Hostname: page-component-586b7cd67f-t7czq Total loading time: 0 Render date: 2024-11-26T04:11:20.576Z Has data issue: false hasContentIssue false

Frail and Disabled Users of Home Care: Confident Consumers or Disentitled Citizens?

Published online by Cambridge University Press:  31 March 2010

Jane Aronson*
Affiliation:
McMaster University
*
Requests etc.: Jane Aronson, School of Social Work, McMaster University, Hamilton, ON L8S 4M4

Abstract

Health care cuts and restructuring are shifting the site of acute care from hospitals to homes and prompting provincial governments to introduce varying forms of mixed economies in home care. Typically, such arrangements seek to drive down public costs and to reposition service users as “consumers” of market-modelled care. Drawing on an ongoing study of frail elderly women and women with disabilities receiving home care in Ontario, this paper explores the significance for service users of these economic and political objectives. Rather than feeling like consumers free to exercise choice and demand quality in the mixed economy of home care, they experienced their positioning within it as insecure and subordinate and its supply as unpredictable and meagre. The implications of these findings for fashioning secure and equitable public responses to elderly and disabled citizens who need assistance at home over the long term are discussed.

Résumé

Les coupures budgétaires et la restructuration des services de Santé aboutissent progressivement à un déplacement des soins d'urgence du site hospitalier au domicile du bénéficiaire, et incitent les gouvernements provinciaux à offrir différentes formules de soins à domicile. Généralement, ces mesures visent à réduire les dépenses publiques et à répondre aux besoins d'un marché où les clients sont des « consommateurs ». Résumé d'une étude en cours sur les femmes âgées de santé fragile et handicapées qui reçoivent des soins à domicile en Ontario, ce document étudie l'importance de ces objectifs économiques et politiques pour les utilisateurs de ces services. Au lieu de consommatrices libres d'exercer leur choix et d'exiger la qualité dans une économie de services, ces femmes vivent une situation d'insécurité et de dépendance vis-à-vis de services de soins à domicile de qualité médiocre et peu fiables. Ce document examine les résultats dans le but d'établir une formule pouvant offrir sécurité et fiabilité aux citoyen(ne)s âgé(e)s et aux handicapés qui ont besoin de services de soins à domicile à long terme.

Type
Articles
Copyright
Copyright © Canadian Association on Gerontology 2002

Access options

Get access to the full version of this content by using one of the access options below. (Log in options will check for institutional or personal access. Content may require purchase if you do not have access.)

Footnotes

*Thanks are due to the participants in the study: for their generosity and thoughtfulness in sharing their knowledge and time. A number of community groups were helpful in linking me with them and have been supportive of the project in an ongoing way; their input is much appreciated. The work reported here is supported by research grants from the Social Sciences and Humanities Research Council (Women and Change #816-98-0042) and the National Network on Environments and Women's Health (a Centre of Excellence in Women's Health funded by the Women's Health Bureau of Health Canada). For their comments on an earlier draft, I am grateful to Roy Cain, Mae Harman, Lynn Kearney and Ethel Meade.

