Hostname: page-component-cd9895bd7-mkpzs Total loading time: 0 Render date: 2024-12-23T08:00:48.209Z Has data issue: false hasContentIssue false

The Relative Contribution of Subjective Factors to Expressed Burden among Spousal Caregivers of Suspected Dementia Patients*

Published online by Cambridge University Press:  29 November 2010

Norm O'Rourke
Affiliation:
University of Regina
Beth E. Haverkamp
Affiliation:
University of British Columbia
Holly Tuokko
Affiliation:
University of Victoria
Sherri Hayden
Affiliation:
Vancouver Hospital and Health Sciences Centre-UBC Site
B. Lynn Beattie
Affiliation:
Vancouver Hospital and Health Sciences Centre-UBC Site

Abstract

Burden among caregivers has consistently been recognized as a function of both subjective and objective variables. In addition to concrete role demands, caregivers' perceptions and appraisal strongly contribute to perceived burden. At present, however, the relative contribution of objective and subjective factors remains unclear. This question was addressed among 70 spousal caregivers recruited within a dementia assessment clinic. Subsequent to adjustment for socially desirable responding, both groupings of variables significantly contribute to the prediction of burden scores. These findings are discussed in the context of the hopelessness theory of depression. Demographic similarity between these caregivers and a corresponding sample of randomly derived spousal caregivers recruited as part of the Canadian Study of Health and Aging (CSHA) suggest the results of this study may be generalized with greater confidence.

Résumé

La perception des personnes-soutien de l'importance de leur fardeau dépend à la fois de facteurs objectifs et subjectifs. En plus des demandes réelles, d'autres facteurs influencent la perception de l'importance du fardeau. La contribution relative des facteurs objectifs et subjectifs reste cependant inconnue. Nous avons entrepris de clarifier cette question en interviewant 70 individus ayant la charge de leur(e) conjoint(e). Les participants furent recrutés dans une clinique d'évaluation des démences. Après avoir pris en considération la tendance des participants à donner les réponses socialement désirables, les deux groupes de facteurs semblent contribuer de façon significative à la prédiction de la perception du fardeau. La similitude des caractéristiques démographiques des participants comparativement à celles d'un échantillon aléatoire de participants de l'Etude sur la santé et le vieillissement au Canada, suggere que les résultats peuvent être généralisés avec plus de confiance.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 1996

