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Out of many, one: integrating data in the paediatric cardiovascular environment

Published online by Cambridge University Press:  29 September 2016

David J. Bradley ,
Danny T. Y. Wu ,
Caren S. Goldberg ,
Gerald S. Serwer ,
Ray E. Lowery ,
Janet E. Donohue ,
Jennifer C. Hirsch-Romano ,
Kai Zheng  and
Sara K. Pasquali
David J. Bradley*
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Danny T. Y. Wu
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Caren S. Goldberg
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Gerald S. Serwer
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Ray E. Lowery
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Janet E. Donohue
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Jennifer C. Hirsch-Romano
Affiliation:
Department of Cardiac Surgery, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
Kai Zheng
Affiliation:
Department of Informatics, Donald Bren School of Information and Computer Sciences, University of California, Irvine, California, United States of America
Sara K. Pasquali
Affiliation:
Department of Pediatrics and Communicable Diseases, C. S. Mott Children’s Hospital, University of Michigan Medical School, Ann Arbor, Michigan, United States of America
*
Correspondence to: D. J. Bradley, MD, University of Michigan Congenital Heart Center, C. S. Mott Children’s Hospital, Floor 11, Room 715Z, 1540 East Medical Drive, Ann Arbor, MI 48109, United States of America. Tel: +1 734 936 7418; Fax: +1 734 936 9470; E-mail: [email protected]
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Abstract

Large volumes of data and multiple computing platforms are now universal components of paediatric cardiovascular medicine, but are in a constant state of evolution. Often, multiple sets of related data reside in disconnected “silos”, resulting in clinical, administrative, and research activities that may be duplicative, inefficient, and at times inaccurate. Comprehensive and integrated data solutions are needed to facilitate these activities across congenital heart centres. We describe methodology, key considerations, successful use cases, and lessons learnt in developing an integrated data platform across our congenital heart centre.

Keywords

Paediatric cardiologyelectronic health recordregistrydatabase
Type
Original Articles
Information
Cardiology in the Young , Volume 27 , Issue 4 , May 2017 , pp. 757 - 763
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Copyright
© Cambridge University Press 2016 

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