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A Model of Consumer Participation: The Canadian Breast Cancer Initiative

Published online by Cambridge University Press:  08 November 2023

Jean Parboosingh ,
Sylvie Stachenko  and
Suzanne Inhaber
Jean Parboosingh*
Affiliation:
Health Canada
Sylvie Stachenko
Affiliation:
Health Canada
Suzanne Inhaber
Affiliation:
Health Canada
*
Requests for reprints should be sent to:/Les demandes de reproduction doivent être adressées à: Jean Parboosingh, Disease Prevention Division, Health Canada, Jeanne Mance Building, Tunney's Pasture, Postal Locator 1905C2, Ottawa, ON K1A 1B4
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Abstract

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The issue of linking research and policy is not unique to health care of the elderly; it has been articulated by numerous stakeholder groups, including those with specific diseases, such as breast cancer. A method of enhancing these links is now being systematically addressed in the Canadian Breast Cancer Initiative with the input of women with breast cancer. The Initiative consists of a number of components and demonstrates a model of consumer participation at multiple levels in setting the agenda for research and policy development, thus enhancing accountability in the transfer of research findings into policy. The concept of consumer participation in linking research and policy is transferable to other diseases and other population groups, such as seniors.

Résumé

Résumé

La question de l'établissement d'un lien entre la recherche et les politiques n'est pas unique au secteur des soins de santé des ainés; elle a été mise de l'avant par de nombreux groupes d'intervenants, y compris ceux chargés de maladies bien précises comme le cancer du sein. Une façon d'améliorer ces liens fait présentement l'objet d'une étude systématique entreprise dans le cadre de l'lnitiative canadienne sur le cancer du sein avec l'apport de femmes ayant le cancer du sein. L'initiative comprend un certain nombre de volets et se veut un modèle de participation du consommateur, á divers paliers, á l'établissement du programme de recherche et d'élaboration de politiques, et partant, permet d'améliorer la responsabilité en matière de transformation des constatations de la recherche en politiques. Cette notion de participation du consommateur á l'établissement d'un lien entre la recherche et les politiques peut être appliquée á d'autres maladies et a d'autres groupes démographiques, dont les ainés.

Keywords

Breast CancerConsumerismModelsResearchPolicyCancerconsumérismemodèlesrecherchepolitiques
Type
Research Article
Information
Canadian Journal on Aging / La Revue canadienne du vieillissement , Volume 16 , Issue S1: Bridging Policy and Research on Aging/Tisser des liens entre les politiques et la recherche relative au vieillissement , Spring Printemps 1997 , pp. 177 - 186
Copyright
Copyright © Canadian Association on Gerontology 1997

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