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Clinical and psychosocial factors affecting treatment adherence in children with rheumatic heart disease

Published online by Cambridge University Press:  06 July 2022

Fatos Alkan Open the ORCID record for Fatos Alkan [Opens in a new window] ,
Ecem Yigit ,
Sermin Yalın Sapmaz  and
Senol Coskun
Fatos Alkan*
Affiliation:
Celal Bayar University, School of Medicine, Department of Pediatrics, Division of Pediatrics Cardiology, Manisa, Turkey
Ecem Yigit
Affiliation:
Celal Bayar University, School of Medicine, Department of Pediatrics, Manisa, Turkey
Sermin Yalın Sapmaz
Affiliation:
Celal Bayar University, School of Medicine, Division of Child and Adolescent Psychiatry, Manisa, Turkey
Senol Coskun
Affiliation:
Celal Bayar University, School of Medicine, Department of Pediatrics, Division of Pediatrics Cardiology, Manisa, Turkey
*
Author for correspondence: Dr. Fatos Alkan, Celal Bayar University, Medical Faculty, Department of Pediatric, Division of Pediatric Cardiology, 45030, Manisa, Turkey. Tel: +90-(236)-444 4228; Fax: +90-(236)-233 8040. E-mail: [email protected]
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Abstract

Introduction:

The present study aimed to investigate the outcomes of psychiatric symptoms and family functions on treatment adherence in children, in addition to sociodemographic characteristics and clinical factors related to the disease.

Material and Method:

The research sample consisted of 43 children who were followed up with rheumatic heart disease diagnosis during the study. Clinical features were obtained from the patient files. The family assessment device evaluating family functioning and the strengths and difficulties questionnaire scale to screen emotional and behavioural problems in children were used.

Results:

Considering the regularity of treatment in our patients, there were 31 (72%) patients adherent to secondary prophylaxis regularly, 7 (6.9%) patients were partially adherent, and 5 (11.6%) patients non-adherent. Patients were divided into treatment adherent (Group 1) and non-adherent (Group 2). There was no statistically significant impact on treatment adherence whether the patients receive enough information, lifestyle, fear of developing adverse effects, fear of addiction, lack of health insurance, difficulties in reaching the drug or hospital. However, the fear of syringes on treatment adherence had an effect statistically significantly (p = 0.047). Forgetting to get a prescription and/or take the drug when the time comes was statistically higher in the non-adherent group (p = 0.009). There was no statistically significant effect of psychosocial factors on treatment adherence between groups.

Discussion:

Providing an effective active recall system, involving primary care workers, providing training on the disease and its management, and a comprehensive pain management programme can improve the process, especially for cases where secondary prophylaxis is missed.

Keywords

Rheumatic heart diseasepsychosocial factorstreatment adherence
Type
Original Article
Information
Cardiology in the Young , Volume 32 , Issue 10 , October 2022 , pp. 1668 - 1674
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Copyright
© The Author(s), 2022. Published by Cambridge University Press

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