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Neurodevelopmental therapy adherence in Australian parent-child dyads: The impact of parental stress

Published online by Cambridge University Press:  03 June 2019

Sharna J. Loader ,
Nindy Brouwers  and
Lisa M. Burke
Sharna J. Loader
Affiliation:
School of Psychological Sciences, Monash University, Melbourne, Australia
Nindy Brouwers*
Affiliation:
School of Psychological Sciences, Monash University, Melbourne, Australia
Lisa M. Burke
Affiliation:
School of Psychological Sciences, Monash University, Melbourne, Australia
*
Author for correspondence: Nindy Brouwers, Email: [email protected]
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Abstract

Families with neurodevelopmental disorders engage in varied types of therapies to address behavioural, communication and cognitive challenges. Research suggests that consistent therapy adherence predicts positive therapy outcomes. The present study examined therapy adherence in 55 parent-child dyads where all children had been diagnosed with ASD, ADHD, and/or ID. Parents completed questionnaires assessing demographics, therapy type, adherence to child treatment, parental stress, and challenging child behaviour. The researchers proposed a new scale, the Child Therapy Adherence Scale (CTAS), which initial testing supported as a reliable measure of therapy adherence. Significant relationships were found between parental stress, annual household income and therapy adherence, with parental stress being a notably strong predictor of therapy adherence. No significant relationships were observed between child challenging behaviour, single parent status and therapy adherence. These findings have implications for practitioners, in that parent levels of stress and demographic influences may impact capacity to adhere to recommended home practice and interventions for children with neurodevelopmental disorders.

Keywords

therapy adherenceparental stressneurodevelopmental disorders
Type
Articles
Information
The Educational and Developmental Psychologist , Volume 36 , Issue 1 , July 2019 , pp. 22 - 26
Copyright
© Australian Psychological Society Ltd 2019 

