Hostname: page-component-cd9895bd7-p9bg8 Total loading time: 0 Render date: 2024-12-23T19:40:40.142Z Has data issue: false hasContentIssue false
  • English
  • Français

Support Groups for Informal Caregivers Don't Work! Refocus the Groups or the Evaluations?

Published online by Cambridge University Press:  29 November 2010

Jean-Pierre Lavoie
Jean-Pierre Lavoie
Affiliation:
Direction de santé publique de Montréal-Centre*
Get access Rights & Permissions [Opens in a new window]

Résumé:

Cet article fait un bilan critique des écrits relatifs à l'évaluation de groupes de soutien pour aidants naturels, une intervention de plus en plus répandue dans les organismes publics et communautaires. Après avoir situé le contexte des groupes de soutien, l'article décrit rapidement les types de groupe de soutien évalués, les types de recherches évaluatives, les principaux résultats et limites de ces évaluations. Il ressort que les études se sont principalement intéressées aux groupes de soutien de courte durée, visant à offrir de l'information et du soutien émotif, ainsi qu'à développer de nouvelles habiletés. Les évaluations cherchent principalement à mesurer les effets des groupes sur les conséquences du stress en utilisant des devis de type expérimental et des mesures standardisées. Très peu d'importance est accordée à l'évaluation d'implantation. La majorité des études conclut à l'absence d'effet. Trois pistes de recherche sont proposées soient: l'analyse de différents types de groupes de soutien, la multiplication des approches théoriques et disciplinaires accordant plus d'attention aux dynamiques de groupe et aux dimensions sociales et, enfin, le recours à un éventail plus large de méthodes.

Keywords

Support GroupsEvaluationModelsMethodsGroupes de soutienévaluationmodèlesméthodes
Type
Articles
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 14 , Issue 3 , Automne/Fall 1995 , pp. 580 - 603
Copyright
Copyright © Canadian Association on Gerontology 1995