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

References

Abraham, I.V. (1991). The Geriatric Depression Scale and Hopelessness Index: Longitudinal psychometric data on frail nursing home residents. Perceptual and Motor Skills, 72, 875880.CrossRefGoogle ScholarPubMed
Abramson, L.Y., Metalsky, G.I., & Alloy, L.B. (1989). Hopelessness depression: A theory-based subtype of depression. Psychological Bulletin, 96, 358372.Google Scholar
Alloy, L.B., Abramson, L.Y., Metalsky, G.I., & Hartlage, S. (1988). The hopelessness theory of depression: Attributional aspects. British Journal of Clinical Psychology, 27, 521.CrossRefGoogle ScholarPubMed
American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.Google Scholar
Baumgarten, M. (1989). The health of persons giving care to the demented elderly: A critical review of the literature. Journal of Clinical Epidemiology, 42, 11371148.CrossRefGoogle Scholar
Beck, A.T., & Steer, R.A. (1988). Beck Hopelessness Scale Manual. San Antonio, TX: Harcourt Brace Jovanovich.Google Scholar
Beck, A.T., & Weishaar, M.E. (1989). Cognitive therapy. In Freeman, A., Simon, K.M., Beutler, L.E., & Arkowitz, H. (Eds.), Comprehensive handbook of cognitive therapy. New York: Plenum.Google Scholar
Beck, A.T., Weissman, M.E., Lester, D., & Trexler, L. (1974). The measurement of pessimism: The Hopelessness Scale. Journal of Consulting and Clinical Psychology, 42, 861865.CrossRefGoogle ScholarPubMed
Canadian Study of Health and Aging Working Group. (1994a). Canadian Study of Health and Aging: Study methods and prevalence of dementia. Canadian Medical Association Journal, 150, 899913.Google Scholar
Canadian Study of Health and Aging Working Group. (1994b). Patterns of caring for people with dementia in Canada. Canadian Journal on Aging, 13(A), 470487.CrossRefGoogle Scholar
Dura, J.R., & Kiecolt-Glaser, J.K. (1990). Sample bias in caregiving research. Journal of Gerontology, 45, P200–P204.CrossRefGoogle ScholarPubMed
Edmonds, V.H. (1967). Marital conventionalization: Definition and measurement. Journal of Marriage and the Family, 29, 681688.CrossRefGoogle Scholar
Fiore, J., Coppel, D.B., Becker, J., & Cox, G.B. (1986). Social support as a multi-faceted concept: Examination of important dimensions for adjustment. American Journal of Community Psychology, 14, 93111.CrossRefGoogle Scholar
Gallagher, D., Rappaport, M., Benedict, A., Lovett, S., & Silven, D. (1985). Reliability of selected interview and self-report measures with family caregivers. Paper presented at the annual meeting of the Gerontological Society of America, New Orleans, LA.Google Scholar
Gilley, D.W. (1993). Behavioral and affective disturbances in Alzheimer's disease. In Parks, R.W., Zee, R.F., & Wilson, R.S. (Eds.), Neuropsychology of Alzheimer's disease and other dementias. New York: Oxford University Press.Google Scholar
Haaga, D.A.F., & Beck, A.T. (1995). Perspectives on depressive realism: Implications for cognitive theory of depression. Behaviour Research and Therapy, 33, 4148.CrossRefGoogle ScholarPubMed
Hadjistavropoulos, T., Taylor, S., Tuokko, H., & Beattie, B.L. (1994). Neuropsychological deficits, caregivers' perceptions of deficits, and caregiver burden. Journal of the American Geriatrics Society, 42, 308314.CrossRefGoogle ScholarPubMed
Hooker, K., Frazier, L.D., & Monahan, D.J. (1994). Personality and coping among caregivers of spouses with dementia. The Gerontologist, 34, 386392.CrossRefGoogle ScholarPubMed
Katzman, R., & Jackson, J.E. (1991). Alzheimer disease: Basic clinical advances. Journal of the American Geriatrics Society, 39, 516525.CrossRefGoogle ScholarPubMed
Koch, R.E. (1985). The revision of the learned helplessness attributional style questionnaire for an older population (Doctoral dissertation, University of Wisconsin Madison, 1984). Dissertation Abstracts International, 46, 1520A.Google Scholar
Lazarus, R.S., & Folkman, S. (1984). Coping and adaptation. In Gentry, W.D. (Ed.), Handbook of behavioral medicine. New York: Guilford Press.Google Scholar
Linden, W., Paulhus, D.L., & Dobson, K.S. (1986). Effects of response styles on the report of psychological and somatic distress. Journal of Consulting and Clinical Psychology, 54, 309313.CrossRefGoogle ScholarPubMed
