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Quand les services facilitent ou nuisent au pouvoir des aidantes familiales

Published online by Cambridge University Press:  31 March 2010

Jean-Pierre Lavoie*
Affiliation:
CLSC René-Cassin, Institut de gérontologie sociale du Québec / Direction de la santé publique de Montréal-Centre
Diane Lessard
Affiliation:
CLSC René-Cassin, Institut de gérontologie sociale du Québec
Lucy Barylak
Affiliation:
CLSC René-Cassin, Institut de gérontologie sociale du Québec
Dominique Côté
Affiliation:
CLSC René-Cassin, Institut de gérontologie sociale du Québec
*
Les demandes de tirées à part doivent être adressées à : / Inquiries and requests for offprints sould be sent to: Jean-Pierre Lavoie, CLSC René-Cassin, 5800, boul. Cavendish, suite 600, Côte St-Luc (Québec) H4W 2T5. ([email protected])

Abstract

Few studies have integrated the concept of empowerment in their analysis of the interaction between formal services and informal caregivers. This study was conducted among 32 female informal caregivers living in a district served by a Montreal local community service centre (CLSC). It was designed to identify those aspects of formal services that either empowered caregivers or increased their powerlessness. Three major issues were identified: norms applicable to care giving; access to and control over resources and services; and power relationships with practitioners. Depending on their context and their perception of their role as a caregiver, caregivers reported that their recourse to services was either an empowering experience or one that increased their powerlessness.

Résumé

Peu de recherches ont adopté la perspective de l'empowerment dans l'étude de l'interaction entre les services et les aidantes familiales. La recherche présentée ici a été menée auprès de 32 aidantes d'un territoire de CLSC de Montréal. Elle avait pour objectif d'identifier les éléments des services qui favorisent l'empowerment ou lui font obstacle chez les aidantes. Ces éléments concernent trois enjeux majeurs: les normes associées à l'aide et au soin, l'accès aux ressources et aux services et l'emprise sur ceux-ci et, enfin, les rapports de pouvoir avec les professionnels. Selon les contextes et la centralité de l'aide et des soins dans leur identité, les aidantes rapportent surtout des expériences d'empowerment dans leurs contacts avec les services ou, à l'opposé, surtout des expériences où leur impuissance a été alimentée.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2003

