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The PedsQL in pediatric cerebral palsy: reliability, validity, and sensitivity of the Generic Core Scales and Cerebral Palsy Module

Published online by Cambridge University Press:  15 May 2006

James W Varni ,
Tasha M Burwinkle ,
Susan J Berrin ,
Sandra A Sherman ,
Kanela Artavia ,
Vanessa L Malcarne  and
Henry G Chambers
James W Varni
Affiliation:
Department of Landscape Architecture and Urban Planning, College of Architecture, USA. Department of Pediatrics, College of Medicine, Texas A&M University, College Station, Texas, USA.
Tasha M Burwinkle
Affiliation:
Department of Anesthesiology, University of Washington, Seattle, Washington, USA.
Susan J Berrin
Affiliation:
SDSU Master of Arts Program in Psychology, San Diego State University, USA.
Sandra A Sherman
Affiliation:
SDSU/UCSD Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego, USA.
Kanela Artavia
Affiliation:
UCLA Master of Social Welfare Program, University of California Los Angeles, Los Angeles, USA.
Vanessa L Malcarne
Affiliation:
Department of Psychology, San Diego State University, USA.
Henry G Chambers
Affiliation:
Motion Analysis Laboratory, Children's Hospital and Health Center, Department of Orthopedics, University of California, San Diego School of Medicine, San Diego, California, USA.
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Abstract

This investigation determined the measurement properties of the Pediatric Quality of Life Inventory (PedsQL) 3.0 Cerebral Palsy (CP) Module. PedsQL 4.0 Generic Core Scales and 3.0 CP Module were administered to 245 families. Mean age of the 134 males and 107 females was 8 years 1 month (SD 4y 4mo; range 2–18y). The sample included children with hemiplegia (n=55), diplegia (n=84), and quadriplegia (n=85). Twenty eight children had a Gross Motor Function Classification System classification at Level I, 40 at Level II, 86 at Level III, 43 at Level IV, and 37 at Level V. Reliability was demonstrated for the PedsQL 4.0 (α=0.86 child, 0.89 parent) and CP Module (α=0.79 child, 0.91 parent). The PedsQL 4.0 distinguished between healthy children and children with CP. Construct validity of the CP Module was supported. Sensitivity of the PedsQL was demonstrated among children with different diagnostic categories and gross motor function.

Type
Original Articles
Information
Developmental Medicine and Child Neurology , Volume 48 , Issue 6 , June 2006 , pp. 442 - 449
Copyright
2006 Mac Keith Press

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