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Subjective quality of life in children with intellectual impairment – how can it be assessed?

Published online by Cambridge University Press:  18 March 2005

Melanie White-Koning ,
Catherine Arnaud ,
Sylvie Bourdet-Loubère ,
Hélène Bazex ,
Allan Colver  and
Hélène Grandjean
Melanie White-Koning
Affiliation:
National Institute of Health and Medical Research (INSERM), U558, Toulouse, France.
Catherine Arnaud
Affiliation:
Université Paul Sabatier, France.
Sylvie Bourdet-Loubère
Affiliation:
National Institute of Health and Medical Research (INSERM), U558, Toulouse, France.
Hélène Bazex
Affiliation:
National Institute of Health and Medical Research (INSERM), U558, Toulouse, France.
Allan Colver
Affiliation:
University of Newcastle upon Tyne, Newcastle upon Tyne, UK.
Hélène Grandjean
Affiliation:
INSERM, U558, Toulouse, France on behalf of the SPARCLE Collaborative Group.
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Extract

The relationships between quality of life (QoL), participation, and environment are being studied within a multicentre European study of 8- to 12-year-old children with cerebral palsy (CP; Study of PARticipation of Children with cerebral palsy Living in Europe [SPARCLE], www.ncl.ac.uk/sparcle/). The international group was determined that children with CP who also had intellectual impairment (IIm) should not be excluded from the study, but the group realized that there was little information available on how to assess subjective QoL in children with IIm. This annotation reviews and discusses the literature on conceptual and methodological issues in relation to such assessment.

Type
Annotation
Information
Developmental Medicine and Child Neurology , Volume 47 , Issue 4 , April 2005 , pp. 281 - 285
Copyright
© 2005 Mac Keith Press

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