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Psychological aspects of congenital heart disease

Published online by Cambridge University Press:  19 August 2008

Freda V. Gardner  and
G. D. Angelini
Freda V. Gardner*
Affiliation:
From the University Department of Cardiac Surgery, Bristol Royal Infirmary, Bristol
G. D. Angelini
Affiliation:
From the University Department of Cardiac Surgery, Bristol Royal Infirmary, Bristol
*
Dr. F. V. Gardner, University Department of Cardiac Surgery, Bristol Royal Infirmary, Bristol BS2 8HW, United Kingdom. Tel. 0117 9283145; Fax. 0117 9299737.
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Abstract

Outcome following the treatment of congenital heart disease continues to improve and interest has focused on reducing morbidity as well as mortality. One important aspect of this is the psychological effect of congenital heart disease and its treatment on both children and their parents. This review addresses the extent and nature of the psychological morbidity associated with this disease, in particular the impact of the diagnosis on the management of patient and family. The etiology of the high level of psychosocial morbidity remains poorly understood. Data from the 1960s concerned with pre-school and school-age children is now of little value given the dramatic changes in the treatment of congenital heart disease, which is now predominantly in the neonatal period. While theory from developmental and pediatric psychology may be usefully applied to this area, further research is required to define effective psychological care for patients and their families.

Keywords

Congenital heart diseasepsychological effectschild development
Type
Review and Comment
Information
Cardiology in the Young , Volume 5 , Issue 4 , October 1995 , pp. 302 - 309
Copyright
Copyright © Cambridge University Press 1995