McKhann, G., Drachman, D., Folstein, M., Katzman, R., Price, D., & Stadlan, E.M. (1984). Clinical diagnosis of Alzheimer's disease: Report of the NINCDS-ADRDA work group under the auspices of the Department of Health and Human Services task force on Alzheimer's disease. Neurology, 34, 939944.CrossRefGoogle ScholarPubMed
O'Rourke, N. (1995). Depressive cognitive functioning among spousal caregivers of suspected dementia patients: Application of the hopelessness theory of depression. Unpublished master's thesis, University of British Columbia.Google Scholar
O'Rourke, N., Haverkamp, B.E., Rae, S., Tuokko, H., Hayden, S., & Beattie, B.L. (1996). Response biases as a confound to expressed burden among spousal caregivers of suspected dementia patients. Psychology and Aging, 11, 377380.CrossRefGoogle ScholarPubMed
O'Rourke, N., Tuokko, H., Hayden, S., & Beattie, B.L. (in press). Early identification of dementia: Predictive validity of the Clock Test. Archives of Clinical Neu ropsychology.Google Scholar
Parks, C.W., & Hollon, S.D. (1988). Cognitive assessment. In Hersen, M. & Bellack, A.S. (Eds.), Behavioral assessment: A practical handbook. New York: Pergamon Press.Google Scholar
Paulhus, D.L. (1991). Measurement and control of response bias. In Robinson, J.P., Shaver, P.R., & Wrightsman, L.S. (Eds.), Measures of personality and social psychological attitudes. San Diego, CA: Academic Press.Google Scholar
Pearlin, L.I., Mullan, J.T., Semple, S.J., & Skaff, M.M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583594.CrossRefGoogle ScholarPubMed
Russo, J., Vitaliano, P.P., Brewer, D.D., Katon, W., & Becker, J. (1995). Psychiatric disorders in spouse caregivers of care recipients with Alzheimer's disease and matched controls: A diathesis-stress model of psychopathology. Journal of Abnormal Psychology, 104, 197204.CrossRefGoogle ScholarPubMed
SPSS Inc. (1988). SPSS-X user's guide (3rd ed.). Chicago, IL: Author.Google Scholar
Tabachnick, B.G., & Fidell, L.S. (1989). Using multivariate statistics. New York: Harper Collins.Google Scholar
Teng, E.L., & Chui, H.C. (1987). The Modified Mini-Mental State (3MS) Examination. Journal of Clinical Psychiatry, 48, 314318.Google ScholarPubMed
Tuokko, H., Crockett, D., Beattie, B.L., Horton, A., & Wong, M. (1986, February). The use of rating scales to assess psychosocial functioning in demented patients. Paper presented at the annual meeting of the International Neuropsychological Society, Denver, CO.Google Scholar
Tuokko, H., Kristjansson, B., & Miller, J.A. (1995). The neuropsychological detection of dementia: An overview of the neuropsychological components of the Canadian Study of Health and Aging. Journal of Clinical and Experimental Neuropsychology, 17, 325373.CrossRefGoogle ScholarPubMed
Vitaliano, P.P., Young, H.M., & Russo, J. (1991). Burden: A review of measures used among caregivers of individuals with dementia. The Gerontologist, 31, 6775.CrossRefGoogle Scholar
Weiss, R.L., & Cerreto, M.C. (1980). The Marital Status Inventory: Development of a measure of dissolution potential. American Journal of Family Therapy, 8, 8085.CrossRefGoogle Scholar
Williamson, G.M., & Schulz, R. (1990). Relationship orientation, quality of prior relationship, and distress among caregivers of Alzheimer's patients. Psychology and Aging, 4, 502509.CrossRefGoogle Scholar
Willson, V.L., & Reynolds, C.R. (1982). Methodological and statistical problems in determining membership in clinical populations. Clinical Neuropsychology, 4, 134138.Google Scholar
Yesavage, J.A., Brink, T.L., Rose, T.L., Lum, O., Huang, V., Adey, M., & Leirer, V.O. (1983). Development and validation of a geriatric depression screening scale: A preliminary report. Journal of Psychiatric Research, 17, 3749.Google Scholar
Zarit, S.H. (1990, June). Conceptual and methodological issues in family caregiving research. Paper presented at the meeting of the Invitational Conference on Family Caregiving Research, Toronto, ON.Google Scholar
Zarit, S.H., & Zarit, J.M. (1990). The Memory and Behavior Problems Checklist and the Burden Interview. Unpublished manuscript, Pennsylvania State University, Gerontology Center, University Park, PA.Google Scholar
Zee, R.F. (1993). Neuropsychological functioning in Alzheimer's disease. In Parks, R.W., Zee, R.F., & Wilson, R.S. (Eds.), Neuropsychology of Alzheimer's disease and other dementias. New York: Oxford University Press.Google Scholar