Hostname: page-component-cd9895bd7-dzt6s Total loading time: 0 Render date: 2024-12-23T09:55:26.914Z Has data issue: false hasContentIssue false
  • English
  • Français

Primary care cardiology for patients with hypoplastic left heart syndrome

Published online by Cambridge University Press:  13 December 2011

Jeffrey R. Boris
Jeffrey R. Boris*
Affiliation:
Division of Cardiology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, United States of America
*
Correspondence to: Dr J. R. Boris, MD, Clinical Associate Professor of Paediatrics, Division of Cardiology, Children's Hospital of Philadelphia, 3400 Civic Center Boulevard, Philadelphia, Pennsylvania 19104, United States of America. Tel: +1 215 590 3180; Fax: +1 267 426 5324; E-mail: [email protected]
Get access Rights & Permissions [Opens in a new window]

Abstract

Primary care cardiology is also known as ambulatory cardiology and outpatient cardiology. Primary care cardiology for the longitudinal management of patients with hypoplastic left heart syndrome is both poorly described and has limited evidence to justify its basis. This article briefly discusses the various complications that these patients can develop, reviews the medical literature, and describes a framework for the care of these complex patients from infancy to transition to care by specialists in adults with congenital cardiac disease.

Keywords

Ambulatory cardiologyoutpatient cardiologysingle ventriclefunctionally univentricular heartNorwoodGlennFontan
Type
Original Article
Information
Cardiology in the Young , Volume 21 , Issue S2: A Holistic Approach to Hypoplastic Left Heart Syndrome and other evolving challenges in Pediatric and Congenital Cardiac Disease , 13 December 2011 , pp. 53 - 58
Copyright
Copyright © Cambridge University Press 2011

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

1.Wernovsky, G, Rome, JJ, Tabbutt, S, et al. Guidelines for the outpatient management of complex congenital heart disease. Congenit Heart Dis 2006; 1: 10–26.CrossRefGoogle ScholarPubMed
2.Ghanayem, NS, Hoffman, GM, Mussatto, KA, et al. Home surveillance program prevents interstage mortality after the Norwood procedure. J Thorac Cardiovasc Surg 2003; 126: 1367–1377.CrossRefGoogle ScholarPubMed
3.Ghanayem, NS, Cava, JR, Jaquiss, RD, Tweddell, JS. Home monitoring of infants after stage one palliation for hypoplastic left heart syndrome. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2004; 7: 32–38.CrossRefGoogle ScholarPubMed
4. The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC). http://jcchdqi.org, accessed 26 February 2011.Google Scholar
5. The Children's Oncology Group. http://childrensoncologygroup.org, accessed 26 February 2011.Google Scholar
6.Rathod, RH, Farias, M, Friedman, KG, et al. A novel approach to gathering and acting on relevant clinical information: SCAMPs. Congenit Heart Dis 2010; 5: 343–353.CrossRefGoogle ScholarPubMed
7. The Pediatric Heart Network. http://www.pediatricheartnetwork.com, accessed 26 February 2011.Google Scholar
8. The International Pediatric and Congenital Cardiac Code (IPCCC). http://www.ipccc.net/, accessed 26 February 2011.Google Scholar