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References

1. Glaser, HH, Grace, S, Harrison, GS, Lynn, DB. Emotional implications of congenital heart disease in children. Pediatrics 1964; 33: 367–379.Google Scholar
2. Travis, C. Congenital heart disease. In: Chronic Illness in Children. University Press, Stanford, 1985, pp 257–267.Google Scholar
3. Garson, SL, Baer, P. Psychological aspects of heart disease in childhood. In: Garson, A, Bricker, JJ, McNarmara, DG (eds). Science and Practice of Pediatric Cardiology. Lea & Febiger, Philadelphia, 1990, pp 2519–2526.Google Scholar
4. Linde, LM, Rasof, B, Dunn, OJ, Rabb, E. Attitudinal factors in congenital heart disease. Pediatrics 1966; 38: 92–101.Google Scholar
5. Aldrich, CK. Some dynamics of anticipatory grief. In: Schoenberg, B, Carr, AC, Carr, AH, Kutscher, DP, Goldberg, IK (eds). Anticipatory Grief. Columbia Univesity Press, New York, 1974, pp 3–9.Google Scholar
6. Rozansky, GI, Linde, LM. Psychiatric study of parents of children with cyanotic congenital heart disease. Pediatrics 1971; 48: 450–456.CrossRefGoogle ScholarPubMed
7. Herbert, M. Clinical Child Psychology. John Wiley, Chichester, 1991; 13: 225–228.Google Scholar
8. Bettleheim, B. A Good Enough Parent. Pan Books Ltd, London, 1988, pp 2–15.Google Scholar
9. Parmlee, AH, Sigman, M, Kopp, CB, Haber, A. The concepts of a cumulative risk score for infants. In: Ellis, NR (ed). Aberrant Development in Infancy. Erlbaum Associates, Hillsdale, NJ, 1975, pp 9–16.Google Scholar
10. Bowlby, J. Maternal care and mental health. Bulletin of World Health Organization, 1951; 3: 355–534.Google ScholarPubMed
11. Klaus, MH, Kennell, JH. Maternal-InfantBonding.CV Mosby, St. Louis, 1976, pp 20–36.Google Scholar
12. Fraiberg, S. Every Child's Birthright: In Defense of Mothering. Basic Books, New York, 1977, pp 35–90.Google Scholar
13. Rees, PG, Tunstill, AM, Pope, P, Kinnear, D, Rees, S. Heart Children. A Practical Handbook for Parents of Children With Congenital Heart Problems. Heart Line Association, 1992.Google Scholar
14. Alderson, P. Choosing for Children. University Press, Oxford, 1990.Google Scholar
15. Ross, D, Hyams, B. Surgery and Your Heart. Beaconsfield Publishers, 1982.Google Scholar
16. Aisenberg, RB, Wolff, PH, Rosenthal, A, Nadas, AS. Psychological impact of cardiac catheterization. Pediatrics 1973; 51: 1051–1059.Google Scholar
17. Barnes, CM, Kenny, FM, Call, T, Reinhart, JB. Measurement in management of anxiety in children for open heart surgery. Pediatrics 1972; 49: 250–259.CrossRefGoogle ScholarPubMed
18. White, PD, Rusk, HA, Lee, PR. Rehabilitation of the Cardiovascular Patient. McGraw-Hill Co. Inc, New York, 1958.Google Scholar
19. Cooper, H. Psychological aspects of congenital heart disease. S Afr Med J 1959; 33: 349–352.Google Scholar
20. Auer, ET, Senturia, AG, Shopper, M. Congenital heart disease and childhood adjustment. Psychiatric Med 1971; 2: 23.Google Scholar
21. Green, M, Levitt, E. Constriction of body image in children with congenital heart disease. Pediatrics 1962; 29: 438.CrossRefGoogle ScholarPubMed
22. Freeman, N.H. Strategies for Representation in Young Children: Analysis of Spatial Skills and Drawing Processes. Academic Press, 1980, pp 15–30.Google Scholar
23. Garson, A, Williams, RB, Reckless, J. Long-term follow-up of patients with tetralogy of Fallot: physical health and psychopathology. Behav Pediatr 1976; 85: 429–433.Google Scholar
24. Eiser, C. Chronic Childhood Disease. University Press, Cambridge, 1990, pp 42–60.Google Scholar
25. Kramer, HH, Awiszus, D, Sterzel, U, Van Halteren, A, Classen, R. Development of personality and intelligence in children with congenital cardiac disease. J Child Psychol Psychiat 1989; 30: 299–308.Google Scholar
26. Messmer, BJ, Schallberger, U, Gattiker, R, Senning, A. Psychomotor and intellectual development after deep hypothermia and circulatory arrest in early infancy. J Thorac Cardiovasc Surg 1976; 72: 495–502.CrossRefGoogle ScholarPubMed
27. Clarkson, PM, MacArthur, BA, Barratt-Boyes, BG, Whitlock, RM, Neutze, JM. Developmental progress after cardiac surgery in infancy using hypothermia and circulatory arrest. Circulation 1980; 62: 855–861.CrossRefGoogle ScholarPubMed
28. Wells, FC, Caplan, HL, Lincoln, C. Duration of circulatory arrest does influence the psychological development of children after cardiac operations in early life. J Thorac Cardiovasc Surg 1989; 86: 823–831.CrossRefGoogle Scholar
29. Rossi, R, van, der Linden J, Ekroth, R, Scallan, M, Thompson, RJ, Lincoln, C. No flow or low flow? A study of the ischemic marker creatine kinase BB after deep hypothermic procedures. J Thorac Cardiovasc Surg 1989; 98: 193–199.Google Scholar
30. Bellinger, DC, Wernovsky, G, Rappaport, LA, Mayer, JE, Castaneda, AR, Farrell, DM, Wessel, DL, Lang, P, Hickey, PR, Jonas, RA, Newburger, J W.Cognitive development of children following early repair of transposition of the great arteries using deep hypothermic circulatory arrest. Pediatrics 1991; 87:701–707.Google Scholar
31. Binger, CM, Ablin, AR, Feuerstein, RC, Kushner, JH, Zoger, S, Mikkelson, C. Childhood leukemia: emotional impact on patient and family. N Engl J Med 1969; 280: 414–418.Google Scholar
32. Barnes, JM. The reactions of children and adolescents to the death of a parent or sibling. In: Sahler, OJZ (ed). The Child and Death. CV Mosby, St.Louis, 1978, pp 185–201.Google Scholar
33. Kaplan, DM, Grobstein, R, Smith, A. Predicting the impact of severe illness in families. Health Soc Work 1976; 1: 72–82.CrossRefGoogle ScholarPubMed
34. Morrow, GR, Hoagland, A, Carnrike, CLM. Social support and parental adjustment to pediatric cancer. J Consult Clin Psychol 1981; 49: 763–765.Google Scholar
35. Schijving, J,Goff, JR, Paulson, MA. Psychosocial adjustment of families following the death of a child. In: Schulman, JL, Kupst, MJ (eds). The Child with Cancer. Charles C. Thomas, Springfield, IL, 1980, pp 183–193.Google Scholar
36. Futterman, EH, Hoffman, I. Crisis and adaptation in the families of fatally ill children. In: Anthony, , Koupernick, C (eds). The Child and His Family: The Impact of Disease and Death. Wiley, New York, 1973, pp 127–143.Google Scholar
37. Lascari, AD, Stehbens, JA. The reactions of families to childhood leukemia. Clin Pediatr 1973; 12: 210–214.Google Scholar
38. Stehbens, JA, Lascari, AD. Psychological follow-up of families with childhood leukemia. J Clin Psychol 1974; 30: 394–397.Google Scholar
39. Bowlby, J. Processes of mourning. Int J Psychoanal 1961; 41:89–113.Google Scholar
40. Bowlby, J. Attachment and loss: retrospect and prospect. Am J Orthopsychiat 1982; 52: 664–678.Google Scholar
41. Cain, AC, Cain, BS. On replacing a child. J Am Acad Child Psychiatry 1964; 3: 443–456.CrossRefGoogle ScholarPubMed
42. Peck, B, Martin, J, Pinkerton, P. Bereavement following the death of a child from leukemia. In: SIOP XV Annual Conference, Internal report.York, 1983, pp 15–16.Google Scholar
43. Poznanski, EO. The “replacement child”: a saga of unresolved grief. J Pediatr 1972; 81: 1190–1193.Google Scholar
44. Kaplan, DM. The family when the child dies. In: Proceedings of the American Cancer Society, Second National Conference on Human Values and Cancer, 1978, pp 78–82.Google Scholar
45. Kupst, MJ. Continuing involvement with families after the death of a child from cancer. In: Schulman, JL, Kupst, MJ (eds). The Child with Cancer. Charles C. Thomas, Springfield, IL, 1980, pp 56–62.Google Scholar
46. Kupst, MJ, Schulman, JL, Honig, G, Maurer, H, Morgan, E, Fochtman, D. Family coping with childhood leukemia: one year after diagnosis. J Pediat Psychol 1982; 7: 157–174.Google Scholar
47. Munson, SW. Family structure and the family's general adaptation to loss: helping families deal with the death of a child. In: Sahler, OJZ (ed). The Child and Death. CV Mosby, St. Louis, 1978, pp 29–42.Google Scholar
48. Satterwhite, BB, Belle-Isle, J, Conradt, B. Parent groups as an aid to mourning and grief work. In: Sahler, OJZ (ed). The Child and Death. CV Mosby, St. Louis, 1978, pp 211–218.Google Scholar
49. Gardner, FV, Freeman, NH, Black, AMS and Angelini, GD. Disturbed mother-infant interaction in association with congenital heart disease. [In press]Google Scholar
50. Eiser, C. Psychological effects of chronic disease. J Child Psychol Psychiat 1991; 31: 85–98.CrossRefGoogle Scholar