References

Anderson, M. & Parent, K. (1999). Putting a face on home care: CARP's report on home care in Canada 1999. Kingston: Queen's Health Policy Research Unit.Google Scholar
Arber, S., & Ginn, J. (1995). Connecting gender and ageing: A sociological approach. Buckingham: Open University Press.Google Scholar
Armstrong, P. (1999). “Caring for Women in the New Global Economy.” Keynote address, annual conference of The Canadian Research Institute for the Advancement of Women, Sudbury.Google Scholar
Armstrong, P., & Armstrong, H. (1996). Wasting away: The undermining of Canadian health care. Toronto: Oxford University Press.Google Scholar
Armstrong, P., & Armstrong, H. (1999). Women, privatization and health care reform: The Ontario scan. Working Paper #10, National Network on Environments and Women's Health, York University.Google Scholar
Aronson, J. (2000). Restructuring older women's needs: Care receiving as a site of struggle and resistance. In Neysmith, S.M. (Ed.) Restructuring caring labour: Discourse, state practice and everyday life (pp. 5272). Toronto: Oxford University Press.Google Scholar
Aronson, J., & Neysmith, S.M. (1996) “You're not just in there to do the work”: Depersonalizing policies and the exploitation of home care workers' labour. Gender and Society, 10(1): 5977.CrossRefGoogle Scholar
Baldock, J., & Evers, A. (1992). “Innovations and care of the elderly: The cutting edge of change for social welfare systems. Examples from Sweden, the Netherlands and the U.K.Ageing and Society, 12, 289312.CrossRefGoogle Scholar
Baldock, J., & Ungerson, C. (1994). Becoming consumers of the community care: Households within the mixed economy of welfare. York: Joseph Rowntree Foundation.Google Scholar
Barnes, M., & Walker, A. (1996). “Consumerism versus empowerment: A principled approach to the involvement of older service users.” Policy and Politics, 24(4), 375393.CrossRefGoogle Scholar
Barry, J. (1995). “Care-need and care-receivers: Views from the margins.” Women's Studies International Forum, 18 (3), 351374.Google Scholar
Biggs, S. (1990/91). “Consumers, case management and inspection: Obscuring social deprivation and need?” Critical Social Policy, 10 (3), 2338.CrossRefGoogle Scholar
Brechin, A. (1998). “What makes for good care?”. In Brechin, A., Walmsley, J., Katz, J. & Peace, S. (Eds.) Care matters: Concepts, practice and research in health and social care (pp. 170188). London: Sage.Google Scholar
Broad, D., & Antony, W. (1999). Citizens or consumers? Social policy in a market society. Halifax: Fernwood.Google Scholar
Brotman, S. (2000). An institutional ethnography of elder care: Understanding access from the standpoint of ethnic and ‘racial’ minority women. Ph.D. dissertation, University of Toronto.Google Scholar
Canadian Association on Gerontology. (1999). Policy statement on home care in Canada. Canadian Journal on Aging, 18 (3), iiii.CrossRefGoogle Scholar
Canadian Pensioners Concerned, Ontario Division. (1998). Position statement on privatization in health care. Toronto.Google Scholar
Canadian Union of Public Employees (2000). Who's pushing privatization? Annual report on privatization. Ottawa: CUPE.Google Scholar
Care Watch PhoneLine (1999). Behind closed doors: Home care stories from the community. Toronto: Care Watch Toronto.Google Scholar
Clarke, J., and Newman, J. (1997). The managerial state. London: Sage.Google Scholar
Cott, C., & Gignac, A.M. (1999). Independence and dependence for older adults with osteoarthritis or osteoporosis. Canadian Journal on Aging, 18(1), 125.CrossRefGoogle Scholar
Diamond, T. (1992) Making gray gold: Narratives of nursing home care. Chicago: University of Chicago Press.CrossRefGoogle Scholar
Finch, J. & Groves, D. (1985). Old girl, old boy: Gender divisions in social work with the elderly. In Brook, Eve & Davies, Ann (Eds.). Women, the family and social work (pp. 92113). London: Tavistock.Google Scholar
Fuller, C. (1998). Caring for profit: how corporations are taking over Canada's health care system. Ottawa: New Star Books.Google Scholar
Fraser, N. (1989). Unruly practices: Power, discourse and gender in contemporary social theory. Minneapolis: University of Minnesota Press.Google Scholar
Glendinning, C. (Ed.) (1998). Rights and realities: Comparing new developments in long-term care for older people. Bristol: Policy Press.Google Scholar
Government of Ontario, (1999). Provision of community services. Ontario Regulation 386/99 made under the Long Term Care Act 1994. Gazette of Ontario.Google Scholar
Gubrium, J.F. (1993). Speaking of life: Horizons of meaning for nursing home patients. Hawthorne: Aldine deGruyter.Google Scholar
