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Associations between knowledge of disease, depression and anxiety, social support, sense of coherence and optimism with health-related quality of life in an ambulatory sample of adolescents with heart disease*

Published online by Cambridge University Press:  12 February 2013

QiFeng Wang ,
Margaret Hay ,
David Clarke  and
Samuel Menahem
QiFeng Wang
Affiliation:
School of Psychology and Psychiatry, Monash University, Melbourne, Australia
Margaret Hay
Affiliation:
Health Psychology and Behavioural Medicine Unit, Monash University, Melbourne, Australia
David Clarke
Affiliation:
School of Psychology and Psychiatry, Monash University, Melbourne, Australia
Samuel Menahem*
Affiliation:
School of Psychology and Psychiatry, Monash University, Melbourne, Australia Department of Paediatrics, Monash University, Melbourne, Australia Monash Heart, Monash Medical Centre, Melbourne, Australia
*
Correspondence to: Proffesor S. Menahem, Monash Heart, Monash Medical Centre, 246 Clayton Road, Clayton, Melbourne, Vic 3168, Australia. Tel: +61-3-95946666; Fax: +61-3-95761352; E-mail: [email protected]
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Abstract

Introduction

Advances in overall management have led to an increasing number of adolescents with congenital heart disease reaching adulthood. This study aimed to evaluate the health-related quality of life in adolescents with heart disease, and examine its relationship with the adolescents’ knowledge and understanding of their congenital heart disease, its severity, and its relationship to the degree of anxiety and depression, feeling of optimism and sense of coherence experienced by the adolescents together with their social support.

Methods and results

Adolescents with heart disease were recruited from an ambulatory setting at a tertiary centre. Patients completed self-report questionnaires including the Paediatric Quality of Life Inventory 3.0-Cardiac Module, a questionnaire assessing the adolescents’ knowledge of their cardiac condition, the Hospital Anxiety and Depression Scale, Multidimensional Scale of Perceived Social Support, Life Orientation Test-Revised, and Sense of Coherence-13, supplemented by clinical information provided by the attending cardiologists. A total of 114 patients aged 12–20 years were recruited over 15 months. In all, 98% of patients were in New York Heart Association class I. Their health-related quality of life was found to positively correlate with a low level of anxiety and depression (Pearson correlation, r = −0.57, p < 0.001), a good knowledge of their cardiac condition (r = 0.31, p < 0.01), feelings of optimism (r = 0.39, p < 0.001), adequate social support (r = 0.27, p < 0.01), and a strong sense of coherence (r = 0.24, p < 0.01).

Conclusions

Adolescents’ knowledge and understanding of their cardiac abnormality together with an improved sense of well-being had a positive influence on their health-related quality of life.

Keywords

Health-related quality of lifeknowledgeoptimismsense of coherencesocial supportadolescents with congenital heart diseaseanxiety and depression
Type
Original Articles
Information
Cardiology in the Young , Volume 24 , Issue 1 , February 2014 , pp. 126 - 133
Copyright
Copyright © Cambridge University Press 2013 

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Footnotes

*

Presented in part: American College of Cardiology, April 2011 partly supported by the chair fund.

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