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References

Allen, K.D., & Warzak, W.J. (2000). The problem of parental nonadherence in clinical behavior analysis: Effective treatment is not enough. Journal of Applied Behavior Analysis, 33, 373–391.CrossRefGoogle ScholarPubMed
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.) Washington, DC: Author.Google Scholar
Ageranioti-Bélanger, S., Brunet, S., D’Anjou, G., Tellier, G., Boivin, J., & Gauthier, M. (2012). Behaviour disorders in children with an intellectual disability. Paediatrics & Child Health, 17, 84–88.Google ScholarPubMed
Arabiat, D.H., Whitehead, L., & Al Jabery, M. (2018). The 12-year prevalence and trends of childhood disabilities in Australia: Findings from the Survey of Disability, Aging and Carers. Child: Care, Health and Development, 44, 697–703.Google ScholarPubMed
Baker, J.K., Smith, L.E., Greenberg, J.S., Seltzer, M.M., & Taylor, J.L. (2011). Change in maternal criticism and behavior problems in adolescents and adults with autism across a 7-year period. Journal of Abnormal Psychology, 120, 465–475.CrossRefGoogle ScholarPubMed
Berry, J.O., & Jones, W.H. (1995). The Parental Stress Scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12, 463–472.Google Scholar
Bourke-Taylor, H., Law, M., Howie, L., & Pallant, J.F. (2009). Development of the Child’s Challenging Behaviour Scale (CCBS) for mothers of school-aged children with disabilities. Child: Care, Health and Development, 36, 491–498.Google ScholarPubMed
Bourke-Taylor, H., Pallant, J., & Cordier, R. (2017). Child’s Challenging Behaviour Scale, Version 2 (CCBS–2): Psychometric evaluation with young children. American Journal of Occupational Therapy, 71, 7104220010p1–7104220010p10.Google ScholarPubMed
Boyle, C.A., Boulet, S., Schieve, L.A., Cohen, R.A., Blumberg, S.J., Yeargin-Allsopp, M., … Kogan, M.D. (2011). Trends in the prevalence of developmental disabilities in US children, 1997–2008. Pediatrics, 127, 1034–1042.CrossRefGoogle Scholar
Carr, T., Shih, W., Lawton, K., Lord, C., King, B., & Kasari, C. (2016). The relationship between treatment attendance, adherence, and outcome in a caregiver-mediated intervention for low-resourced families of young children with autism spectrum disorder. Autism, 20, 643–652.CrossRefGoogle Scholar
Carroll, D., Hallett, V., McDougle, C.J., Aman, M.G., McCracken, J.T., Tierney, E., … Scahill, L. (2014). Examination of aggression and self-injury in children with autism spectrum disorders and serious behavioral problems. Child and Adolescent Psychiatric Clinics of North America, 23, 57–72.CrossRefGoogle ScholarPubMed
Catalano, D., Holloway, L., & Mpofu, E. (2018). Mental health interventions for parent carers of children with autistic spectrum disorder: Practice guidelines from a Critical Interpretive Synthesis (CIS) systematic review. International Journal of Environmental Research and Public Health, 15, 341.CrossRefGoogle ScholarPubMed
Cohen, J. (1992). Statistical power analysis. Current Directions in Psychological Science, 1(3), 98–101. doi: 10.1111/1467-8721.ep10768783CrossRefGoogle Scholar
Cortina, J.M. (1993). What is coefficient alpha? An examination of theory and applications. Journal of Applied Psychology, 78, 98–104.Google Scholar
Cronbach, L.J. (1951). Coefficient alpha and the internal structure of tests. Psychometrika, 16, 297–334.CrossRefGoogle Scholar
Deater-Deckard, K. (1998). Parenting stress and child adjustment: Some old hypotheses and new questions. Clinical Psychology: Science and Practice, 5, 314–332.Google Scholar
Dillenburger, K., Keenan, M., Doherty, A., Byrne, T., & Gallagher, S. (2010). Living with children diagnosed with autistic spectrum disorder: Parental and professional views. British Journal of Special Education, 37, 13–23.CrossRefGoogle Scholar
Dykens, E.M. (2015). Family adjustment and interventions in neurodevelopmental disorders. Current Opinion in Psychiatry, 28, 121–126.Google ScholarPubMed
Hansen, B.H., Oerbeck, B., Skirbekk, B., Petrovski, B.É., & Kristensen, H. (2018). Neurodevelopmental disorders: Prevalence and comorbidity in children referred to mental health services. Nordic Journal of Psychiatry, 72, 285–291.CrossRefGoogle ScholarPubMed
Hayes, S.A., & Watson, S.L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642.CrossRefGoogle ScholarPubMed
Hock, R., Kinsman, A., & Ortaglia, A. (2015). Examining treatment adherence among parents of children with autism spectrum disorder. Disability and Health Journal, 8, 407–413.CrossRefGoogle ScholarPubMed
Jang, J., Matson, J.L., Williams, L.W., Tureck, K., Goldin, R.L., & Cervantes, P.E. (2013). Rates of comorbid symptoms in children with ASD, ADHD, and comorbid ASD and ADHD. Research in Developmental Disabilities, 34, 2369–2378.CrossRefGoogle ScholarPubMed
Johnson, C.A. (2017). The relationship between ADHD and emotion regulation and its effect on parenting stress. College of Arts & Sciences Senior Honors Theses, Paper 144. doi: 10.18297/honors/144Google Scholar
Kazdin, A.E., Holland, L., & Crowley, M. (1997). Family experience of barriers to treatment and premature termination from child therapy. Journal of Consulting and Clinical Psychology, 65, 453–463.CrossRefGoogle ScholarPubMed
Kazdin, A.E., & Whitley, M.K. (2003). Treatment of parental stress to enhance therapeutic change among children referred for aggressive and antisocial behavior. Journal of Consulting and Clinical Psychology, 71, 504–515.Google ScholarPubMed
Matson, J.L., & Cervantes, P.E. (2014). Commonly studied comorbid psychopathologies among persons with autism spectrum disorder. Research in Developmental Disabilities, 35, 952–962.Google ScholarPubMed
McConachie, H., & Fletcher-Watson, S. (2015). Building capacity for rigorous controlled trials in autism: The importance of measuring treatment adherence. Child: Care, Health and Development, 41, 169–177.Google ScholarPubMed
Moore, T.R., & Symons, F.J. (2011). Adherence to treatment in a behavioral intervention curriculum for parents of children with Autism Spectrum Disorder. Behavior Modification, 35, 570–594.CrossRefGoogle Scholar
Nock, M.K., & Ferriter, C. (2005). Parent management of attendance and adherence in child and adolescent therapy: A conceptual and empirical review. Clinical Child and Family Psychology Review, 8, 149–166.CrossRefGoogle ScholarPubMed
Roberts, J.M.A., & Williams, K. (2016). Autism spectrum disorder: Evidence-based/evidence-informed good practice for supports provided to preschool children, their families and carers. Retrieved from https://www.ndis.gov.au/html/sites/default/files/EarlyInterventionforAutismresearchreport.pdf Google Scholar
Ros, R., Hernandez, J., Graziano, P.A., & Bagner, D.M. (2016). Parent training for children with or at risk for developmental delay: The role of parental homework completion. Behavior Therapy, 47, 1–13.CrossRefGoogle ScholarPubMed
Stahmer, A.C., & Pellecchia, M. (2015). Moving towards a more ecologically valid model of parent-implemented interventions in autism. Autism, 19, 259–261.CrossRefGoogle ScholarPubMed
Strauss, K., Vicari, S., Valeri, G., D’Elia, L., Arima, S., & Fava, L. (2012). Parent inclusion in Early Intensive Behavioral Intervention: The influence of parental stress, parent treatment fidelity and parent-mediated generalization of behavior targets on child outcomes. Research in Developmental Disabilities, 33, 688–703.Google ScholarPubMed
Tonnsen, B.L., Boan, A.D., Bradley, C.C., Charles, J., Cohen, A., & Carpenter, L.A. (2016). Prevalence of autism spectrum disorders among children with intellectual disability. American Journal on Intellectual and Developmental Disabilities, 121, 487–500.CrossRefGoogle ScholarPubMed
Villodas, M.T., McBurnett, K., Kaiser, N., Rooney, M., & Pfiffner, L.J. (2014). Additive effects of parent adherence on social and behavioral outcomes of a collaborative school–home behavioral intervention for ADHD. Child Psychiatry & Human Development, 45, 348–360.CrossRefGoogle ScholarPubMed