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Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease

Published online by Cambridge University Press:  22 April 2005

Elisabeth H. M. van Rijen ,
Elisabeth M. W. J. Utens ,
Jolien W. Roos-Hesselink ,
Folkert J. Meijboom ,
Ron T. van Domburg ,
Jos R. T. C. Roelandt ,
Ad J. J. C. Bogers  and
Frank C. Verhulst
Elisabeth H. M. van Rijen
Affiliation:
Department of Child and Adolescent Psychiatry, Erasmus Medical Centre – Sophia, The Netherlands
Elisabeth M. W. J. Utens
Affiliation:
Department of Child and Adolescent Psychiatry, Erasmus Medical Centre – Sophia, The Netherlands
Jolien W. Roos-Hesselink
Affiliation:
Department of Cardiology, Thoraxcenter, Erasmus Medical Centre, The Netherlands
Folkert J. Meijboom
Affiliation:
Department of Cardiology, Thoraxcenter, Erasmus Medical Centre, The Netherlands
Ron T. van Domburg
Affiliation:
Department of Cardiology, Thoraxcenter, Erasmus Medical Centre, The Netherlands
Jos R. T. C. Roelandt
Affiliation:
Department of Cardiology, Thoraxcenter, Erasmus Medical Centre, The Netherlands
Ad J. J. C. Bogers
Affiliation:
Department of Cardiothoracic Surgery, Thoraxcenter, Erasmus Medical Centre, The Netherlands
Frank C. Verhulst
Affiliation:
Department of Child and Adolescent Psychiatry, Erasmus Medical Centre – Sophia, The Netherlands
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Abstract

Objective: To examine the current subjective state of health, and the longitudinal course of psychological well-being, in adult patients with congenital cardiac malformations. Methods: Our study concerns the second follow-up of a cohort of patients with congenital cardiac malformations. We examined 362 consecutive patients, aged from 20 to 46 years, who underwent surgical procedures for treatment of congenital cardiac disease between 1968 and 1980, specifically for treatment of atrial and ventricular septal defects, tetralogy of Fallot, transposition, and pulmonary stenosis. The patients were submitted to extensive medical and psychological examination. During psychological examination, in which all patients were seen by the same psychologist (EvR), patients filled in questionnaires concerning their current subjective state of health, using the 36-item Short Form Health Survey (SF-36), and psychological well-being, answering the Heart Patients Psychological Questionnaire. The data we acquired at their first follow-up was used to measure the longitudinal course of psychological well-being over the intervening period of 10 years. Results: When compared to a reference group, the patients assessed their state of health less favourably concerning physical functioning, but more favourable with regard to social functioning, bodily pain, and limitations of role due to emotional problems. Younger female patients reported more limitations of role due to physical functioning than did the female patients who were older. Patients with transposition showed a negative trend for their subjective state of health, but reported the least bodily pain. Within the overall group of patients, displeasure had increased, while social inhibition had decreased, over the intervening period of 10 years. Conclusion: Extra attention should be paid to the subjective experiences of young female patients with congenital cardiac disease. The patients with transposed arterial trunks seem overall to experience poorer physical health.

Keywords

Congenital cardiac malformationsquality of lifefollow-upadult congenital heart diseasepsychology
Type
Original Article
Information
Cardiology in the Young , Volume 15 , Issue 2 , March 2005 , pp. 168 - 175
Copyright
© 2005 Cambridge University Press

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