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Baillie, V., Norbeck, J.S., & Barnes, L.E.A. (1988). Stress, Social Support, and Psychological Distress of Family Care Givers of the Elderly. Nursing Research, 37(4), 217–222.CrossRefGoogle ScholarPubMed
Baldwin, B.A., Kleeman, K.M., Stevens, G.L., & Rasin, J. (1989). Family Caregiver Stress: Clinical Assessment and Management. International Psychogeriatrics, 1(2), 185–194.CrossRefGoogle ScholarPubMed
Biegel, D.E., Sales, E., & Schulz, R. (1991). Family Caregiving in Chronic Illness. Family Caregiver Applications Series, no. 1. Newbury Park: Sage.Google Scholar
Bowers, B.J. (1987). Intergenerational Caregiving: Adult Caregivers and Their Aging Parents. Advanced Nursing Science, 9(2), 20–31.CrossRefGoogle ScholarPubMed
Chiverton, P., & Caine, E.D. (1989). Education to Assist Spouses in Coping with Alzheimer's Disease: A Controlled Trial. Journal of American Geriatrics Society, 37, 593–598.CrossRefGoogle ScholarPubMed
Demers, A., & Lavoie, J.P. (forthcoming). Effect of Support Groups on Family Caregivers to the Frail Elderly. Canadian Journal on Aging.Google Scholar
Dura, J.R., & Kielcot-Glaser, J. (1990). Sample Bias in Caregiving Research. Journal of Gerontology: Psychological Science, 45(5), 200–204.CrossRefGoogle ScholarPubMed
Gallagher, D.E. (1985). Intervention Strategies to Assist Caregivers of Frail Elders: Current Research Status and Future Research Directions. In Lawton, M.P. & Maddox, G.L. (Eds.), Annual Review of Gerontology and Geriatrics (vol. 5, pp. 249–282). New York: Springer Publishing Company.Google Scholar
Gendron, C., Poitras, L., Dastoor, D., & Pérodeau, G. (1992). Démence sénile: évaluation d'une intervention de groupe auprès de personnes-soutien. Verdun: Centre hospitalier Douglas.Google Scholar
George, L.K. (1990). Caregiver Stress Studies — There really is more to learn. The Gerontologist, 30(5), 580–581.CrossRefGoogle ScholarPubMed
Gergen, K.J., Gergen, M.M., & Jutras, S. (1992). Psychologie Sociale. Laval: Éditions Études vivantes.Google Scholar
Glosser, G., & Wexler, D. (1985). Participants' Evaluation of Educational/Support Groups for Families of Patients with Alzheimer's Disease and Other Dementias. The Gerontologist, 25(3), 232–236.CrossRefGoogle ScholarPubMed
Gonyea, J.G. (1989). Alzheimer's Disease Support Groups: An Analysis of Their Structure, Format and Perceived Benefits. Social Work in Health Care, 4(1), 61–72.CrossRefGoogle Scholar
Gonyea, J.G. (1991). Alzheimer's Disease Support Group Participation and Caregiver Weil-Being. Clinical Gerontologist, 10(2), 17–34.CrossRefGoogle Scholar
Greene, V.L., & Monahan, D.J. (1989). The Effect of a Support Group and Education Program on Stress and Burden Among Family Caregivers to Frail Elderly Persons. The Gerontologist, 29(4), 472–477.CrossRefGoogle ScholarPubMed
Haley, W.E. (1989). Group Intervention for Dementia Family Caregivers: A Longitudinal Perspective. The Gerontologist, 29(4), 478–480.CrossRefGoogle ScholarPubMed
Haley, W.E., Brown, L., & Levine, E.C. (1987). Experimental Evaluation of the Effectiveness of Group Intervention for Dementia Caregivers. The Gerontologist, 27(3), 376–382.CrossRefGoogle ScholarPubMed
Hamlet, E., & Read, S. (1990). Caregiver Education and Support Group: A Hospital Based Group Experience. Journal of Gerontological Social Work, 15(1/2), 75–88.CrossRefGoogle Scholar
Harris, P.B. (1993). The Misunderstood Caregiver? A Qualitative Study of the Male Caregiver of Alzheimer's Disease Victims. The Gerontologist, 33(4), 551–556.CrossRefGoogle ScholarPubMed
Hébert, R., Leclerc, G., Bravo, G., Girouard, D., & Lefrançois, R. (1994). Efficacy of a Support Group Programme for Caregivers of Demented Patients in the Community: A Randomized Controlled Trial. Archives of Gerontology and Geriatrics, 18, 1–14.CrossRefGoogle ScholarPubMed
Kahan, J., Kemp, B., Staples, F., & Brummel-Smith, K. (1985). Decreasing the Burden in Families Caring for a Relative With a Dementing Illness. A Controlled Study. Journal of the American Geriatrics Society, 33, 664–670.CrossRefGoogle ScholarPubMed
Knight, B.G., Lutzky, S.M., & Macofsky-Urban, F. (1993). A Meta-analytic review of Interventions for Caregiver Distress: Recommendations for Future Research. The Gerontologist, 33(2), 240–248.CrossRefGoogle ScholarPubMed
Kosberg, J.I., & Cairl, R.E. (1986). The Cost of Care Index: A Case Management Tool for Screening Informal Care Providers. The Gerontologist, 26(3), 273–278.CrossRefGoogle ScholarPubMed
Lawton, M.P., Moss, M., Kleban, M.H., Glicksman, A., & Rovine, M. (1991). A Two-Factor Model of Caregiving Appraisal and Psychological Weil-Being. Journal of Gerontology: Psychological Sciences, 46(4), 181–189.CrossRefGoogle Scholar
Lovett, S., & Gallagher, D. (1988). Psychoeducational Interventions for Family Caregivers: Preliminary Efficacy Data. Behavior Therapy, 19, 321–330.CrossRefGoogle Scholar
