichiatria di Comunita 1–2, 23–35.Google Scholar
Tarrier, N. & Barrowclough, C. (2003). Professional attitudes to psychiatric patients: a time for change and an end to medical paternalism. Epidemiologia e Psichiatria Sociale 12, 238–241.CrossRefGoogle Scholar
Tuohimaki, C.Kaltiala-Heino, R., Korkeila, J., Protshenko, J., Lehtinen, V. & Joukamaa, M. (2001). Psychiatric inpatients'views on selfdetermination. International Journal of Law and Psychiatry 24, 61–69.CrossRefGoogle ScholarPubMed
Visalli, H., Johnstone, L., Lazzaro, C.A. & Kasky, S. (1997). Medication self-administration: an outcome-oriented, consumer-driven program. Journal of Nursing Care Quality 11. 16–22.CrossRefGoogle ScholarPubMed
Wagstaff, K. & Solts, B.(2003). Inpatient experiences of ward rounds in acute psychiatric settings. Nursing Times 99, 34–36.Google ScholarPubMed
Warner, R.. Taylor, D., Powers, M. & Hyman, J. (1989). Acceptance of the mental illness label by psychotic patients:effects on functioning. American Journal of Orthopsychiatry 59, 398–409.CrossRefGoogle ScholarPubMed
Wetterling, T. & Tessmann, G. (2000). Patient education regarding the diagnosis. Results of a survey of psychiatric patients. Psychiatrische Praxis 27. 6–10.Google ScholarPubMed
Wetterling, T., Tessmann, G. & Junghanns, K. (2002). Informing psychiatric patients about medication – results of a query. Psychiatrische Praxis 29. 235–239.CrossRefGoogle ScholarPubMed
Zimmermann, C., Paccaloni, M. & Rimondini, M. (in press). Anche gli psichiatri hanno bisogno di migliorare le loro competenze comunicative? La Cura.Google Scholar