Hamilton-Wentworth Community Care Access Centre (undated). The community care access centre and you!Google Scholar
Ignatieff, M. (1984). The needs of strangers. New York: Penguin.Google Scholar
Kushner, C. (1999). who pays? Who profits? Privatization in Canada's health system. Presentation at conference of Ontario Coalition of Senior Citizens Organizations. Toronto.Google Scholar
Laws, G. (1995). Understanding ageism: Lessons for feminism and postmodernism. Gerontologist, 35(1), 112118.CrossRefGoogle ScholarPubMed
Le Grand, J. & Bartlett, W. (Eds.) (1993). Quasi-markets and social policy. London: Macmillan.CrossRefGoogle Scholar
Lewis, J., & Glennerster, H. (1996). Implementing the new community care. Buckingham: Open University Press.Google Scholar
Lincoln, Y.S., & Guba, E.G. (1985). Naturalistic enquiry. Newbury Park: Sage.Google Scholar
Martin Matthews, A., & Shipsides, A. (1991). Homemaker services to the elderly: Provider characteristics and client benefit. Unpublished Report.Google Scholar
Mason, J. (1996). Qualitative researching. London: Sage.Google Scholar
Masuda, S., (1998). The impact of block funding on women with disabilities. Ottawa: Status of Women Canada.Google Scholar
Meade, E.. (1999). Health Care Issues. Older Women's Network: Contact, 11 2, 4.Google Scholar
Morris, J., (1993). Independent lives: community care and disabled people. London: MacMillan.CrossRefGoogle Scholar
Morris, M., Robinson, J., & Simpson, J. with Galey, S., Kirby, S., Martin, L., & Muzychka, M. (1999). The changing nature of home care and its impact on women's vulnerability to poverty. Ottawa: Status of Women Canada.Google Scholar
National Council of Welfare (1997). Poverty profile 1995. Ottawa: Ministry of Supply and Services.Google Scholar
Neysmith, S.M. (1995). Power in relationships of trust: A Feminist analysis of elder abuse. In MacLean, M. (Ed.) Abuse and neglect of older Canadians: Strategies for change (pp. 4354). Toronto: Thompson Educational Publishing.Google Scholar
Neysmith, S.M., & MacAdam, M. (1999). Controversial concepts. In Neysmith, S.M. (Ed.) (1999). Critical issues for future social work practice with aging persons (pp. 126). New York: Columbia University Press.Google Scholar
Ontario Health Coalition (1999). Highlights of the government's draft policies for long-term care. Don Mills, Ontario.Google Scholar
Ontario Ministry of Community and Social Services. (1991). Re-direction of long-term care and support services in Ontario. Toronto: Queen's Printer for Ontario.Google Scholar
Ontario Ministry of Health (1996). Community care access centres: Board orientation.Google Scholar
Ontario Ministry of Health and Long-Term Care (1999). Long-term care website, updated December 16.Google Scholar
Opie, A., (1999). Being in health: Versions of the discursive body. In Neysmith, S.M. (Ed.). Critical issues for future social work practice with aging persons (pp. 187212). New York: Columbia University Press.Google Scholar
Sears, N., Anderson, M., King, K., Billing, J., & Lochhaas-Gerlach, J. (1999). Who needs home support services? Using evidence to address a growing problem. Presentation at the Annual Conference of the Canadian Gerontological Association,Ottawa.Google Scholar
Shapiro, E., (1997). The cost of privatization: A case study in home care in Manitoba. Winnipeg: Canadian Centre for Policy Alternatives.Google Scholar
Smith, D.E., (1999). Writing the social:Critique, theory and investigations. Toronto: University of Toronto Press.CrossRefGoogle Scholar
Sundstrom, G., & Malmberg, B. (1996). The long arm of the welfare state shortened: Home help in Sweden. Scandinavian Journal of Social Welfare, 5, 6975.CrossRefGoogle Scholar
Thorslund, M., Bergmark, A., & Parker, M.G. (1997). Difficult Decisions on care and services for elderly people: The dilemma of setting priorities in the welfare state. Scandinavian Journal of Social Welfare, 6, 197206.CrossRefGoogle Scholar
Twigg, J. (1997). Deconstructing the “social bath”: Help with bathing at home for older and disabled people. Journal of Social Policy, 26(2), 211232.CrossRefGoogle Scholar
Wilkins, K., & Park, E. (1998). Home care in Canada. Health Reports, 10(1), 2937.Google ScholarPubMed
Williams, A.P., Barnsley, J., Leggat, S., Deber, R., & Baranek, P. (1999). Long-term care goes to market: Managed competition and Ontario's reform of community-based services. Canadian Journal on Aging, 18(2), 125153.CrossRefGoogle Scholar
Wistow, G., & Hardy, B. (1999). The development of domiciliary care: Mission accomplished? Policy and Politics, 27(2), 173186.CrossRefGoogle Scholar