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References

Références

Abel, E.K. (1990). Informal care for the disabled elderly: A critique of recent literature. Research on Aging, 12, 139157.CrossRefGoogle ScholarPubMed
Allen, D. (2000). Negociating the role of expert carers on an adult hospital ward. Sociology of Health and Illness, 22, 149171.CrossRefGoogle Scholar
Aronson, J. (1991). Dutiful daughters and undemanding mothers: Contrasting images of giving and receiving care in middle and later life. In Baines, C., Evans, P. & Neysmith, S. (Eds.) Women's caring (pp. 138168). Toronto: McClelland and Stewart.Google Scholar
Bertaux, D. (1997). Les récits de vie. Paris: Nathan.Google Scholar
Bourgeois, M.S., Schulz, R., & Burgio, L. (1996). Interventions for caregivers of patients with Alzheimer's disease: A review and analysis of content, process, and outcomes. International Journal on Aging and Human Development, 43(1), 3592.CrossRefGoogle ScholarPubMed
Clément, S. (1996). L'aide informelle visible et invisible. Dans Aymé, S., Henrard, J.C., Colvez, A., Ravaud, J.F., Sabouraud, O., et Triomphe, A. (Éds.), Handicap et vieillissement. Politiques publiques et pratiques sociales (pp. 197204). Paris: Éditions INSERM.Google Scholar
Corbin, J. (1992). Le soin: cadre théorique pour un cheminement interactif. Revue internationale d'action communautaire, 26, 3949.Google Scholar
Coristine, V. (1997). Empowerment or entrapment? Senior women caregivers' perceptions of community support services. M.A. Thesis, York University.Google Scholar
Davidhizar, R. (1994). Powerlessness of caregivers in home care. Journal of Clinical Nursing, 3, 155158.CrossRefGoogle ScholarPubMed
Direction de santé publique de Montréal-Centre. (2002). La santé de la population montréalaise. Montréal: Régie régionale de la santé et des services sociaux de Montréal-Centre.Google Scholar
Dunst, C.J., & Trivette, C.M. (1996). Empowerment, effective helpgiving practices and family-centered care. Pediatric Nursing, 22, 334337, 343.Google ScholarPubMed
Ellis-Stoll, C., & Popkess-Vawter, S. (1998). A concept analysis on the process of empowerment. Advanced Nursing Science, 21(2), 6268.CrossRefGoogle ScholarPubMed
Gibson, C.H. (1995). The process of empowerment in mothers of chronically ill children. Journal of Advanced Nursing, 21, 12011210.CrossRefGoogle ScholarPubMed
Gibson, C.H. (1991). A concept analysis of empowerment. Journal of Advanced Nursing, 16, 354361.CrossRefGoogle ScholarPubMed
Glaser, B., et Strauss, A. (1967). The Discovery of grounded theory. Chicago: Aldine.Google Scholar
Guberman, N., et Maheu, P. (2001). Les soignantes familiales vues par le réseau formel: co-clientes, ressources, co-intervenantes ou partenaires. Dans Henrard, J.C., Firbank, O., Clément, S., Frossard, M., Lavoie, J.P., et Vézina, A. (Éds.), Personnes agées dépendantes en France et au Québec (pp. 4562). Paris: INSERM.Google Scholar
Gutiérrez, L.M. (1990). Working with women of color: An empowerment perspective. Social Work, 35, 149155.Google Scholar
Huberman, M.A. et Miles, M.B. (1991). Analyse des données qualitatives. Bruxelles: De Boeck-Wesmael.Google Scholar
Jones, P.S., & Meleis, A.I. (1993). Health is empowerment. Advances in Nursing Science, 15(3), 114.CrossRefGoogle ScholarPubMed
Lavoie, J.P. (2000). Familles et soutien aux parents agés dépendants. Paris: L'Harmattan.Google Scholar
Lavoie, J.P., Pepin, J., Lauzon, S., Tousignant, P., L'Heureux, N. et Belley, H. (1998). Les relations entre les services formels et les aidantes naturelles. Une analyse des politiques de soutien à domicile du Québec. Montréal: Direction de la santé publique de Montréal-Centre, Université de Montréal et RAANM.Google Scholar
Lavoie, J.P. (1995). Support groups for informal caregivers don't work! Refocus the groups or the evaluations? Canadian Journal on Aging, 14, 580603.CrossRefGoogle Scholar
Lazarus, R., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.Google Scholar
Lee, J.A.B. (1994). The empowerment approach to social work practice. New York: Columbia University Press.Google Scholar
Lord, J., & Hutchison, P. (1993). The process of empowerment: Implications for theory and practice. Canadian Journal of Community Mental Health, 12(1), 522.CrossRefGoogle Scholar
Lord, J. (1991). Lives in situation: The process of personal empowerment. Kitchener: Centre for Research and Education in Human Services.Google Scholar
McClelland, M.D. (1993). Support group for women caregivers of the elderly: A feminist approach. Practicum report for M.A. in social work. Winnipeg: University of Manitoba.Google Scholar
Miller, B. (1987). Gender and control among spouses of the cognitively impaired: A research note. The Gerontologist, 27, 447453.CrossRefGoogle ScholarPubMed
Miller, B., & Cafasso, L. (1992). Gender differences in caregiving: Fact or artifact? The Gerontologist, 32, 498507.CrossRefGoogle ScholarPubMed
Myers, J. (1993). Personal empowerment. Ageing International, 20, 28.CrossRefGoogle Scholar
O'Connor, D.L. (1999). Living with a memory-impaired spouse: (Re)cognizing the experience. Canadian Journal on Aging, 18, 211235.CrossRefGoogle Scholar
Opie, A. (1998). “Nobody's asked me for my view”: Users' empowerment by multidisciplinary health teams. Qualitative Health Research, 4, 188206.CrossRefGoogle Scholar
Rappaport, J. (1984). Studies in empowerment: Introduction to the issue. Prevention in Human Services, 3, 17.CrossRefGoogle Scholar
Rissel, C. (1994). Empowerment: The holy grail of health promotion? Health Promotion International, 9(1), 3947.CrossRefGoogle Scholar
Rutman, D. (1996). Caregiving as women's work: Women's experiences of powerfulness and powerlessness as caregivers. Qualitative Health Research, 6(1), 90111.CrossRefGoogle Scholar
Ryles, S.M. (1999). A concept analysis of empowerment: Its relationship to mental health nursing. Journal of Advanced Nursing, 29, 600607.CrossRefGoogle ScholarPubMed
Schofield, R. (1998). Empowerment education for individuals with serious mental illness. Journal of Psychosocial Nursing, 36(11), 3540.Google ScholarPubMed
Skelton, R. (1994). Nursing and empowerment: concepts and strategies. Journal of Advanced Nursing, 19, 415423.CrossRefGoogle ScholarPubMed
Strauss, A., & Corbin, J. (1990). Basics of qualitative research: Grounded theory procedures and techniques. Newbury Park, CA: Sage.Google Scholar
Szabo, V., & Strang, V. (1999). Experiencing control in caregiving. Journal of Nursing Scholarship, 31(1), 7175.Google ScholarPubMed
Wallerstein, N. (1992). Powerlessness, empowerment, and health: Implications for health promotion programs. American Journal of Health Promotion, 6, 197205.CrossRefGoogle ScholarPubMed
Wranesh-Cook, M.L. Understanding the aide/family caregiver relationship. Home Healthcare Nurse, 15, 5763.Google Scholar
Zimmerman, M.A. (2000). Empowerment theory: Psychological, organizational, and community levels of analysis. In Rappaport, J., & Seidman, E. (Eds.), Handbook of community psychology (pp. 4363). New York: Kluwer Academic/Plenum.CrossRefGoogle Scholar