McAfee, M.E., Rush, P.A., Bell, P., & Martichuski, D. (1989). Including Persons with Early Stage Alzheimer's Disease in Support Groups and Strategy Planning. The American Journal of Alzheimer's Care and Related Disorders & Research, November/December, 18–22.Google Scholar
Montgomery, R.J., & Borgatta, E.F. (1989). The Effects of Alternative Support Strategies on Family Caregiving. The Gerontologist, 29(4), 457–464.CrossRefGoogle ScholarPubMed
Patton, M.Q. (1990). Qualitative Evaluation and Research Methods (2nd ed.). Newbury Park: Sage Publications.Google Scholar
Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the Stress Process: An Overview of Concepts and their Measures. The Gerontologist, 30(5), 583–594.CrossRefGoogle ScholarPubMed
Pineault, R., & Daveluy, C. (1986). La planification de la santé, concepts, méthodes et stratégies. Montréal: Agence d'Arc Inc.Google Scholar
Robinson, K.M. (1988). A Social Skills Training Program for Adult Caregivers. Advances in Nursing Science, 10(2), 59–72.CrossRefGoogle ScholarPubMed
Rossi, P.H., Freeman, H.E., & Wright, S.R. (1979). Evaluation — A Systematic Approach. Beverly Hills, CA: Sage.Google Scholar
Schulz, R. (1990). Theoretical Perspectives on Caregiving: Concepts, Variables, and Methods. In Biegel, D.E. & Blum, A. (Eds.), Aging and Caregiving: Theory, Research, and Policy (pp. 27–52). Newbury Park: Sage Publications.Google Scholar
Schulz, R., Visintainer, P., & Williamson, G.M. (1990). Psychiatric and Physical Morbidity Effects of Caregiving. Journal of Gerontology: Psychological Sciences, 45(5), 181–191.CrossRefGoogle ScholarPubMed
Schulz, R., & Williamson, G.M. (1991). A 2-Year Longitudinal Study of Depression Among Alzheimer's Caregivers. Psychology and Aging, 6(4), 569–578.CrossRefGoogle ScholarPubMed
Shibbal-Champagne, S., & Lipinska-Stachow, D.M. (1986). Alzheimer's Educational/Support Group: Considerations for Success Awareness of Family Tasks, Pre-Planning, and Active Professional Facilitation. Journal of Gerontological Social Work, 9(2), 41–48.CrossRefGoogle Scholar
Smith, G.C., Smith, M.F., & Toseland, R. (1991). Problems Identified by Family Caregivers in Counseling. The Gerontologist, 31(1), 15–22.CrossRefGoogle ScholarPubMed
Toseland, R. (1990). Long-Term Effectiveness of Peer-Led and Professionally Led Support Groups for Caregivers. Social Service Review, 64(2), 308–327.CrossRefGoogle Scholar
Toseland, R.W., Labrecque, M.S., Goebel, S.T., & Whitney, M.H. (1992). An Evaluation of a Group Program for Spouses of Frail Elderly Veterans. The Gerontologist, 32(3), 382–390.CrossRefGoogle ScholarPubMed
Toseland, R.W., & Rossiter, C.M. (1989). Group Interventions To Support Family Caregivers: A Review and Analysis. The Gerontologist, 29(4), 438–448.CrossRefGoogle Scholar
Toseland, R.W., Rossiter, C.M., & Labrecque, M.S. (1989a). The Effectiveness of Peer-Led and Professionally Led Groups to Support Family Caregivers. The Gerontologist, 29(4), 465–471.CrossRefGoogle ScholarPubMed
Toseland, R.W., Rossiter, C.M., & Labrecque, M.S. (1989b). The Effectiveness of Two Kinds of Support Groups for Caregivers, Social Science Review, 415–432.Google Scholar
Toseland, R.W., Rossiter, C.M., Peak, T., & Hill, P. (1990). Therapeutic Processes in Peer Led and Professionally Led Support Groups for Caregivers. International Journal of Group Psychotherapy, 40(3), 279–303.CrossRefGoogle ScholarPubMed
Whitlatch, C.J., Zarit, S.H., & von Eye, A. (1991). Efficacy of Interventions with Caregivers: A Reanalysis. The Gerontologist, 31(1), 9–14.CrossRefGoogle ScholarPubMed
Winogrond, I.R., Fisk, A.A., Kirsling, R.A., & Keyes, B. (1987). The Relationship of Caregiver Burden and Morale to Alzheimer's Disease Patient Function in a Therapeutic Setting. The Gerontologist, 27(3), 336–339.CrossRefGoogle Scholar
Wright, S.D., Lund, D.A., Pett, M.A., & Caserta, M.S. (1987). The Assessment of Support Group Experiences by Caregivers of Dementia Patients. Clinical Gerontologist, 64(6), 35–59.CrossRefGoogle Scholar
Zarit, S.H. (1989). Do We Need Another “Stress And Caregiving” Study? The Gerontologist, 29(2), 147–148.CrossRefGoogle ScholarPubMed
Zarit, S.H. (1990). Interventions with Frail Elders and Their Families: Are They Effective and Why? In Stephens, M.A.P., Stephens, A.P., Hobfoil, S.E. & Tennenbaum, D.L. (Eds.), Stress and Coping in Later-Life Families (pp. 241–265). New York: Hemisphere Publishing Corp.Google Scholar
Zarit, S.H., Anthony, C.R., & Boutselis, M. (1987) Interventions with Care Givers of Dementia Patients: Comparison of Two Approaches. Psychology and Aging, 2(3), 225–232.CrossRefGoogle ScholarPubMed
Zarit, S.H., Tood, P.A., & Zarit, J.M. (1986). Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study. The Gerontologist, 26(3), 260–266.CrossRefGoogle ScholarPubMed