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Quality of life of patients with congenital heart diseases

Published online by Cambridge University Press:  08 June 2011

Ana M. Silva ,
Cláudia Vaz ,
Maria E. G. Areias ,
Daniela Vieira ,
Cidália Proença ,
Victor Viana ,
Cláudia Moura  and
José C. Areias
Ana M. Silva
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Cláudia Vaz
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Maria E. G. Areias*
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Daniela Vieira
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Cidália Proença
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Victor Viana
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
Cláudia Moura
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
José C. Areias
Affiliation:
Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Cardiology Service, Hospital São João, Porto Medical School, Gandra, Portugal
*
Correspondence to: M. E. Areias, Department of Psychology, University of Porto, Instituto Superior de Ciências da Saúde do Norte (CESPU), Rua Central de Gandra, 1317, 4585-116 Gandra Paredes, Portugal. Tel: 00 351 22 415 71 00; Fax: 00 351 22 415 71 02; E-mail: [email protected]
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Abstract

Objectives

To assess the perception of the quality of life of adolescents and young adults with congenital heart disease and to examine the variables that have a negative impact on it and that add a resilience effect.

Methods

A total of 22 male and 18 female patients, aged 12–26 years, of whom 27 were admitted to surgery and 13 were not, participated in this study. All patients had complete medical records and were interviewed once; demographic and clinical data were collected, and patients filled a questionnaire on quality of life, the WHOQOL-BREF, and underwent an interview on social support, educational style, self-image, functional limitations, and emotional adjustment.

Results/Conclusions

Our patients showed a better perception of quality of life than did the general population, on the basis of psychological, social relationship and environment scales. Older patients hold a better perception of quality of life on the psychological scale. Cyanosis did not show any significant impact over perception of quality of life decay; however, the number of surgical procedures and the persistence of moderate-to-severe residual injuries had considerable detrimental effect. Social support had an impact on increasing resilience, promoting adjustment to illness. Several factors may play a role in adjustment to congenital heart disease, either improving the perception of quality of life or worsening it. We may conclude that some buffer variables on congenital heart disease may play roles in increasing the perception of quality of life of patients during their lifetime, social support probably explaining why the perception of quality of life is better than in the normal population. The number of surgeries and the moderate-to-severe residual injuries, however, reverted that effect.

Keywords

Adolescents and young adultsrisk and resilience factorspsychosocial aspects
Type
Original Articles
Information
Cardiology in the Young , Volume 21 , Issue 6 , 28 October 2011 , pp. 670 - 676
Copyright
Copyright © Cambridge University Press 2011

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